I'm so sorry you are having a hard time right now.
I can't believe the doctors didn't listen...but at the same time I can. I feel like we aren't taken seriously too often.
I do think your anxiety is triggering some of it....I think the sensations are there but the anxiety makes them feel stronger than the are because of how aware you are? I can't say honestly as I'm not you.
Years ago I went through a time when I so desperately wanted sex. I can't remember when it was or around what time honestly. A lot of what you say sounds familiar.... it really didn't take much to get me in the mood. (felt like I was almost constantly ready to go) I was younger and hubby was younger so it worked out at the time. I think it was due to some hormonal change at the time but can't say for sure. It went away and its hard to ever have a desire to have sex anymore.
I'm sure that's not quite what the same as what you are dealing with or very comforting. I know it can be frustrating though feeling just constantly there but even after orgasm not having the feeling go away.
I would put it up to hormones and probably some nerves being a bit sensitive (mis-firing) right now. Hormone issues can cause the nerves to go all weird too. and With you have VA and just everything being thinner, the nerves are most likely closer to the surface and easier to irritate.
Are you on oestrogen right now?
I think you'll be okay. I think it'll pass and everything when you get your hormones figured out. Try to breathe and relax and don't beat yourself up for how you are feeling right now.
Sorry if I'm not much help. I'm new to all this.
Hope you do feel better soon though.
Thank you for replying 😊
Actually the two times we did have sex I was fine after. Happier and satisfied. But I think I would need to have it at least once a day .. he's 48 works in a high stress job and his sex drive dwindled along with mine presumably due to testosterone or lack of it for him.
The biggest frustration that is causing me so much anxiety is how unusual it is to have sensations to your bits without mental desire... each time I ask a doctor , gyno or menopause nurse I get a blank stare they shrug their shoulders and this makes me think “ then it must be PGAD as it's very rareâ€
Of course it's quite probable women get it and say nothing. Apparently women won't go to their doctors with symptoms of VA or incontinance or lack of sex drive or indeed anything that involves their vagina out of shame or embarrassment.
I wish I was the type that just didn't obsess about it... just let it be...but I've discovered a horrible rare condition and that is all I think about when i feel anything down below.
There's a lady from this forum who PMs me she had it too along with shivers and tingles to her hair head. She said it took a long time for her to talk about it and whilst she's better now since her oestrogen has been upped. Don't think she had a libido with it though.
she doesn't like to talk about it or go back thinking of it, probably bc like me anxiety was a huge factor. She too was laughed at when she mentioned it to her gyno.
Interestingly she self addmitted herself to a phsyc ward for 3 months due to her anxiety in general when her memo peri menopause kicked in.
The other ladies were far more relaxed about it one knew it was hormones bc she experienced it during her pregnancy and one lady actually likes it makes her feel sexy.
I feel better that with it I also have an annoying increase in appetite for for food and sex.. that tells me there's a hormonal link there.
I've got some Vagifem pessaries which I haven't started to use yet. Hoping they will help.
Perhaps like pain, it's a sign of thinning skin and more raw nerves in general and getting my walls plumped back up will get rid of it.
It's not that bad so far.. no pain or sensations that truly hurt...it's more about the effect it's having on my mental health from worry.
I've read a thread here about a poor lady who couldn't sit or work due to pain to her clitorus she was in such a bad way, true pain... all the time pain.. they decided from her symptoms it was the pudendal nerve (same nerve involved in PGAD) only for her there was no arousal just pain.
I read it with absolute fear. But I can't compare my symptoms to that poor lady, it's a mild but annoying sensation that doesn't come from sexual desire.
I even joined some PGAD groups but had to leave bc I couldn't take reading their stories or symptoms it was fuelling the fire.
I believe it can be a symptom from VA but have yet to hear from a lady who can admit this. Some have obvious visible signs such as no hood to the clitoris so that can cause exposure and irritation for obvious reasons . Mine doesn't appear to hsve any visible cause..
I hate my anxiety it's been the longest darkest 3 weeks of my life and all I need is for it to go away or for someone to tell me they've treat and cured women with similar symptoms
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