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[Kathleen]

Hello GypsyRoseLee

So sorry to read about your diagnosis. I also remember your previous posts about your meno journey and subsequent HRT treatment. Many ladies were rooting for you then and we are here to support you now .

Wishing you well and sending lots of hugs.

Take care and keep posting

K.

[GypsyRoseLee]

I don't know if weaning off makes any difference? My surgery is on Feb. 18th so not long. I never really suffered with any of the physical symptoms of peri, so really unsure what to expect?

How long ago was your diagnosis CLKD?

[Salad]

Wow what a blow - sorry you're facing this.

Guess it's time to sign yourself over to the breast team and follow their instructions and protocol for the time being.
Maybe start a journal to monitor how you're feeling as you come off the HRT.
I think I've read on here about a Consultant who prescribes HRT for women post Breast Cancer treatment.
Keep posting to let us know how you're doing - one day at a time 

[CLKD]

199?5 I think.

My Consultant insisted that I had a list of questions at each visit but he was so good at explaining and supporting that I never required it.  Make sure that you ask about any worries that you might have.  Who is supporting you at home?

[Redlocks]

Oh GypsyRoseLee, I'm so sorry to hear this and I'm thinking of you.
You haven't done anything to bring this on yourself; you were trying to get well, but it's just a cruel lottery.
Sending enormous hugs and stay in touch.
X

[Tc]

Gypsyrose

I'm so sorry this has happened to you.  I wish you luck with your surgery, treatment  and recovery. Sending positive thoughts and love xxx

[Rosebush]

I too wish you luck with your surgery, and your follow up treatment  . Sending you love & best wishes xxx

[CLKD]

Hi rosebush - what's it meant to be 

[Jeepers]

Hi GypsyRoseLee


So sorry to hear of your diagnosis

Just wanted to add my good wishes for what must be a very difficult time, I hope the surgery all goes well

Hugs

Jeepers xx

[GypsyRoseLee]

I am so touched by all your kind words and support. Thank you. My main fear isn't the surgery or radiotherapy. It's the fear that if I take Tamoxifen, its oestrogen suppression will send me into a black hole again. I've tried to do some research but can't find anything useful.

[CLKD]

It is a 2 supress the hormone.  4 me I had over-sensitive taste and smell.  DH had cooked a Dundee cake: It was in a tin with the lid on in a cupboard with the door shut.  I could taste the tablespoonful of water he had used in the mix every time I walked by the cupboard.  He bought some pork chops and even though I wasn't in the kitchen I could taste them whilst he was cooking ....... I couldn't smell them or see him ......

It put me off my grub within 24 hours.  As a recovering anorexic I couldn't afford to continue with the drug.  Also, do check what effects these drugs can have on other parts of the body.  Ask if it's really necessary to take any?  I am still here: without.  My friend took tamoxifen for 5 years, then a break of 2 then 3 more years: she isn't. 

I don't know how much research has actually been published on Tamoxifen and others .......   you have time to ask and research, you are unlikely to be given it until after surgery.  Within 12 hours of swallowing the first pill I had cold flushes I thought I had a 'flu bug  - it was like cold water running from my neck down my back.  That stopped when I stopped the drug.   

[rolercoasterhell]

I have read through all of your posts today GRL (stuck in bed with white-knuckle anxiety). I identify with so much that you have gone through. My life has effectively been ruined due to hormones. I have been misdiagnosed with everything under the sun (bipolar, chronic fatigue, IBS, depression etc) but it has dawned on me that all of my problems have been due to bloody hormones.

I hope that you don't mind me saying, and I could of course be wrong, but I do not think that you needed the oestrogen (that your oestrogen was high enough) and it was the antidepressant that brought you relief (not the Studd protocol).

The reason I am telling you this is that I feel that without oestrogen you may not suffer as dreadfully as you are anticipating and that the sertraline might keep you on a semi-even keel.

I feel so dreadfully sorry for you. I regularly feel the anxiety (scratch my skin off variety) that you experience and I have always had the sudden and dramatic changes that you mentioned (I always called them my switches). I have so many similarities to you and, after decades online and on forums for all manner of conditions, you are the first person that I can truly identify with.

I so hope you are surviving this ordeal. No one should suffer as much as you have.

Rollercoaster X

[CLKD]

rollercoaster - it took years for GRL to get any relief.  So having to alter a regime which works can be a real worry.

As an apparently new Member 

[rolercoasterhell]

Hello CLKD. Nice to meet you. Glad that I have been made to feel welcome with your 'apparently a new member' nicety.
 

[Wrensong]

Hi rolercoasterhell.     I'm sure no offence was meant.  I checked to see whether you'd introduced yourself with your own thread, which is usually suggested for new members & I see Hurdity has already helpfully replied to your initial post there.  Maybe have a good look around the forum if you haven't yet?  There is a long running thread where members post on anxiety, so you will not be short of support if you'd like to introduce yourself there.  I hope you find any help you need, there is always someone around to chat, compare notes & hold a hand.