Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Postmeno3]

Hi,
Generally speaking, the mantra for treating anything in someone with M.E./CFS is "less is more". We tend to need to start on the absolute lowest dose and least invasive treatments due to our highly sensitive systems and responses. I'm guessing this has not been researched or distinguished. There may not be awareness where we need it. So, with M.E. warriors here struggling to get any regime to work for them, I'm wondering if standard solutions may be problematic for us and, if so, what the answer is; what creativity might be needed? Finding a formula and regime that works seems to be quite a long drawn-out, trial-and-error process for the ladies without a chronic health condition of this nature (or others?) so I, for one, worry about the inevitable exhaustion and frustration (draining energy) in addition accompanying this journey whilst wanting to be as healthy as possible "down there". I'm offering to open up a thread specifically for this group here and am interested in any views about that? PM if easier! Thanks for "listening"!

[CLKD]

Good topic: I think this will leach into long Covid sufferers too.  A bit like 'yuppy 'flu' where medics wouldn't believe that specific symptoms could be anything other than people wanting time off work! which makes me  to this day!  Long Covid sufferers are reporting similar intermittent symptoms . I wonder if they too will have problems with products that they have used previously?

I am trying to source hand made soaps with less additives, I fancy a change  .   Honey of course, the food that cannot turn bad, has a good history of use in products, including soaps as do products made from goat milk - due to the difference in I think, lactose. 

I wonder if there are too many products available: our Grannies made do with water off the roof drained through a silk stocking into a barrel.  Cuticura ointment, 'dettoll', baking soda seemed to be the main stay in my paternal gran's kitchen.  So companies puff simple recipes out in order to make more at a cheaper price?

[Wannabewell]

Hi Postmeno3,

I have ME and can be very sensitive to medication. I’ve just started HRT, day 11 of Oestrogel.  My GP prescribed 2 pumps daily, I started on 1 pump, I’m now on 1.5 and tomorrow will try 2 pumps.  I’ve managed okay doing it this way.

I’m starting Utrogestan on day 15, 200mg.  I have fingers crossed that I’ll,be okay on it, the main reason for beginning HRT was the cyclical depression that worsened terribly over the last few months and awful bloating.  Plus intense flushes and night sweats.

I’m really pleased with the Oestrogel so far, my mood has been much brighter and I’ve had a few less flushes and my mouth isn’t as dry.