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Author Topic: Seeing Specialist Tomorrow.  (Read 2521 times)

Kathleen

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Seeing Specialist Tomorrow.
« on: February 11, 2018, 09:28:08 AM »

Hello Ladies.

I have an appointment tomorrow with a private menopause consultant as although my GP is very helpful and sympathetic I am desperate to get my life back, as so many of us are. I will of course update the forum.

This is going to be expensive but it seems that my symptoms have changed again but not resolved. For anyone interested I am seven years post meno but resisted HRT for the first three and just battled on. When the anxiety and internal shaking became too much I went to my GP for help. Since 2013 I have tried Climmese tablets, various Evorel patches and Oestrogel and Utrogestan, for the last twelve months I have been taking Tibolone. As I have reported many times on this forum my flushes have never really left me but I remained hopeful that they would subide as I continued to move through the meno and each HRT would then become more effective. In some respects this has happened and looking back I can see that my symptoms are less severe than they were but I am still struggling every day and I'm becoming despondent.

Thanks for reading ladies and I will let you know how I get on.

Take care all.

K.
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Dotty

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Re: Seeing Specialist Tomorrow.
« Reply #1 on: February 11, 2018, 09:35:48 AM »

Good luck and look forward to hearing how you get on xx
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Annie0710

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Re: Seeing Specialist Tomorrow.
« Reply #2 on: February 11, 2018, 09:51:47 AM »

Good luck Kathleen x
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #3 on: February 11, 2018, 09:53:36 AM »

Hello Dotty and Annie.

Thank you for your responses. My appointment is in the morning so I will post during the afternoon.

Take care.

K.
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Daisydot

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Re: Seeing Specialist Tomorrow.
« Reply #4 on: February 11, 2018, 10:11:15 AM »

Fingers crossed for you Kathleen xx
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #5 on: February 11, 2018, 10:39:10 AM »

Hello Daisydot.

Thank you for your good wishes.

Take care.

K.
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Mindfulmoomins

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Re: Seeing Specialist Tomorrow.
« Reply #6 on: February 11, 2018, 10:43:58 AM »

Best of luck and do let us know how you get on. It sounds like you have taken a big step in terms of trying to get the care and expertise that you need and deserve xx
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warwick01

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Re: Seeing Specialist Tomorrow.
« Reply #7 on: February 11, 2018, 12:15:11 PM »

Hi Kathleen

Hope all goes well. I too have the same struggles and coming up to 8 years. Was good for 2 years on 4 pumps of Oestrogel (4 years ago) then just stopped working) Angeliq was good for a while then migraines stared last month.

Just using Evoril 50 until I decide my next step....... so fed up :(

Wx
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #8 on: February 11, 2018, 12:16:55 PM »

Hello Mindfulmoomins.

Thank you for your post. It's hard to fight your corner when feeling vulnerable but I'll give it a go!

Take care.

K.
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #9 on: February 11, 2018, 12:25:55 PM »

Hello  warwick01.

Yes I think our journey has been similar. Why is it proving so hard for us I wonder? Even in my current situation there are times when I feel much more normal but they are always followed by episodes of low mood and the jitters. Why? What suddenly changes in the course of a day? When I'm feeling better I pray it will last and when I'm feeling terrible I worry that I'll never recover.  This menopause has consumed me and I hope there is an answer for us all.

Sorry to ramble but I know you'll understand where I'm coming from.

Take care.

K.
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Daisydot

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Re: Seeing Specialist Tomorrow.
« Reply #10 on: February 11, 2018, 03:17:40 PM »

That's what I used to say Kathleen how come I'm perfectly fine for periods then the bottom just drops out my world for no obvious reason and I'm back in the black hole,I've not felt like that since I started back on hrt after a five year absence and the improvement was within a matter of weeks it wasn't long at all but on the patches I'd be “normal” for 2days then flat,not distressed or anxious like before just flat and on oestrodose I was also “flat”.I don't feel flat now on the Oestrogel thankfully and I have no flushes or sweats no anxiety sleeping better have my off days like everyone but it's early days yet so patience is a virtue lol.still having my battles but can cope better and deal better with these nutty gps I keep getting.I use every trick in the book that I learn along the way from the ladies on here too and I pass on any good info I pick up so others can benefit,there is a light there it's just waiting for us to find it,keep plodding away you'll get there,good luck xx
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #11 on: February 11, 2018, 03:47:41 PM »

Hello Daisydot.

Thank you so much for your encouraging post.  The fact that I still have flushes on HRT does indicate that I've yet to find the right regime and I hope I can get some effective help tomorrow.  I'll update you all as soon as possible, as they used to say on The X Factor ( the 1980s  programme about Aliens, not the talent show ) 'The Truth is Out There'.

Thanks again and take care.

K.
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Lanzalover

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Re: Seeing Specialist Tomorrow.
« Reply #12 on: February 11, 2018, 04:00:55 PM »

Good luck for tomorrow Kathleen

Lanzalover x
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Kathleen

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Re: Seeing Specialist Tomorrow.
« Reply #13 on: February 11, 2018, 04:55:10 PM »

Hello Lanzalover.

Thank you for your post and I'll certainly report back asap.

Take care.

K.
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Hurdity

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Re: Seeing Specialist Tomorrow.
« Reply #14 on: February 11, 2018, 11:06:00 PM »

Hi Kathleen - I have just caught sight of your post (bit busy at the mo'!)and wanted to reply to wish you well. I've followed your story over the past few years (?) and know you have tried different combinations of HRT without complete success. I also know you started HRT fairly late on in post-meno after putting up with symptoms for some time and I can't remember whether you have ever tried to go back to a cycle? I'm sure I will have suggested this in the past. Only then will you know whether any of your symptoms eg the shakes, and continued flushes are partly due to taking progestogens continuously. There is always a downside and HRT doesn't come without some drawbacks for those of us who still have a uterus - either have progestogens continuously or put up with a bleed.

You may be familiar with what I chose to do - starting HRT a bit earlier than you (almost 54) - but because I wasn't post-menopausal was fortunate to be prescribed a cyclical HRT so was able to reap the benefits of oestrogen only from the start and experience a complete elimination of flushes (with only intermittent protgesterone) - this was on 50 mcg Estradot - and if you're going to use patches then these are the ones! I decided to maintain a cycle and now in mid 60's still have a bleed - but because my dose of oestrogen is not high, and there are no problems with my womb so far ( apart from small fibroid) I am able to have a long cycle (for the past 6-7 years).

Of course you need to make sure you have no other health problems but all being well you should be able to find a regime that eliminates the flushes and doesn't cause the shakes etc.

In your position I would firstly want to have a scan to check on my womb lining after being on Tibolone, and if it was thin enough - to start a cylical HRT - ideally oestrogen only for say 6 weeks and see how you felt - and from then on taking a progestogen cyclically (eg vag Utro) - but that means having a withdrawal bleed. If you went down this route you might have to start with a conventional length cycle to see how your womb lining behaved - and gradually extending it if possible.

I am sure others have suggested a Mirena coil before and can;t remember if you have considered this route? There is some systemic absorption but at least you could then go higher with your oestrogen knowing the womb was protected.

Just a few thoughts and I'm sure I've said them before - but hopefully it is helpful now too?

AS always you should be able to get the right treatment from your GP but it is a question of trial and error and finding what works for you - but sometimes also making a compromise - what you are prepared to put up with (ie bleed vs potential prog side effects) to feel as well as you can.

Ramble ramble - sorry - it's late - but wanted to post to you - all the best :)

Hurdity x
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