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Author Topic: Is this normal  (Read 3985 times)

Ira

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Is this normal
« on: June 23, 2017, 07:39:20 PM »


Is this normal

I am in my eight year of menopause symptoms. I started going through the peri menopause. I wasn't on the pill, and I didn't go on HRT. Reflecting back. The first two years, it was like I went into a tunnel of just feeling awful, or anxious. I had the usual individual symptoms of  hot flushes, night fevers, migraines. I realised it was awful when I started having around one or two days every four, six weeks where I felt my normal self. Felling ok, a couple of days reminded me how I used to feel and how awful I now felt most days.

A friend who had been through the menopause helped me by saying, you have two bad years then you are done. Hearing at the time this greatly help me hang on, but after two years, although it did ease off a bit, it was still awful.

The third year, I just thought i was unlucky that my menopause was taking longer. The fourth year, and fifth year, at this point I again just thought my menopause was just going to be longer, and at this point my feeling awful was not every day it was more episodes lasting a few days and were now at fairly regular times following the menusual cycle.  I was keeping a diary, and now when I started feeling some weird symptom or started getting a headache, I would check the dates and it would be two weeks since the last awful time.

With every awful time of feeling awful I would attempt to cheer myself up that I must be nearer the end, that there was this unknown to me, end date, and was just stuck suffering until i made it to that end date.

This year, I think my symptoms have eased. I will every two week's get a headache, but it not as bad the migraines the first years, I will feel hormonaly yukky, but again not as awful as the first years. I will have a bad evening, bad overnight headache, feeling yukky, cannot sleep properly, but then after this awful time, the next day is like party time because i know i will feel ok for around a week and a half. I will get milder yukky feelings in the days running up to these two weekly episodes, but well this year I counted the years thus has been going on, and i realised it ha been roughly eight years.

I discovered this website about three years ago, and in the middle of the night feeling awful it has greatly helped me hang in there.  Being able to read all the Menopause Matters members talk to each other.

I hadn't felt like joining in, but I had hoped that once i was through my menopause, i would like to share what i had learned, what i could have done originally to make easier for myself, but now after eight years I have completely loss my tolerance for these episodes of feeling awful. Three days ago I had a mild headache, but yukky evening, overnight and next day, but not impossible, next day fine, but as it was a mild one, i knew it wasn't the main two weekly one, and i was right. Last night a bigger headache, yukky feeling, and today i have been hoping it would be finished by this evening, and it has become a bit worse.

I just don't know if i can cope anymore without the hope of knowing it will end. I've  read it can last twelve years and i couldn't do another four years of this. 

I'm a bit scared of going on HRT late as maybe that could even mess up my hormones more. I've bought bio progesterone cream, which i haven't yet used. I just dont know whxat to do. I have a new GP surgery, last one closed down, and i requested a blood test, but lady doctor said they only prescribe on symptoms not blood tests, but i thought it coould be a good idea to test specifically for estrogen and progesterone levels.  She would likely just prescribe HRT, she says she doesn't prescribe bio identical, but really i dont really know what i need or want.

I dont know if i need both estrogen and progesterone, or just one of them. My problem I feel is that I have completeky loss my tolerance for feeling awful, and dont know that i coukd cope with testing out things. Presently I'm thinking lentils for the estrogen and a bit of the bio cream for the progesterone.   ::)   but this might not be that effective.

Thank you for thus forum, and for reading this, if anyone could suggest anything i would be grateful.

Apologies, just did a preview and this is long, but I am feeling awful now and cannot cope with editing, but have been meaning to ask on this forum.

 
« Last Edit: June 23, 2017, 07:53:00 PM by Ira »
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MicheleMaBelle

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Re: Is this normal
« Reply #1 on: June 23, 2017, 08:17:54 PM »

Hello Ira and big hug.  :welcomemm:
We are all so different and no one can say how long it will last and what symptoms we'll have. Sounds as if you've been struggling for quite a while now and need some help.
I'm not sure given the severity of your symptoms that eating legumes would help and there is a school of thought that topical progesterone cream has limited use.
So where does that leave you? Alternative therapies and HRT. You need to browse this site and decide what you'd like to do. You could try HRT - it doesn't agree with everyone and it can take time and tweaking but might be worth a shot? As for bio identical, I think your GPmight have the wrong end of the stick here. Bio identical oestrogen and progesterone preparations are available through the NHS ( see HRT preps on this site) if you still have a womb you'll need to take both oestrogen and progesterone and on a continuous basis if you are post menopausal. Progesterone can cause side effects so if this is the case, some women prefer to take it sequentially ( for half the month) but this usually means that you will have a bleed.

If you decide to go down the alternative therapy route, there can also be side effects and some preparations can only be used for a limited period of time.

Regardless of what you decide to do, lifestyle changes, healthy eating, exercise etc can also help alleviate some of the symptoms.

You don't say what age you are- below 55, HRT can be hugely beneficial but it's not gorgeous everyone.
But quality of life is important so you need to factor this in when making your decision. I wish you well and let us know how uoy get on x
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CLKD

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Re: Is this normal
« Reply #2 on: June 23, 2017, 09:26:09 PM »

Browse round.  Your friend was lucky!  I've been lucky!

Read through the 'alternative' room.  Make a list of what you would like eased first, maybe keep a food/symptom/mood diary for 3-4 months.

If HRT is going to work for you then give it a try.  Age is a number though finding a GP who is keen to prescribe can be difficult, maybe try the Practice Nurse initially. 

You need to know your last period or if you bleed at all, your age can be important as to what your GP might prescribe .......
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MicheleMaBelle

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Re: Is this normal
« Reply #3 on: June 23, 2017, 09:52:09 PM »

I hate my I pad and crappy predictive text
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CLKD

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Re: Is this normal
« Reply #4 on: June 23, 2017, 09:57:54 PM »

I hate predictive text ........ 'cos by the time I go back I've forgotten what my point might have been  ::)
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Ira

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Re: Is this normal
« Reply #5 on: June 24, 2017, 11:15:09 AM »

Hello Ira and big hug.  :welcomemm:
We are all so different and no one can say how long it will last and what symptoms we'll have. Sounds as if you've been struggling for quite a while now and need some help.

Thank you Michelemabelle for the hug.  :)

And reading the words ' struggling for a while now and need some help'  made me feel a bit emotional as I realise I posted on here last night because I've realised that i cannot keep trying to just struggle on, hoping I can manage until it stops. I realise I need to maybe try taking something.

I should have said that I am 57 and started going into my peri menopause around eight years ago. I haven't had any bleeding for around the same time.

My old GP surgery closed down and at my new surgery where I had not yet gone to, they had called me wanting me to do a basic blood test and last week struggling with this menopause thought I should I ask if i could also at the same time have my estrogen, progesterone levels tested. I thought this was a different, more specific test than the FSH test that some women have early on. I never had a FSH test as my understanding was that in the early days this test  isnt realiable as you can be in peri menopause but have a negative result. I have read testing for estrogen, progresterone levels later on might be a different test.

The lady doctor who I was told specialises in hormones, said she only treats and prescribes on symptoms so didn't offer to put the hormones on the blood test. When i mentioned bio hormones, she said she didnt know if they were avaliable on the NHS, that to be up front she said she personally would not prescribe them if they were . She said i could always ask another doctor at the practise. 

My main problem is that after eight continuous years of symptoms, I am at a low ebb. I have started to really struggle. I've just had two days again of feeling very yukky and with a headache and a lead up feeling a bit off for few days, and now I will have a break from any symptoms for about a week and a bit and then I will start dreading that the next episode is due again and so when  I am inbetween episodes, I have am reluctant to even try out the bio progeaterone cream and trigger symtoms. I have become a wimp.

I know i will have to try something, I am just trying to read, understand what might work. You hear of so many different things. I think, maybe i should try that cream Carol Vorderman had. I kinda think there should maybe be a comprehensive basic female hormone science course at the local colleges or online, to figure out the options.  I mean I have had a problem being underweight due to either being gluten intolerance of a coeliac and i am lean, and have had a very tough past few years with bereavements and other things, and have just recently read that after menopause estrogen is now produced  by the adreanal glands and if you are not physically at your best, you may have adreanal fatique and not producing enough replacement estrogen.

I know this, that if i won the lottery, I would imediately look to set a helpline for all the women suffering from this, and pay for more research into helping those suffering. It may be a natural part of life, but if you have a bad one, it is no diffferent to being very unwell.

Can i ask, if anyone knows about the usefulness of a estrogen, progrsterone test, and uf it is differnt to a FSH test.


« Last Edit: June 24, 2017, 11:25:02 AM by Ira »
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MicheleMaBelle

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Re: Is this normal
« Reply #6 on: June 24, 2017, 11:34:27 AM »

Hello Ira- I've never been tested and GP and consultant go on symptoms- maybe someone else will be along soon to give you advice on this.
I think that maybe your doctor is getting confused by the term bio- identical and getting it mixed up with the tailor made preps made by compounding pharmacies which are unregulated in the U.K.

There is a blog on here somewhere by Dr Currie on bio identical hormones. Maybe you could print it off and take to your doctors.
Most of the oestrogen preps available through the NHS are bio identical as is micronised progesterone ( utrogestan)
You feel ill, you need help. Please go back and insist on trying HRT.x
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Annie0710

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Re: Is this normal
« Reply #7 on: June 24, 2017, 12:10:55 PM »

Hi Ira

I've had my hormone levels tested quite a few times but my situation isn't typical.  No womb so no periods to go by, ovaries failed years ago so long term user of hrt plus never had a hot flush

I think in typical cases symptoms are the best to go by.

Also rather than ask for 'bio identical hrt' it might be better going in and asking for specific hrt i.e. Brand names (utrogestan is the bio identical progesterone for example) and find one you like the sound of for oestrogen
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Lizab

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Re: Is this normal
« Reply #8 on: June 24, 2017, 03:19:56 PM »

The others have given good advice regarding obtaining bioidentical HRT. I would add that if you are nervous about starting HRT, try your cream first. It's the same progesterone as in the Utrogestan you would be prescribed. With the cream you have the option of using a smaller dab to see how it feels, then you could use the full dose if it feels comfortable to you. If a few weeks of cream helps, great! If it neither helps nor hurts, then perhaps seek prescribed HRT to boost your estrogen. And of course, if the cream is intolerable, you'll know that the bioidentical progesterone is not for you, but that isn't to say that you cannot have HRT. Lots of ladies get on better with synthetic progesterone and you'll already be armed with this knowledge if you do seek a prescription.
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Ira

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Re: Is this normal
« Reply #9 on: July 05, 2017, 04:24:35 PM »

Browse round.  Your friend was lucky!  I've been lucky!

Read through the 'alternative' room.  Make a list of what you would like eased first, maybe keep a food/symptom/mood diary for 3-4 months.

If HRT is going to work for you then give it a try.  Age is a number though finding a GP who is keen to prescribe can be difficult, maybe try the Practice Nurse initially. 

You need to know your last period or if you bleed at all, your age can be important as to what your GP might prescribe .......


Thank you for your suggestions CLKD ☺   Late reply, but I wanted to say I have also read many of your replies over these last couple of years, usually in the middle of the night while I have been unable to sleep.  It has greatly helped just hearing others experience of menopause, and words of support to others.

Every person I know well enough to ask, even my female neigbours have told me they had no proplem with the menopause. I have only met one ramdom stranger that when I mentioned the bad menopause I was having, told me she also was struggling with her symptons.


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Ira

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Re: Is this normal
« Reply #10 on: July 05, 2017, 04:41:02 PM »



The others have given good advice regarding obtaining bioidentical HRT. I would add that if you are nervous about starting HRT, try your cream first. It's the same progesterone as in the Utrogestan you would be prescribed. With the cream you have the option of using a smaller dab to see how it feels, then you could use the full dose if it feels comfortable to you. If a few weeks of cream helps, great! If it neither helps nor hurts, then perhaps seek prescribed HRT to boost your estrogen. And of course, if the cream is intolerable, you'll know that the bioidentical progesterone is not for you, but that isn't to say that you cannot have HRT. Lots of ladies get on better with synthetic progesterone and you'll already be armed with this knowledge if you do seek a prescription.


Thank you  Lizab, your suggestions make sense, as I know I am anxious that anything new could make my symptoms worse, or increase them, and I have become a wimp, I have done eigth years and find my tolerance for feeling awful has gone this year and I just want it to get easier. I have a doctors appointment tommorrow afternoon. It is a doctor I have not seen before, at my new GP surgery.  I am going to attempt to collect my thoughts to know what I am asking for.

I know they want me to do a basic blood test, and I would like to know if it could be useful to test for my estrogen, progesterone levels. I just dont know if  this is a difference test from the FSH test that I heard of some women having.

I did have my Vit D tested by post with an NHS service recently and I was extremely low, just 23, and I've been told that might have made it worse for me, so hoping to test on a doctors blood test and maybe get a prescription for Vit D3 




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nearly50

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Re: Is this normal
« Reply #11 on: July 05, 2017, 05:42:39 PM »

You could pick up vitamin d3 yourself, not sure where you live but that might end up being cheaper anyway. Yours is pretty low so might well be the cause of some of your symptoms. Mine was 40 and I think causing me muscle pain (hard to tell what causes what in this mad journey though). Worth getting ferritin and thyroid tested tomorrow too.

You say you haven't had a period in 8 years so your hormone levels will be post menopausal, not sure a blood test would give your doctor any more information, but someone else will put me right if that isn't the case.
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nearly50

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Re: Is this normal
« Reply #12 on: July 05, 2017, 05:55:45 PM »

Mine went up to 68 after taking supplements for 18 months - anything up to 200 is within range so as sparkle says, it can't hurt.
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Mary G

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Re: Is this normal
« Reply #13 on: July 05, 2017, 08:17:10 PM »

Ira, sorry to hear you have been struggling, it sounds like it has being going on for a long time.

You mentioned the Carol Vorderman article which a member posted on here and if I remember rightly, it was slightly misleading because (apparently) she went to Professor John Studd who does not prescribe progesterone cream.  She was more than likely prescribed bio identical Oestrogel (oestrogen gel) and Utrogestan which is micronised progesterone and this is also available on the NHS so I am surprised your doctor does not know about it.  I (and lots of others on here) use this regime and I find it works very well. 

If you don't get any joy from your new GP please don't suffer, why not consult a menopause specialist?  It sounds like you would really benefit from a face to face consultation with a dedicated hormone specialist. 
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