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[CLKD]

Regarding thyroid function tests many UK GPs won't do further investigations when a patient returns 'within normal limits' results  .  I call that neglect!  Is there a UK Group that could give advice on this?

....... the less sleep I got the more I kept thinking that I would *never* get to sleep again    ......... which is self 'funding' (not the word I want) in itself. 

My RLS didn't get worse/better during my menstrual cycle .......... fortunately.  It was un-related to exercise.  I'm aware of the legs 'pulling' all the while and when I sleep in the afternoon it is never present but it would start the moment I went to bed  .  I tried sleeping with the legs 'up' the wall or elevated with thick blankets under the mattress which did help: until the legs flopped onto my husband ........

[Peroxideblader]

Clkd..mines not related to anything and diet supplements or extras don't help at all ....not bad for me during the day or maybe I notice it less as I'm not laid still...( sadly can't sleep during the day either ) ...and I agree about the thyroid being normal according to the doctors but with a specialist it's far from normal..my cousins who have spent ten years getting their diagnosis ended up privately being diagnosed and keep pushing for me to go private. It's not an issue but they were way before menopause so were taken much more seriously as they only had thyroid issues to deal with..I'm having repeat blood tests again this Thursday for my thyroid but I've no doubt they'll be Normal no further action required Bla bla bla. I'm not sure what field would look at my thyroid results and discuss my menopause as an endocrinologist deals with thyroid only. I really want one person to look at my long lost of symptoms and looks at the bigger picture...I've just burying my head in the sand right now as I can't deal with these endless bad health issues but yet can find no cure or reason or cause for them and sadly my partner has had enough I'm sure..he is sick of this new me the tired worn out depressed one that has had the life sucked out of her...he sees me smiling coping running the house working and thinks I'm making up being shattered and feeling totally crap....sorry to rant but this is the only place I can come to as I have no contact me my mother have no sisters and the few friends I did have have given up and don't want the new exhausted me 😥

[CLKD]

Does your partner tell you that he's 'fed up' or is that GUILT talking ?  .

There doesn't seem to be much joined up thinking these days in the Medical Profession whereas in my day, if someone had problems that impacted on each other, they would be seen by a Team of different specialists who would discuss with and about the patient.  I know, I was there  and 'case studies' would be arranged so that everyone involved was putting forwards ideas as to the best course of action for the patient.

Maybe get the endo to take over your thyroid function 'care' and ask if he knows of someone who is interested in both conditions?  Medics network too!

[jorainbow]

Edelweiss I hope so thank you!!! Those words really cheered me up! I do hope I get the good stuff 😊😊😊

[DaisyB]

PB just reading your post - dreadful for you. Firstly I completely get what you're saying about no-one to share this with. My descent started suddenly 3 ish years ago. It's been up and down and I can tell you I have been called a hypochondriac on more than one occasion! Scary is an understatement as mostly I thought medical staff were missing something seriously amiss - yet bloods constantly came back normal   I started to hide the symptoms and emotionally felt drained - often I would swing from a demented woman hell bent on finding answers to burying my head and riding it out. Problem was that as one issue dissipated another quickly surfaced and to the outsider I can see why I appeared to be over exaggerating symptoms etc. Off course I didn't know I had started peri meno as periods were fairly constant - albeit irregular. I went to a private GP who I hoped would see me with a fresh pair of eyes - and as good as she is - bloods contradicted my reported symptoms. Check out Jen Wittman and wellnessmama for info on thyroid. I firmly believe that when it all started the thyroid was also going skew whiff but no-one picked it up as it fell within a range considered normal. I finally got diagnosed last month with underactive thyroid - no meds yet attempting diet changes first and HRT - from what I have read (and I am no expert) we should be asking for antibody reading of thyroid which gives more accurate indication of malfunctioning. I downloaded all free Jen Wittman materials but didn't sign up for paid programme. I intend to ask for this test at next private GP appt. please take comfort in knowing you are not alone - it is an uphill struggle but you will get there - stay strong and lean on the ladies on this forum who have walked this path a lot longer than I have and have such comforting words of wisdom to impart.


DaisyB xx

[GypsyRoseLee]

I have always been a good sleeper. But when I jumped aboard the Peri Train, insomnia was one of the first symptoms. It is such a evil thing.

I tried everything. EVERYTHING.

In the end I was prescribed a very low dose of Quetiapine (100mg) which I take at bedtime. It works like a charm, and I sleep like a baby again, always have at least a good 8-9 hours. I do feel quite drowsy on waking, but nothing that a strong mug of coffee can't cure. And, I feel properly rested and refreshed, which I never did taking conventional sleeping tablets.

I really wouldn't be without it 

[Peroxideblader]

Thank you so much for your lovely words. I am going to find a private endo to take full thyroid screen blood test and take it from there as I'm sure it's an issue with thyroid and I'll look at those two sites you mentioned. And yes my partner frequently comments on being peed off at me and not being the person he met usually boils down to me not wanting regular sex that's his annoyance men eh! I try to tell him that just because I don't take to my bed crying and that I look normal and seem well in his words it doesn't mean inside I'm not wrecked and about to give up. And the last post sorry I'm not using your name but if I go back it losespecially my post...what is the meds you take I've tried EVERYTHING but not this..are you in the UK?? Thanks

[Peroxideblader]

Hi sorry I've just Googled the med I know it as seroquel and sadly I can't take it...bummer I had high hopes then but thanks again...I have enquired about emailing Dr currie via Emma on here but it says you can only ask ONE question for your £25 email which is no.good for me as I wanted to send her my symptoms and then ask about suitable hrt so I don't think that's an option.

[jorainbow]

Better nights sleep last night - tried some horlicks but fell asleep after a few sips. Unless hubby put something else in it!! Rang consultant secretary to see when letter would get to gp and of course she's off all week so I'm guessing not yet!! ¡how are you feeling today edelweiss???

[edelweiss]

Hi Jorainbow, Horlicks is the wonder drug we've all been looking for (joking!) But glad you got some decent sleep.

Do you think perhaps your GP would take your word for it and prescribe, knowing that the letter is on its way?

I don't feel good at all. I feel terrible all the time, unfortunately. xxx

[jorainbow]

Im not sure he would he was quite scathing about me going private! I did eat better yesterday which may go some way to helping the sleep but I certainly didn't wake as anxious though did wake early hours. I fell asleep listening to DARE which is a book for easing anxiety. Hid voice is very hypnotic!!! It took a while to shift the foggy head today though and thats one feeling i hate. I do empathise and wish I could wake a magic wand over everyone of us who feel crap. Xxx

[edelweiss]

Oh I am sorry to hear that. It's very hard to understand why any Doctor would be so unsympathetic when all you are trying to do is get well! Who wouldn't want that, and do anything to get well as soon as possible? I hope you are soon back feeling great and 'your old self' and I am waving my imaginary wand right now just to make sure it comes true xxx

[jorainbow]

Thanks!!!! I'll keep you posted definitely. I really hope you get to feeling the same too xxx