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[charliegirl]

Hi all, am sorry to be a pain on here asking so many questions, but I am in really bad pain. Its not an UTI, been tested, not IBS, so thinking about endometriosis, although I am 67, had a hysterectomy for endo a while back,  but kept my ovaries. I have been taking soya which can make endo worse.
Any likelihood of this? Thanks.

[groundhog]

Hi charliegirl
I had severe endometriosis and had a hysterectomy but they removed ovaries ( and perforated my bowel but that’s another story).
I’ve wondered about a resurgence of endo and have discussed this at length with my gynae ( top guy in Endo ). He said it can come back after meno but it is rare . Severe endometriosis can also generates its own oestrogen supply but that is even rarer.  I’ve no idea about soya sorry.
Just wanted to say hello really as a fellow endo sufferer, it’s a horrible destructive disease and I’m not sure what your symptoms are but if the pain persists you will have to go back to doctors x

[Taz2]

Could you have adhesions from your hysterectomy charliegirl?

Taz x 

[Lyncola]

Hi
I’m 46 years old and had two endometriosis operations, one at 25 years old and at 44 and also had a hysterectomy still got my ovaries.

Before my operation the gynaecologist  told me my endometriosis could come back again.
I’ve still can have problems with my ovaries and can’t go on HRT,  I’ve had 6 ultrasounds since my hysterectomy. The last time I’d have my ultrasound they told me my pain was adhesions.

Have you seen and talked with your doctor?

 

[charliegirl]

Hi, trying to get an appointment at moment!

[charliegirl]

Well, dr says unlikely endo but had a tiny bit of bleeding in vagina so doing a pelvic scan to find out what’s happening. Hope this gets sorted out as feel so crappy!!

[Taz2]

When you had your hysterectomy did you keep your cervix?

Taz x

[charliegirl]

Yes I think I did Taz.

[Taz2]

I just wondered when your last smear was?

Taz x

[charliegirl]

Havn’t had one in ages Taz. Will have to ask.

[Lyncola]

You don’t usually need a smear when you had a hysterectomy. My doctor made me ask the gynaecologist as this isn’t always the case. But I’ve had one after when my doctor wanted to rule out something before she considered virginal atrophy.

Good luck with your pelvic ultrasound. And please let us know how you get on.

[charliegirl]

Well, doc did exam and said it was tender, and cervix ok.Having ultrasound to rule out ovarian cancer!😟

[Taz2]

You don’t usually need a smear when you had a hysterectomy. My doctor made me ask the gynaecologist as this isn’t always the case.

If you retain your cervix then you definitely still need cervical smear tests as the cervix can still become cancerous. If the cervix is removed, as sadly mine was, then there is no need for cervical screening.

Taz x

[lancashirelass]

I had hyst for.endo but ovaries removed and on oestrogen only hrt it came.back even thoifh i had excision too
I now use progesterone  too
If you didnt have full excision at time of hyst very common to come back
Firstly  soya unless organic is a.no no with endo diane sheperson a endo nutritionist  told.me this. 
An ultrasound  will be bog useless you need a pelvic mri and to see an endo specialist
Where are you based ?

[charliegirl]

Am based in Blackpool.