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[Foxylady]

Thats great RebJT re the health system in Greece, although I can also see negatives in how accessible things are. Glad you've joined the MCAS group alot of very knowledgeable people, good support & access to info. Hope you notice a difference with the H1 & H2 blockers, have you started a symptom diary as I know personally I couldn't always remember day to day whether there were differences unless i had it written down on the day 'brain fog'. Your right enough seeing about getting the bloods done in Greece rather than paying even more for them back in the UK. x

[RebJT]

Thanks, yes just starting a diary and off to the pharmacist in a minute to see if he's tracked down some of things I asked for.  I've got Zantac, seemed to make a difference yesterday and am taking one H1 anti histamine but he's trying to find me another that's also a mast cell stabiliser.  Meanwhile spoken to func med doc (starting to think she's either a) a total quack or b) just not looking at my notes properly) but she suggested the usual alternative stuff of Calcium D Glucarate and DIM.

Meanwhile, I'm bleeding to death, my period has started (first after D&C, and 12 days of estrogen, which I stopped a week ago now) and good grief, horrific!  I'm so confused about what the standard protocols are for heavy bleeding (nigh on flooding yesterday) whether it's combined E & P matching your cycle, or P only.  They were keen for me to have Mirena which is P only, but gah!  I don't know enough about it really to know what I need. Suffice to say it's no fun being trapped in the house near the loo in 35 degree heat, watch all that iron I diligently put in all month literally go down the toilet!

It does seem that histamine has a role in heavy bleeding, but depending on what you read, some say progesterone intolerance is involved, others say histamine stimulates the body to make more E, and E stimulates the body to make more histamine, and triggers your mast cells.

I really hope this lady has some answers, as I just can't carry on like this.  Meanwhile have instigated a proper low histamine diet, and going to journal that. 

Thanks for kind words, I need them to today, stray kitten I've rescued is looking at me askance as I keep bursting into tears (silly video of a donkey on facebook that did it!).  God was laughing when he made women!!!!

Rebecca
x

[CLKD]

Well done on persevering!!  Some one could do a 'thesis' on your condition which would get information in2 the public domain!  A bit like MaryJane pushing vaginal atrophy into the World!

 

[RebJT]

haha!  I'm quite happy to be a case study if a) it sorts me out, and b) helps others, in the MCAS group I'm in if you type periods or estrogen or hormones into the search box, an avalanche of miserable women in the same boat comes up!

[Wrensong]

Hang on in there Reb, we are all rooting for you.
Wx

[RebJT]

Ah thanks!  I will keep you posted x

[CLKD]

There is a drug to ease heavy bleeding.  Ask?

What colour's the kitten 

[RebJT]

He's white with a grey tail, grey saddle and grey and pink ears and a pirate's eye patch, he's 12 weeks and now named Ari (Aristotle) and I've booked him on a transport back to the UK with his mother in October (I'm such a sucker!).

If it's tranexamic acid you are thinking about, I'm already on it, and it's not touching the sides!

[CLKD]

That's it!    

[RebJT]

Yep I'm doing that with ibuprofen, latter meant to do something to prostoglanins in uterine lining, but also some people get histamine reactions to them (so far, I don't seem to) but bleeding is so heavy, it's not making much difference, hence other post asking about treatments, I don't understand enough, but from my research, women like me need prog I think (one lady in my MCAS group just been given Provera)

[CLKD]

Will kitten need to go into Quarantine?

[RebJT]

Nope, he's got a passport, so provided we're back before a crash out brexit, he'll be fine (I'm bringing his mum too).  He'll arrive about 26th October.

[CLKD]

It won't matter if they have Passports where we are 

How U today?

[RebJT]

I'm OK, hanging round the house is doing me in, and last day of my period so those horrible cramps and the sort of 'crashed' or empty tank feeling, it truly was the period from hell on top of the month from hell, and I seriously hope to never go through anything like that again!

Thanks for asking x

[CLKD]

Is it hot?  30 in our car earlier  .  Don't forget to drink as when bleeding one sheds liquids which need replacing.  An ice lolly maybe ;-)