Well,I finally had my appointment today - it's only taken a year of battling with GPs to get there, and tehn a journey of 2.5 hours each way as Devon and Cornwall have no NHS provision whatsoever. Had to get a friend to drive me and cope with the anxiety,tears, panic etc. as I'm in such a bad state now i can barely leave the house.
I saw the consultant, Tim Hillard, and he seemed pretty good - he listened and took me seriously. His suggested plan is that I give up on progesterone altogether, given that that was what seems to have kickstarted my whole anxiety problem and may still be fuelling it. He said not to worry about the womb lining issue for the moment, give it 3 months without progesterone and gradually increase the dose of estrogen and see if I improve. If I do then it's hysterectomy time, if I don't then I'm not sure what else is out there.
So I've come away feeling like, OK there's a plan in place, which is more than my GP has ever been able to offer, but in the short term I'm still having to deal with relentless and acute morning anxiety and insomnia, which are making me more and more depressed and sometimes suicidal. And mental health services don't want to know. I'm also a bit dubious about the whole testosterone thing as Mr. Hillard seemed very dismissive of it, and yet I know that for some women on here it's made all the difference. Feeling totally knackered....