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Author Topic: I think I need HRT and would appreciate advice  (Read 8912 times)

Juliet

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I think I need HRT and would appreciate advice
« on: March 01, 2018, 02:38:37 PM »

So pleased to have found this website.

I am 47 and I have had erratic periods for around 3 years (3 month gap and then a couple really close together). My last period was end of November (I think). I have been experiencing hot flushes for nearly a year. I have experienced depression in both my pregnancies (firs trimester) and also some mild depression after the birth of my youngest (now 22). I have also always suffered from PMT, with low mood a few days before my period and the most horrendous period pains that I used to have to take morphine for, until I began to take agnus castus (which literally changed my life).

For the last 18 months to 2 years I have found my mood progressively worsening (I put it down to the stress of finishing a doctorate), but it has not lifted and in the last few months I have really struggled to find joy in anything at all - despite a fantastic new career as a psychologist. More recently I have found myself feeling very anxious and unable to concentrate as if I am waiting for something terrible to happen. I now cry at the drop of a hat and my husband and I have rowed so much we have even discussed separating.

So far I have tried red clover (alongside the agnus castus) and it has helped reduce intensity and frequency of flushes. I also run and doing HITT, as well as regularly attend yoga classes and meditate. But right now, I am struggling to  motivate myself to do anything and each morning it is a major struggle to get out of bed. I am losing my self-confidence and finding it so hard to do my job (which I love). I just want to feel better and enjoy life again.

My question is what HRT should I ask for (I have a GP appointment in 10 days time) and how much will it help with the low mood? I am also petrified of having to deal with the period pains again and previous hormone based treatments just made them worse. For example, I had the Mirena coil fitted before I discovered my miracle (agnus castus) but after 72 hours of excruciating cramps (like never-ending labour) and no support from the clinic who recommended and fitted it, I ended begging the doctor in A&E to remove it. I was sterilised years ago to avoid having to use hormone based contraception, so as you can tell I have little faith or trust in specialists. The thought of having to take progesterone makes me very panicky as I am pretty sure I am intolerant.

All advice would be greatly appreciated because life right now is really, really pants  :'( Thanks   :)
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CLKD

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Re: I think I need HRT and would appreciate advice
« Reply #1 on: March 01, 2018, 03:57:48 PM »

 :welcomemm:  I'm sure someone with HRT knowledge will be along.  Browse round.  Make notes.  Some ladies find keeping a mood/food/symptom diary useful.
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Daisydot

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Re: I think I need HRT and would appreciate advice
« Reply #2 on: March 01, 2018, 04:06:45 PM »

Hi Juliet you've made your first positive move by coming on here,just be patient and the lovely ladies with great knowledge and experience will come along and help you,it will get better xx
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Juliet

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Re: I think I need HRT and would appreciate advice
« Reply #3 on: March 01, 2018, 06:30:44 PM »

Thanks for the welcome  :)
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Dancinggirl

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Re: I think I need HRT and would appreciate advice
« Reply #4 on: March 01, 2018, 07:08:10 PM »

Hi Juliet and welcome  to MM

Read up all the factual stuff on this site to get clued up and look at the TREATMENTS options  - then get back to us with questions. 

Progesterone can be an issue for many women but Utrogestan may be worth trying  - but use it vaginally instead of orally ( though this is off license here in the UK, it is used this way in most other countries)

 DG x
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Hurdity

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Re: I think I need HRT and would appreciate advice
« Reply #5 on: March 01, 2018, 07:55:46 PM »

Hi Juliet

 :welcomemm: from me too.

Your low mood, pms and PND could have been down to decrease in or low oestrogen, and not necessarily progesterone intolerance, so hopefully if you take HRT this (oestrogen) will help your mood enormously. Mood swings are so common during peri-menopause - I cried buckets, and like you at the drop of a hat I would well up even if by myself and driving along thinking about something or a difficult situation! I had no idea I was leading up to peri-menopause and these symptoms were due to it! Here is an article about perimenopause https://www.menopausematters.co.uk/magazine/articles-mainly.php#perils whoich you might find helpful.

In your situation something like one of the the new birth control pills QLAIRA  or ZOELY might help as they have 2 or 4 tablet free days so you don't get the extreme oestrogen dip. They do contain synthetic progestogens although the one in QLAIRA is one of the more modren ones ( with maybe fewer side effects?).

Other than that a very high dose of oestrogen can suppress your cycle and can be used to treat reproductive depression (see John Studd's website and articles http://www.studd.co.uk/reproductivedepression.php - just one example but look at all the tabs left and right). For this you would either have gel or a patch as the oestrogen - both transdermal). Estradot are the best type of patch as they are very small) and you would take progesterone (Utrogestan) for 10-12 days per month. You would get a bleed though but hopefully if your cycle was suppressed it wouldn't be as bad as your normal periods. I presume your womb lining has been checked for things like fibroids, endometriosis etc which could have caused the heavy bleeding and cramps? Is it possilbe to get areferral to a menopause specialist if your doc is unable to help? Hopefully though s/he will be knowledgeable and sympathetic :)

Do you know why the Mirena gave you such cramps? This would normally be one treatment suggested for heavy bleeding in peri-menopausal women, and then you could add in as much oestrogen as you liked, until you felt well.

Hope this helps :)

Hurdity x
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Jo24

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Re: I think I need HRT and would appreciate advice
« Reply #6 on: March 01, 2018, 11:07:00 PM »

I started HRT after 18months of misery, and failing to find any herbal remedy that really helped.
In hindsight, I wish I had started it sooner ...
Along with unbearable hot flushes and night sweats, insomnia, I developed awful anxiety, low mood, and simply lost confidence in myself.
I strongly suggest you give HRT a try.
I was referred to a Menopause clinic in Sheffield, and found the consultant to be excellent, but it was an 8 week wait. GP's have a 'general knowledge' of course, but there is nothing like seeing an expert in the field for the most up to date options ....

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Juliet

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Re: I think I need HRT and would appreciate advice
« Reply #7 on: March 02, 2018, 12:37:40 PM »

Thank you for such a thorough response Hurdity. I hope you are right that HRT may help. I so recognise your description of welling up when driving - this has been happening pretty much every time I am in the car in recent months. More often than not I think about my sister (who died 10 years ago) and the feeling of grief feels raw like it did in the early months, which is very distressing. You are right in that I am jumping the gun in terms of assuming I am progesterone intolerant, I guess I assume this because of PMS. Thank you for the suggestions about possible treatments as well as links to info.

Yes I did go through a lot of investigations including scans for fibroids and cysts when I was trying to find a way to manage cyclical pain - nothing unusual was found. I never have had heavy bleeding just unbearable cramps (these were completely unrelated to blood flow and sometimes were more severe towards the end of my period). I think my reaction to the Mirena is not uncommon, but I felt totally unsupported and once i had it removed the clinic were not  interested in me and told me off for wasting money and not giving it a proper go (I cannot convey just how desperate I was after 3 days of pain so savage that morphine tablets had no effect). This made me lose complete faith in them being able to help me, hence why i have managed period related stuff through researching and using herbal preparations.

I will keep an open mind when I meet with the GP and bear in mind your suggestions - I have asked to see a doctor who specialises in menopause, not sure how i check if this doctor is up to date in the latest research however. I am also considering seeing a specialist through a private clinic if the GP is not helpful. Recommendations of Specialists in the East Midlands would be gratefully received ( Luton area or Bedfordshire, Buckinghamshire, Cambridgeshire).

Thank you for all the support so far. Today I am feeling particularly anxious and low and it is just so wearing and so not like me. I hate the fact that I am constantly trying to snap out of it and be normal!
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SS1995

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Re: I think I need HRT and would appreciate advice
« Reply #8 on: March 03, 2018, 02:14:37 PM »

Hi Juliet, welcome to the page. I am currently 22 and on Premarin 1.25mg. At first I refused to take them because I was having a hard time coming to terms with the fact that I was menopausal so young, now after taking them properly I'm starting to see the benefits. I still have really rough days where I feel like crap and wonder why my partner is still with me but I'm better than before. My memory got so bad and I couldn't remember what I had done on a day to day basis, the HRT has really helped me, I feel on top of my game again. Before I was prescribed Premarin I was on patches which I didn't like as they left a big sticky mark on the leg and I was also precribed another estrogen which gave me migraines. Every one is different I suppose.
I know it's easier said than done but I always find when I force myself to act all normal and get on with normal things I end up beating myself up, we all try too hard to be okay all the time. You sound like you have a lot on your plate at the minute with your studies etc, how you have the time to excercise and meditate I do not know but well done!!
Just remember you have this forum for support, I even find it helpful just to read other people's comments just so I can feel as though I relate, I know that it is always there if I need it.
LC x
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Hurdity

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Re: I think I need HRT and would appreciate advice
« Reply #9 on: March 03, 2018, 06:28:27 PM »

Hi SS1995 - sorry to hear about being menopausal so young - I presume you are also taking a progestogen or have a Mirena coil fitted, to protect the womb lining?

Juliet - there are specialists listed on the main MM website (very top tabs pale blue writing) - you just click on your area and they are listed - some are available on NHS :). Some of the info is out of date though. Otherwise you could google and then post a new query asking members to pm you if they know about a particular specialist? You shouldn't need to get the necessary treatment from a private clinic though, but best research all the possibilities first. Some GP parctices have a website with the qualifications of the docs listed so you can see if they have the gynae one - DRCOG - which would be a start and an indication of their interest!

Let us know how you get on.

Hurdity x
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Juliet

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Re: I think I need HRT and would appreciate advice
« Reply #10 on: March 03, 2018, 07:19:51 PM »

Thank you to everyone who has responded on this thread with advice and support. It really does help to know other women understand. I will let you know how the visit to the GP goes. Feeling hopeful that things will improve  :)
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SS1995

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Re: I think I need HRT and would appreciate advice
« Reply #11 on: March 03, 2018, 11:35:26 PM »

Hurdity - it's horrible but it's just one of those things and Im still adjusting to getting on with it. At first I was prescribed progesterone but found that I didn't need it as my period comes itself with just the estrogen. Having a coil fitted freaks me out, I don't think I could do it.
Juliet - I look forward to hearing about your GP appointment and hope all goes well.
X
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Juliet

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Re: I think I need HRT and would appreciate advice
« Reply #12 on: March 13, 2018, 08:18:28 AM »

Off to the Docs this morning and feel more prepared thanks to this forum. I have listed my symptoms and written out some questions to ask about HRT such as combined or separate, delivery method pros and cons, my worries about triggering the horrendous period pains, how will I be monitored, what side effects might I experience, how long before I would expect to see a difference...

I will come back later and let you know how it goes :)
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Hurdity

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Re: I think I need HRT and would appreciate advice
« Reply #13 on: March 13, 2018, 07:26:42 PM »

Yes do let us know how you got on Juliet - I hope you had a positive appointment with beneficial results! :)

Hurdity x
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Juliet

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Re: I think I need HRT and would appreciate advice
« Reply #14 on: March 29, 2018, 01:48:55 PM »

It has been awhile, but I have been making a video everyday of how I have been feeling since starting HRT. I will post a link to videos when I have completed the week 2 one.

So, asked to see a GP with experience in menopause, but felt very much like she only knew the basics and was in a hurry to get me out of the door. She was happy to prescribe HRT, but she did not want to discuss routes or types and told me that there are very few choices available and most women take tablets. I felt it was best if I went with her suggestion initially as she had already asked me if I was medically trained in that tone of voice that Docs use when they feel threatened (I am an ex-nurse and also had done lots of research thanks to this site) and to be fair I don't know whether I will be sensitive to the synthetic progesterone. Consequently, I have just taken my last oestrogen only tablet and taken one oestrogen/progesterone one. Feeling really spaced out (5 hours later) but not sure if this is a psychological effect. Worried about the next 12 days and the 'period' but hoping the period pains will not be too bad.

In terms of my mood, feeling so much better since around day 12 and anxiety is much lower, and that constant inner voice saying what's the point of anything has quietened. Have experienced some mild flushes, which had stopped after I took red clover. Not sure if this means ultimately I will need the 2mg dose, but I need to give this three months. 

Can't help thinking that long term I would prefer not to have to bother with periods or progesterone - so may ask for referral to discuss mirena or even hysterectomy, but for now things are so much better and I am getting my life back :)
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