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Author Topic: What the heck is my body doing  (Read 14284 times)

Tc

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Re: What the heck is my body doing
« Reply #15 on: October 14, 2019, 06:03:48 PM »

Thank you Jenny. X
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KiltedCupid

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Re: What the heck is my body doing
« Reply #16 on: October 14, 2019, 07:13:21 PM »

TC - I've used elleste solo buccal. You need a much smaller dose than oral, half or even quarter an oral dose. I got real peaks and slumps with it so gave up but some ladies get on well with it. Gum and cheek was better than under tongue for me. Surmeno blog has a lot of troubleshooting info on it. Good luck.
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Tc

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Re: What the heck is my body doing
« Reply #17 on: October 14, 2019, 07:36:05 PM »

Thanks cupid. Yes the suremeno blog has some great troubleshooting  pages for all the delivery methods.

I went through the patch checklist to make sure I could rule everything out in terms of the way I was using it.  Re absorption.

Thanks for sharing how you found the buccal method.
Xxx
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KiltedCupid

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Re: What the heck is my body doing
« Reply #18 on: October 14, 2019, 07:52:12 PM »

TC - have you tried fem7 oestrogen patches? I find them the best out of all brands and far superior to gel for me. They're not as commonly prescribed so you may not have been offered them.
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Tc

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Re: What the heck is my body doing
« Reply #19 on: October 14, 2019, 10:48:56 PM »

Cupid. Femseven were the first ones I was given a few weeks after surgery. . I was given sequi which  I now know is not the norm post meno but the main issue was  I was given 50 which patently werent high enough but couldnt increase as they went out of manufacture right at that time and  I was switched to gel.

So I still feel I cant say for definite they didnt work for me as I didnt get to use an appropriate dose. One thing I would say though is I didnt get migraine on the progesterone part  it's the same as the contraceptive pill which I took when young with no problems.

I thought  they were still out of manufacture. Have you been able to get some. ?
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KiltedCupid

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Re: What the heck is my body doing
« Reply #20 on: October 15, 2019, 03:53:40 PM »

TC - I've tried almost all available prog and levo seems to be the least troublesome and, like you, I had it in a bcp I got on with. The fem7 gives the best delivery for me out of all the patches and I don't absorb gel well at all. I've got enough fem7 sequi to last until early 2020 so may have to get levo mini pill or possibly even Jaydess if the new formula fem7 isn't available until later in the year. You could try just the fem7 E patch at double dose just to see if you absorb from it though?
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Tc

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Re: What the heck is my body doing
« Reply #21 on: October 15, 2019, 06:08:23 PM »

Thanks cupid.
I believe c and w offer the jaydess.
If I cant get the implant I will try to go back on femseven.  I've read that a conti regime is better migraine wise. But with the implant it's either the mirena, jaydess or tablet.

Only 2 more sleeps til my appointment  I'm pinning so much on it, maybe too much. hope I dont end  up sobbing my way back to Fulham Broadway station. !!

Ladies My doc has surpassed herself today. . I only saw her last week but she  has called me in again and when I phoned and asked her why I was told it's about progesterone because the blood result  "suggests annovulation".  No shit sherlock!!! 
if I was ovulating with no ovaries I'd be on the sofa with Philip and Holly tommorow morning.  :- :)
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KiltedCupid

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Re: What the heck is my body doing
« Reply #22 on: October 15, 2019, 06:23:22 PM »

You're going to arguably the best meno clinic and consultants in the land. I'd be excited too. An implant and Jaydess would be my holy grail, no mess, no remembering, just hormones without faff. Try for it and let us know.
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Hurdity

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Re: What the heck is my body doing
« Reply #23 on: October 15, 2019, 06:48:51 PM »

Thanks cupid.
I believe c and w offer the jaydess.
If I cant get the implant I will try to go back on femseven.  I've read that a conti regime is better migraine wise. But with the implant it's either the mirena, jaydess or tablet.

Only 2 more sleeps til my appointment  I'm pinning so much on it, maybe too much. hope I dont end  up sobbing my way back to Fulham Broadway station. !!

Ladies My doc has surpassed herself today. . I only saw her last week but she  has called me in again and when I phoned and asked her why I was told it's about progesterone because the blood result  "suggests annovulation".  No shit sherlock!!! 
if I was ovulating with no ovaries I'd be on the sofa with Philip and Holly tommorow morning.  :- :)

 ;D - you wouldn't believe it would you!!! This is just so scary. Many of us on here know a lot more than some of these docs! This is why you need a menopause clinic (well - we all do!).

Great that your appointment is almost here at last. I really hope all goes well and more importantly that you see one of the doctors - fingers crossed. We're all rooting for you and look forward (with bated breath) to hear about the outcome. Remember to refine that list, and especially re the questions you have about why things haven't been working for you eg re your oestrogen level and absorption. Then you can refer to it calmly. Sleep well :)

Hurdity xx
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Tc

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Re: What the heck is my body doing
« Reply #24 on: October 15, 2019, 06:56:09 PM »

Thank you so much cupid and hurdity for your reassurance and good wishes  It means a lot. .I  I will be sure to let you know.

The annovulation has surpassed the doc who said you're not post meno until 12 months after ovary removal!!!

Hope you all have a good nights sleep too. Xxxx
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Hurdity

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Re: What the heck is my body doing
« Reply #25 on: October 15, 2019, 06:59:04 PM »

 :rofl: (you have to - otherwise you would  :'( !!!

Hurdity x
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Alicess

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Re: What the heck is my body doing
« Reply #26 on: October 15, 2019, 08:02:42 PM »

Just wanted to let you know I have my fingers crossed for you too! X
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Tc

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Re: What the heck is my body doing
« Reply #27 on: October 15, 2019, 08:10:57 PM »

Thanks Alice xxx
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KiltedCupid

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Re: What the heck is my body doing
« Reply #28 on: October 19, 2019, 12:56:54 PM »

Tc - how are you?

Hope your appointment went well.
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Tc

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Re: What the heck is my body doing
« Reply #29 on: October 20, 2019, 01:23:11 PM »

Hiya ladies.
So, my appointment with c and w. ...this might be a loooong post!! Much to report so Are you sitting comfortably?

I Saw a doc who has worked in the Panay clinic for 7 years.   She was lovely and  spent an hour with me.

She is making an appt for the implant clinic. As I am a good candidate for it. Yay!!!

But progesterone is an issue.
She is realy unhappy with me taking any oral HRT whatsoever.  I'm overweight and have smoking history but the main issue by far is migraine. She said migraine increases the risk of clot/ stroke on oral HRT.  She wants me off utrogestan as aside from risk it makes me feel unwell and is not likely to improve after all this time so not a long term solution. And a long term solution is required with the implant.

The implant stays active  for 6 to 8 months but E levels can remain raised even after that and it cannot be removed. It can be unpredictable in that it can give high levels especially in the first few months and as there is no quick fix in lowering E levels with it in situ , then  protecting the womb adequately is paramount. She said we dont want lining getting much thicker than current 4.2.

So having the mirena fitted is a bit of a condition for the implant for me. . It made sense and I want the implant so I agreed. 

She did an osteoporosis risk assessment and due to my previous eating disorders, family history and oopherectomy I came out high risk. So shes ordered a dexa scan. It will determine whether I get the lower or higher dose implant 

The mirena has to be fitted first and it has to be done in their clinic  so In order to give time for this and scan (which also has to be done there)  she is looking  at February implant fitting. She did mention the implant has been hit by shortages. Eeeek!!!  But she said they are hopefull will be sorted by then. Let's hope so, not just for implant but for all of us.

Regarding absorption. She said my E levels might be even lower without HRT possibly zero!!! So it's not that I've absorbed nothing. I've just absorbed very little. So in the interim ,  whilst waiting for implant she suggested no harm in trying something different.

Interestingly, she said they find poor absorbers often fare better on Everol than other patches.
We looked at my levels historically and it seemed that although levels didnt increase on eastrogel, they fell but didnt fall as much or as rapidly as on patches so she suggested Sandrena gel.  She reckons its stronger than eastrogel.  She's given me High dose 2 sachets but shes writing GP to say I can increase even further if I need  to and shes sending doc chart of all HRT products and dose levels so that the doc understands I need high dose if I have to be changed to anything else in next four months.

Utrogestan continual (conti IS better for migraine)  so 100mg but she stressed I must take it vaginally. But hopefully wont be long  til I get mirena fitted and can ditch it.

Testosterone.  Shes given me enough testogel to last me 6 months and said it's fine that I get through a sachet a week as my levels are well within range. And could stand to be a bit higher. We will discuss T implant at implant clinic. As with all T for women it's off license.

She couldnt readily explain the FSH but is writing to my doc for more blood tests. She did say that post BSO the endocrine system can go a bit haywire and may take even longer than a year to settle.

She said Gilbert's disease is unlikely to affect absorption of HRT but that the symptoms of Gilbert's itself can increase post meno. I didnt know that.
Since i recently found out some of the Gilbert's symptoms are digestive issues, fatigue and  poor clearance of toxins,  including those in some drugs, then I guess it might have come into play. Hard to tell as some of the Gilbert's symptoms are also post meno symptoms. But the poor clearance of drugs and toxins is unique to Gilbert's so I am thinking could possibly have thrown another spanner in the works.

She is also writing to GP  to say they need to prescribe enough topical E for me to use as often as I feel necessary for VA symptom control. Even if that's every night.!  Couldnt help feeling a sense of victory in that. Felt like all of you were behind me punching the air and going "Yes!!!"

All in all. A very good appt. She hugged me on way out and said "we will have you feeling a lot better".

For some reason I couldnt stop crying when I came out. Proper showed myself up on the district line  :)  snotty mess!! so many emotions just hit me.

Thank you all for your good wishes. Please feel free to ask me any questions. The doc said my case is more complicated than some but  that is what they deal in at the panay clinic So I'm hoping my experience might help other ladies too.

Much love TC xxxx
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