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Author Topic: HRT supply issues update on all Products see link  (Read 112623 times)

clio

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Re: HRT supply issues update on all Products see link
« Reply #375 on: October 23, 2019, 05:13:17 AM »

Ive just made an appointment to see my GP as I just cannot get my patches anywhere, I've got 3 weeks left of patches so hoping I can be given a suitable alternative. Clio
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Tc

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Re: HRT supply issues update on all Products see link
« Reply #376 on: October 23, 2019, 08:46:41 AM »

Hiya. Just been told by pharmasist everol 100 available, sandrena 1.0mg gel available but estradot 100 still in the red. Xx
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Sammiejane

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Re: HRT supply issues update on all Products see link
« Reply #377 on: October 23, 2019, 12:48:13 PM »

hi perinowpost

u mention u take everol 50 patch and your hair has been fine ! have you noticed any other side effects ?
where do you apply your patch !

i've been using 2-3 pumps gel have had horrible hair loss ever since started estrogen 1 yr ago started on elleste solo mx40 patch and has got worse since so think it may be estradiol itself , i thought maybe an imbalance in hormones as i don't need progesterone but u say your hair has been fine x
also i use ovestin for VA but recently i've found the dampness in knickers getting worse the minute i sit down my underwear is wet . can't understand so as i've not been obsorbing the gel well and gained a lot weight i was thinking of trying the everol patch again if it will stick that was my problem it wouldn't stick ?

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jaycee

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Re: HRT supply issues update on all Products see link
« Reply #378 on: October 23, 2019, 01:35:44 PM »

Looks like it is all Evoral  I don't know about Estraderm , it's a pity that Evoral Conti affected my hair, as It did make me feel more energetic
There doesn't seem to be much choice patch wise for post meno really

Hi jaycee,

Forgive my menopausal short term memory, what has happened to your hair?



Sorry BeaR, Just seen this, after using Evoral Conti my hair was falling out in front of my eyes just floating everywhere
I believe it was the norethisterone that caused it,my daughtet did the same,but I have  even more  bald patches ,

Norethisterone has been added to the parallel export blacklist https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/840056/Medicines_that_cannot_be_parallel_exported_from_the_UK_2.csv/preview

BeaR.
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Perinowpost

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Re: HRT supply issues update on all Products see link
« Reply #379 on: October 23, 2019, 01:48:58 PM »

Hi Sammiejane

No I've never had any problems re hair loss. I love evorel it makes me feel like me again. I have absolutely no side effects from it apart from a little bloating around the abdomen. I feel if I came off hrt that would go, but it's not a risk I'm prepared to take as I don't want to feel like I did pre-hrt, so it's worth it to me. I watch my diet carefully and eat a mainly plant based diet (which helps) and I've remained a size 12.  I put the patches on my lower abdomen, alternating sites each time, I've never had any issues with them sticking (I don't use body moisturiser).

Hope this helps x
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Sammiejane

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Re: HRT supply issues update on all Products see link
« Reply #380 on: October 23, 2019, 06:48:51 PM »

perinowpost

hi there

can everol be used on the abdomen i thought they had to go in the buttocks ?

maybe i'll retry them !

u just take everol nothing else ?

what is your dose
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Perinowpost

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Re: HRT supply issues update on all Products see link
« Reply #381 on: October 23, 2019, 07:04:03 PM »

Yes they can go on your abdomen. I tried them on my butt but didn't get any absorption. I'm on evorel 50, which is an average dose.  I also take progesterone in the form of utrogestan, I take that vaginally x
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Sammiejane

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Re: HRT supply issues update on all Products see link
« Reply #382 on: October 23, 2019, 07:09:11 PM »

perinowpost

i take estrogel but not obsorbing but have some everol patches 50 from before i don't need progesterone as i've had hysterectomy although menopause said i can try progesterone as wondered if an imbalance causing my hairloss !

they have given me utrogestan to try but orally ! my other option i'm thinking about as i have no ovaries is the combined pill as i had no issues on this
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Perinowpost

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Re: HRT supply issues update on all Products see link
« Reply #383 on: October 23, 2019, 07:20:31 PM »

You don't say how old you are Sammiejane (apologies if I've missed it). If you've no issues with the combined pill at least that's always an option open to you x
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Sammiejane

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Re: HRT supply issues update on all Products see link
« Reply #384 on: October 23, 2019, 11:31:12 PM »

hi perinowpost

i'm only 40 ! i had everything removed at 35 but as i smoke and may age they are reluctant , but with all the hrt shortages and not obsorbing from the gel may be my only option !

my gynocologist said he doesn't see a problem with it yes there is a risk of Dvt and blood clots but then there is with HRT particularly the tablets which was what i was put on in the very beginning but vomited on then so swapped me to the patch and it didn't suit so was told by rubbish GP at the time hrt dosent suit you so u can't take it hence the no hrt for years and now i'm paying the price with vaginally bladder bowel problems so thanks to them ! but then now i'm better then i was mentally but hot flushes gone 3 pumps gel but i'm not obsorbing my levels are still low hairloss still an issue and vaginally symtoms getting worse so god knows my knickers constantly damp despite using ovestin there's no significant prolapse but something isn't right i can feel it , i've had mri on pelvis and all normal organs in correct place but i get twitches in my urethra wee hole or spasms and then knickers damp the minute i sit down not sure if it is wee dosent smell like wee ! but i'm going to do an experiment i'm going to wee in a jug pour a bit over my knickers and smell and then smell my damp knickers and see if it's the same x lol
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Orangefoot

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Re: HRT supply issues update on all Products see link
« Reply #385 on: October 23, 2019, 11:45:22 PM »

I couldn't get Estradot anywhere so now have Estradem, thanks to me asking the pharmacy to tell the GP what they could get instead of the GP guessing! I was freaking out a bit as I have a Jaydess IUS and was worrying that having that without any estrogen would be all my progesterone bad things back.

The 75 is huge and I've been warming it my hands then sticking it on my thigh (only place flat enough that I don't bend in some way) and then warming it a bit more with the hairdryer. This was a tip from twitter after I mentioned that they weren't that sticky.

I feel fine, which is good although this cycle has been 8 days longer than any previously. That may just be things evolving though and it's still very light - just a small puddle in my mooncup every day.
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Hurdity

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Re: HRT supply issues update on all Products see link
« Reply #386 on: October 24, 2019, 06:49:46 PM »

Orangefoot - they are indeed huge  ::) - and bigger than my palm! I have done just as you have done (Estradot to Estraderm) and yes I warm my hand and butt with hairdryer before sticking and often in the morning just warm up the place where it's stuck (from a distance) and make sure it is still stuck down.

I started a thread here so might be worth adding your experience to that too eg where you stick it etc?
https://www.menopausematters.co.uk/forum/index.php/topic,45474.15.html

So far so good for me too, and what's more they don't leave black marks at all (unlike Estradot!)

Hurdity x
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jaycee

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Re: HRT supply issues update on all Products see link
« Reply #387 on: October 26, 2019, 12:11:27 PM »

Looks like it is all Evoral  I don't know about Estraderm , it's a pity that Evoral Conti affected my hair, as It did make me feel more energetic
There doesn't seem to be much choice patch wise for post meno really

Hi jaycee,

Forgive my menopausal short term memory, what has happened to your hair?

Norethisterone has been added to the parallel export blacklist https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/840056/Medicines_that_cannot_be_parallel_exported_from_the_UK_2.csv/preview

BeaR.



BeaR what does it mean exactly, Norethisterone added t parallel  export shortlist? for some reason I got it into my head it was being discontinued.sorry if I seem a bit thick regarding this meaning
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bear

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Re: HRT supply issues update on all Products see link
« Reply #388 on: October 28, 2019, 02:00:26 PM »

Hi Jaycee,

Norethisterone is not a branded pharmaceutical, it's a progestogen that is part of many branded products, like Evorel and many contraceptives. It has been added to the parallel export BLACKLIST, meaning it cannot be exported to other countries in the EU, in order to remain available to UK patients.

BeaR.
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Hurdity

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Re: HRT supply issues update on all Products see link
« Reply #389 on: October 28, 2019, 08:03:31 PM »

BeaR what does it mean exactly, Norethisterone added t parallel  export shortlist? for some reason I got it into my head it was being discontinued.sorry if I seem a bit thick regarding this meaning

You're not in the least bit thick jaycee! All of this is quite obscure unless you follow it closely and not all obvious, and not always relevant to most of us on here - as there is so much going on!

If you remember a few weeks ago there was some publicity about HRT shortages and Govt stepping in to prevent stockpiling and the unbelievable practice (which most of us had no idea was possible) of a UK drugs wholesaler IMPORTING a product from elsewhere in EU, holding it in UK,  and then RE-SELLING at a higher price outside UK ie back to EU, further down the supply chain.

In addition to being part of many branded products norethisterone is a generic drug that is also available separately - often prescribed off-licence as part of HRT but more usually for heavy bleeding - so it's probably this formulation that is being prevented from being exported. The fairly recent addition of this drug alone probably des not concern most of us on HRT as it is not often prescribed on its own for HRT.

Just to be absolutely clear, all products on the list are known by their generic name so for example if you look at the entry for "Estradiol" - it says "any". This mean any formulation of estradiol only - pills, patches or gel, or vagifem - cannot be re-exported. All current HRT formulations (ie Evorel etc) were on the list when it was first compiled on 4th October.

Hurdity x
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