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Author Topic: Breast cancer diagnosis - DEVASTATED  (Read 10963 times)

Kathleen

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #15 on: April 20, 2019, 09:19:16 AM »

Hello Cazjen.

So sorry to read that you've had this diagnosis. My neighbour was in a similar position to you and she is fit and well ten years on. She also took Tamoxifen without any problems.

The lovely ladies on this forum are here to support you and I hope you take some comfort from that.

Take care and sending hugs.

K.
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Tc

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #16 on: April 20, 2019, 09:30:53 AM »

Cazjen. I'm sorry you are having to go through this. I see you have some ladies replied with helpful experience re the HRT. And I hope you find it a little comforting to hear of success in treatment too. . I just wanted to say I send much love your way and please keep posting. We are all here to help support you.
Also please keep checking the thread as I'm sure as PANTS said that you may have even more replies after the bank holiday.
Xxxxxx
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helenmelon

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #17 on: April 20, 2019, 07:05:21 PM »

Cazjen sending you lots of hugs 🤗
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Emerald2017

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #18 on: April 20, 2019, 10:10:28 PM »

Stay strong Cazjen!!! I think that you can find a safe replacement after your treatment. Tibolone is considered safer and the quality of your life is absolutely your choice! 😘🌷
« Last Edit: April 20, 2019, 10:15:08 PM by Emerald2017 »
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NorthArm

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #19 on: April 21, 2019, 02:24:52 AM »

So sorry to read this cazjen ☹️☹️. Please take care of yourself and focus on getting well. One of the antidepressants, I think it's venlafaxine (?) is recommended for ladies who need to take Tamoxifen, as it's supposed to help with flushing.

Take care xx
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Turkish delight

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #20 on: April 21, 2019, 07:03:12 AM »

This is devastating news Cazjen, we are all here for you, at the tip of your fingers when you need us.

You are not alone!

xoxo

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CLKD

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #21 on: April 21, 2019, 07:29:24 AM »

Sorry that you have had this news.  I had similar diagnosis in the 1990s.  My Oncologist told me 'no HRT for you' but I really don't think that there is enough knowledge about who much HRT actually stimulates breast disease.    I truly believe that if HRT was so dangerous then double mastectomy would be suggested, so that over-all, one can continue with HRT to relieve symptoms. 

I had lumpectomy followed by a bone scan (over all body X-ray), 4 weeks radiation treatment - still here >wave<.  I remember well the feeling os shock but once I got on with treatment I felt like I was doing something positive.  My Surgeon told me that he didn't expect me to have any further pboelms in either breast, lymph glands were clean - but should I re-consider in future, he would of course do mastectomy.  It never crossed my mind once I got going.

....... and breath. Make notes to take to your next appt.  My Surgeon asked ro a list of worries every morning but he was so thorough that I never needed them!

tamoxifen made me feel very ill.  It's an oestrogen suppressant but I wasn't warned that I would have 'flu like symptoms - after 4 months I had to stop taking it.  I hadn't felt ill through the diagnosis and treatment so didn't want to spend the rest of my life feeling ill, when it was a 'this might stop the cancer returning' attitude.  There are other drugs on the market but are they really necessary  :-\.  They come with their own problems.  I don't know how much research is done as to whether they are necessary, if they actually stop oestrogen aggravating a potential disease or .......... as for the Consultant staying 'stop immeidatlye', it may be that's all the Medical Profession ever say without really knowing how much influence HRT has over-all.

Good Luck!  I suggest that you look for nighties that can be done up at the front as pulling anything over your head will be difficult.  Those muscles get tight after surgery and it's quicker and easier to whip open some ties when the Dr comes round to examine or if the Nurse needs to look at any dressings ;-).  I had a running stitch above the nipple with a plastic bead at each end  ::).  I asked 4 gold plated the next time ;-).

 :foryou:   this too will pass.  Take that list.  Find those nighties which tie up down the front ;-) ..... let us know how you get on.

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CLKD

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #22 on: April 21, 2019, 07:30:02 AM »

I would say continue with the 'vagifem' as it's not likely to influence breast disease.  Otherwise I wouldn't have been given it ;-)!
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Robin

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #23 on: April 21, 2019, 09:04:00 AM »

I'm so sorry you're having to go through this cazjen my heart goes out to you. We'll be here whenever you need us so don't hesitate to post.

Sending hugs and love

Robin
X
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Wrensong

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #24 on: April 21, 2019, 09:07:42 AM »

Hi Cazjen

forgot to say that some of the SSRIs that might otherwise be tried to reduce vasomotor symptoms reduce the effectiveness of Tamoxifen, but your GP should be aware of this & can help you decide what, if anything, you want to try as an alternative to HRT.
Wx
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jillydoll

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #25 on: April 21, 2019, 05:37:52 PM »

So sorry Cazjen, keep posting, we're all here for you,
Stay strong, we're all staying strong for you too.
Sending  :bighug: to you.....

Jd xx
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Hurdity

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #26 on: April 22, 2019, 07:29:59 PM »

Have only just seen your post as have been away from the forum but just to say how sorry I am about your breast cancer diagnosis and wishing you all the very best with your treatement and ongoing care and recovery. I have done several posts about the alternatives and printed out sections of the relevant papers (that are not free) which I have downloaded. Will try to look them up when I can but sorry I haven't got time at the moment.

Please take care of yourself and hope your op goes well...

 :bighug:

Hurdity x
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Winterose

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #27 on: April 23, 2019, 10:49:19 AM »

So sorry to hear of your diagnosis , a frightening and confusing time. Try and get Avrum Bloomings book , he pioneered lumpectomy- and was condemned for many years by his peers for his views.Eventually he was proved to be correct.

Both his wife and daughter had breast cancer and he has both of them on Premarin ( he let them make their own decision on this) and explains why , good to have another opinion to throw into the discussion.




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CLKD

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #28 on: April 23, 2019, 11:46:45 AM »

 :thankyou:

How are U Cazjen ?
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Basil

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Re: Breast cancer diagnosis - DEVASTATED
« Reply #29 on: April 23, 2019, 02:30:22 PM »

Hi Cazjen,  Sending you lots of positive vibes at this very trying time.  Good luck with your treatments I'll be thinking of you.  I also have read Avrum Bloomings book regarding the role of oestrogen in breast cancer.  He makes a very compelling case for the benefits of oestrogen even if you have breast cancer.  It would be great if every medical professional read it and the discussion became more open. There is so much negative information about the role of oestogen in breast cancer it would be great to have clear picture.

Good luck
xx
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