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Author Topic: Any success stories with Tibolone? Please.  (Read 30317 times)

Hurdity

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Re: Any success stories with Tibolone? Please.
« Reply #30 on: March 20, 2017, 09:54:20 PM »

Hi there Joesmum - glad you are feeling encouraged.

Since thyroid has been mentioned it does say something about this in the product info:

Treatment with Livial results in a very minor decrease of thyroid binding globulin (TBG) and total T4. Levels of total T3 are unaltered. Livial decreases the level of sex-hormone-binding globulin (SHBG), whereas the levels of corticoid binding globulin (CBG) and circulating cortisol are unaffected.

http://www.medicines.org.uk/emc/medicine/8552

However it does say that T3 is unaltered - but this will be a study of x number of women - the fact that there is some effect suggests that some women might be more affected, and enough to notice. Great you are being monitored for this Joesmum so hopefully with tweaking you will get the dose right.

warwick - defo get thyroid levels checked in view of the above.

Hurdity x
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warwick01

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Re: Any success stories with Tibolone? Please.
« Reply #31 on: March 21, 2017, 08:58:44 AM »

Hi Hurdity,

I am currently taking 125 Leveroxine, been on that dose around 7 years. I will give it a few more weeks just to see if it settles. If still feeling lethargic I will get tested. Thanks ;)

Joesmum - Do you mind me asking how much Leveroxine your taking??

Wxx
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Anjia

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Re: Any success stories with Tibolone? Please.
« Reply #32 on: March 21, 2017, 10:17:07 AM »

I am two weeks into my second month last night I woke to go the toilet and was so dizzy I almost fell I feel wretched this morning Its the first time Ive had dizziness im really trying to go the whole three months but cant stand this .
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warwick01

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Re: Any success stories with Tibolone? Please.
« Reply #33 on: March 21, 2017, 12:47:13 PM »

Anjia,

Dizziness was a big problem for me up until 3 months. I have some good days without the dizziness but then I can get a full day with the dizzies........ Had dizziness before HRT when I started peri 8 years ago :( I'm guessing my hormones still need to level out.

As we said Anjia if you can give it 3 months you will have a good idea if it suits you. As it's improved my anxiety will stick with it.

Wxx
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Kathleen

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Re: Any success stories with Tibolone? Please.
« Reply #34 on: March 21, 2017, 01:22:49 PM »

Hello ladies.


This thread continues to be an excellent source of information.

Joesmum - yes, it is still early days for me. I too used Evorel patches for a long time before changing to Tibolone so I'm sure there is a period of adjustment. I'm getting all sorts of surges today which is exhausting and unnerving!

Wishing you all well.

K.
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warwick01

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Re: Any success stories with Tibolone? Please.
« Reply #35 on: March 21, 2017, 04:54:50 PM »

Hi Kathleen/Joesmum

I spoke with the pharmacist regarding all the strange symptoms. She said it is probably estrodiol withdrawl, in my case Oestrogel. That my body has gone into shock, cold turkey effect.

Just hang in there - I'm sure things will eventually settle

Wxx
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Tempest

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Re: Any success stories with Tibolone? Please.
« Reply #36 on: March 21, 2017, 05:49:26 PM »

Hi ladies!

Just popping in very briefly. I'm 23 days off everything and my energy has returned! No dizziness, minor hot flushes (and I mean minor) after eating my main hot meal of the day only. Sleep is actually better off HRT! No change in hair or skin and NO ANXIETY! No urinary urgency either, and dryness just a little down below which I use YES VM for but I'm seeing my Gynaecologist next week to check about 'maintenance' down below. It's still fairly early days but I just wanted to update you. My 'blood sugar' issues have also now resolved and I don't need to snack as often and have been able to eliminate added sugar from my diet again (what a relief)!

I'll pop by from time to time but as you know I'm trying to move on as the constant obsessing about the menopause really did make me mentally very low and anxious. I'm sending much love your way!

Hugs,

Tempest xxxxxx
« Last Edit: March 21, 2017, 05:51:45 PM by Tempest »
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Annie0710

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Re: Any success stories with Tibolone? Please.
« Reply #37 on: March 21, 2017, 06:06:28 PM »

Tempest !!!!!!

Aw it's lovely to hear from you.  I've really missed our chats but fully respect you don't want to chat hormones.  You're doing great au naturale .  Re: VA, I now have vagifem and ovestin and not even completed my first week of ovestin and much much less uncomfortable

Take care and if you ever need a friend who waffles and talks rubbish please don't hesitate to message me xxxxxxxx
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abbyH

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Re: Any success stories with Tibolone? Please.
« Reply #38 on: March 21, 2017, 07:48:58 PM »

That's great news Tempest!!!

happy to hear you're feeling better, long may it continue and if this current regime doesn't work for me  - I'm going to try it too

Abby xx
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Annie0710

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Re: Any success stories with Tibolone? Please.
« Reply #39 on: March 23, 2017, 10:59:30 PM »

Aw bless you Joesmum, it's horrible when things don't pan out like we hope

I would imagine you could start on a low dose now and build up as and when needed, seeing as though we can literally start Tibolone the day after we finish whatever we were on

Good luck, I really hope you start to feel better x
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Annie0710

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Re: Any success stories with Tibolone? Please.
« Reply #40 on: March 24, 2017, 07:28:25 AM »

Do what ever makes you feel better and also if your mood dips dangerously low, please tell someone close to you.  Don't suffer and don't do it in silence when there can be help for you.  My mood has been low this week but I'm putting it down to image issues x
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warwick01

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Re: Any success stories with Tibolone? Please.
« Reply #41 on: March 24, 2017, 08:05:57 AM »

Hi Joesmum,

Sorry your feeling so poorly, I can understand how your feeling. Well you gave Tibolone a good go and obviously doesn't suit you. If your mood is low I would suggest you start on Oestrogel immediately. Please keep us updated on your progress.

For me, can't say I feel brilliant but will carry on for now.

Thinking of you ;)

Wxx
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Anjia

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Re: Any success stories with Tibolone? Please.
« Reply #42 on: March 24, 2017, 10:07:22 AM »

Its only been two days since stopping Tibelone and my mood is terrible I feel so angry I cant stand feeling like this my hormones are all over the place wish I would never have started it .
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Anjia

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Re: Any success stories with Tibolone? Please.
« Reply #43 on: March 24, 2017, 10:28:32 AM »

Thanks josmum Its horrible isent it lets hope these feelings go as quickly as they came will we ever feel back to normal bloody hope so !!
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Tempest

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Re: Any success stories with Tibolone? Please.
« Reply #44 on: March 24, 2017, 11:00:32 AM »

Sending much, much love your way Joesmum as this was EXACTLY how it affected me. I just had to get off it - I felt absolutely awful as time progressed.

Be sure to take it very steady, and do lean on those who love you for support at this very difficult time (as well as us here - we are always here for you too)! xxxxxx
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