Hi ,
Im new from today and due to my recent issues, my husband and i searched and found this forum...hooorrraaayyyy
Anyway about 6 weeks ago, i had to change my Hrt as my previous Hrt had been stopped.
I have lived with SP Ms for nearly 14 years, so i started taking the replacement/ new Hrt which i was advised by the Gp,was fine, same, no proplem.
Around the same time i started getting ( they called it) restless leg syndrome.
I would go,to bed and after about an idea, my knees would spasm and twist. This went on for up to 4 hours each night.
My Gp put me on a different neuro,drug ( was using Gabapentin, put on Pregablin) .
Therefore for the first week the Gabapentin and
Pregablin were both in my system. I lost majority of my sight in first week, not much feeling in fingers, left arm, dizzy etc but the legs werecsame when i got to bed.
I was on Pregablin for 4 weeks when i spoke to Gp and was told to change times that i was taking it.
On one of my sitting downstairs after getting out of bed in agony, i discovered that one of the many side effects was 'knee jerks'
Anyway it went on with no change. No advise from emergency locom, other Gp's as my Gp was by then on leave.
By 6th, the hot flushes were getting worse, i had a nasty body odour.
Im now on 7th week and the point to my post...Hrt is fine when you have one that works but when it doesnt work, the hot flushes overheat body, the MS gets angry , really angry.
Im waiting for a Gp,to call me back today to advice of a different Hrt.
My annoyance is, myself and my sister are with the same Gp. My sister also,has MS ( RRMS) and last year she had such bad hot flushes that she fell,and broke her ankle . This was EXACTLY the same Hrt change etc, etc.