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[knorman]

Imgeha, I have just had normal B12 and folate blood tests, both came back within the normal range, but do I understand that this may not be enough investigation into B12?

[Dotty]

What was your B12 result? It may be normal and within range but not optimal. Some countries aim for much higher rates than we do in UK.

[knorman]

Hi Dotty. It was near the top in the range.  It was a long shot.  Just keep hoping that one day I will wake up with a 'normal' mouth as I'm sure Lucyjo is too!

[Daisydot]

Morning ladies what about trying the b12 spray ,you just spray into your mouth/check and it bypasses the liver this way so you actually get better absorption rates,you can buy it on amazon at a really good price I use it I also use vitamin d3 / k2 oral spray.good luck xx

[imgeha]

Knorman - having a result near the top of the range doesn't mean very much unfortunately. It can mean that most of the B12 in your serum is inactive. It is possible to be within range or even over it, like me, and have a B12 deficiency.  There are other B12 tests which are more accurate (active B12, MMA), but the doctors often see a false "normal" result and go no further. Ultimately, B12 deficiency leads to dementia - we all need to remember this. B12 deficiency is no light matter. If you have symptoms of B12 deficiency despite a normal serum result, you need to push for other tests. GPs really don't know what they're doing on this issue, and there are many many people dangerously undertreated.

[knorman]

Thank you for the information imgeha. I don't think my Dr will go for these tests, but I will keep them in mind

[Lucyjo]

Hi Knorman, I'm thinking of trying the b12 spray, as recommended by Daisydot - I'll order some today & let u know!
Thank you to everyone for your suggestions xx

[knorman]

Thanks Lucyjo, look forward to hearing from you x
 

[Lucyjo]

B12 spray should arrive tomorrow. Not taking any citalopram or nortriptylene for two days now & should start the duloxetine Saturday, so we'll see what happens then!!

[Lucyjo]

Dear Ladies - I need some advice!!! I stopped the citalopram & nortriptylene as directed by GP. Have had 3 horrendous days - dizzy, headache from hell, feeling sick, light headed. Took one duloxetine but felt too ill to take another - don't think it was that but read reviews & got scared & just didn't want to risk any other pills, thought I had done 4 days should I sit it out?? My tongue is pretty much the same - on or off them. Please help - would you push for hrt again? Got an appt with different GP at 3pm today xx

[Dotty]

Hi Lucyjo. If I don't know your history but if you are suffering with menopausal symptoms then hrt is the answer not anti depressants.

[knorman]

Morning Lucyjo any improvement with the B12 spray?  I have used the Biotene again, in a smaller dose and it hasn't been stinging, so may be worth trying again?  I saw the Maxillofacial surgeon last week, I'm going for further tests so he can rule certain things out, but he thinks when I started HRT it has kick started something off and will eventually go, he just doesn't know when. I have never known this happen to anyone else and so would definitely recommend HRT if you are able to take it, it was wonderful for the 3.5 weeks I was able to take it.  he did suggest I start taking zinc as it has helped other women that he has seen.

[Lucyjo]

Hi Knorman, I've had a horrendous couple of weeks. Saw the different GP on the monday who said take no pills at all & ring him on the thursday. By the Tuesday I thought I was dying! Rang & spoke to duty doc who said take a duloxetine straight away 7pm ish & another next morning. I have taken 1 each morning since & am slowly feeling like normal - burning mouth still there but not suicidal - he said it was seratonin withdrawal. Haven't really bothered with the spray just busy trying to get life back to normal - wish I had stayed on the citalopram & nortriptylene. Got a family party coming up this month & dreading it - everything is too much effort. Sorry to moan on XX

[AnnieR66]

Hi, I have had all the mouth issues including burning tongue and can honestly say there is a vast improvement since going on to the hrt patches. I started with fem 7 sequi but they are useless at sticking ,so changed to evorel with separate prog.I know what you mean about everything being too much effort! Please give it  a go it really helped me although I don't feel normal,don't think I ever will again! x

[knorman]

I am pleased to hear that you are slowly getting back on an even keel Lucyjo, I know it is hard.  We will feel normal again one day, its just going to take us a bit of time.  I had started to isolate myself even more as it is uncomfortable to speak with the dry mouth, but the surgeon I saw did wonders for sorting out my head.  I have a way to go and not sure I will feel completely mentally better until my mouth is better, but he reminded me that I have one life and to go and live it, tricky with CFS/ME as well as menopause, but he is right.  I too was dreading a family day on Easter Sunday and even though I wasn't feeling very well, I went. Please go to your party, even if it is a huge effort, you will be chuffed with yourself the next day. Don't give up. x