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Author Topic: Elective hysterectomy  (Read 3116 times)

honeyblossom

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Elective hysterectomy
« on: February 25, 2017, 07:50:35 PM »

Hello there. I'm new here and I'm in a real mess. I feel like my life is over. I am 45 and have not had a period for 5 years. I am completely progesterone intolerant, I've tried EVERYTHING. My life has been ruined. It makes me suicidal, anxious and unable to function. Without Estrogen I have no sleep and have sweats 20 times a night.
The way I see it I have 3 options . Risk cancer, end up topping myself during progesterone withdrawal or ask for a hysterectomy( so I don't have the progesterone issue)
I appreciate for women who have survived cancer or lost their wombs through disease, this must sound utterly ridiculous. Would any surgeon perform such a serious op for progesterone intolerance????
I am completely fine when it's estrogen only weeks and I've never had mental health problems apart from post natal depression ( more hormone crazies)
Has anyone heard of this being done? I'm willing to sell my house to pay as I feel it's my only choice.
I hope you can help
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CLKD

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Re: Elective hysterectomy
« Reply #1 on: February 25, 2017, 09:23:04 PM »

When did you last speak with a Consultant about these problems?  Some suggest a longer time on oestrogen with progesterone added every 3/4 months I think.  But if this spooks you, then hysterectomy may be the way to go.

Maybe chart your past mental health issues and see if any are hormonally linked, you mention PND.  Think about how badly and for how long you were affected, where you were referred and what treatments you were offered.  How have your moods been since.  Some ladies find that keeping a mood/food/symptom diary useful.

Nothing that makes a patient feel ill is ridiculous.  Have you been to your GP recently to ask for referral, it may require seeing specialists in different areas: i.e. Gynae., Endocronoligst, Psychiatrist to get some joined up suggestions. 

Have a brosws round
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abbyH

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Re: Elective hysterectomy
« Reply #2 on: February 25, 2017, 09:44:11 PM »

Hi there

I understand this is difficult.. I had a radical hysterectomy (TAH and BSO) last year.. different reasons, but still a big decision...
In some ways it's been great, in others not.. the hormone crash for me has been hard but just now ( a year on!) starting to make headway...

I found this blog helpful - you might too..

https://msjekyllhyde.wordpress.com/

Best of luck

Abby xx

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honeyblossom

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Re: Elective hysterectomy
« Reply #3 on: February 26, 2017, 04:40:55 AM »

Thank you for your advice. I will look into the link too. I have been refered and discharged to gynae 4 times now. Every time I get a new progesterone they send me back to my GP. I've been seen a few times by Psych, who say avoid progesterone. Even Mirena. I was lucky as the consultant who saw me for PND was a specialist and pretty clued up about the hormone issue and assessed me again since the hrt disaster ( my son is only young)
Have you any advice to get your GP to take you seriously? That seems to be a real stumbling block.
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abbyH

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Re: Elective hysterectomy
« Reply #4 on: February 26, 2017, 08:39:24 AM »

Change GP's!
You have every right to want to live a normal life and for some that might mean quite drastic measures.. but there are gynae's and meno clinic's out there you can get referred to.. Your GP is probably not that clued up


good luck!
Abby xx
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Hurdity

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Re: Elective hysterectomy
« Reply #5 on: February 26, 2017, 01:09:56 PM »

Hi honeyblossom

 :welcomemm:

I understood that for extreme progesterone intolerance and when HRT is required for debilitating symptoms, then a hysterectomy can be offered - there have been women who have had this posting on here. In fact there is a woman on here who also posted the same recently - I think in her case the gynae recommended the hyster but the finance people refused it - so may be a bit of a lottery here.

Please yes see another GP and insist on a referral. For a start you need the oestrogen to protect heart and bones at your age so it is essential that you are able to take oestrogen at least until the natural average age of menopause (around 51/52) so if you have not consistently taken it since your last period 5 years ago you especially may need it to protect your bones. Also if you have been without it for much of the past 5 years  ( is this the case) then you should also ask for a DEXA scan to check your bones.

Your doctors have a duty to ensure you are able to take replacement oestrogen at your age and if you are progesterone intolerant they absolutely should refer you to a gyanecologist and follow their recommendations.

I would suggest a longer cycle (2-3 months) but you would need to ensure your level of oestrogen is at least medium dose to protect your bones, you would then have to take a longer 12 days course of progesterone, and your bleed would be heavier than with a monthly cycle.

Can you manage 7 days of progesterone of some sort and which types have you tried? Prof Studd recommends this shortened dose for progesterone intolerant woman, but you would need to be monitored with a scan say annually (or maybe a bit more often) as there is increased risk of endometrial hyperplasia with reduced progesterone. Your gynae may be able to sanction this if you can cope with it?

Hurdity x
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CLKD

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Re: Elective hysterectomy
« Reply #6 on: February 26, 2017, 02:50:53 PM »

There is a facility here to send Dr Currie a private message I think, with a fee for a reply.  Might be worth while if you don't get help from your GP.  Do see if there is a Nurse Practitioner at your Practice.
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Mary G

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Re: Elective hysterectomy
« Reply #7 on: February 26, 2017, 04:36:16 PM »

honeyblossom, I am so sorry to hear about your problems but I know how you feel.  I too am very, very intolerant to all types of synthetic/artificial progesterone (they are trigger migraines) and I have also tried everything available.  I never felt good with any type of artificial progesterone pre-menopause but the migraines only started once my oestrogen levels dropped. 

Professor Studd recommended I have a hysterectomy as he does with all his severely progesterone intolerant patients (have a look at his website) and I really should take the plunge but work prevents me from having one at the moment - I need to be very fit and do a lot of heavy lifting etc.  I am now on a super low dose of Utrogestan under supervision/regular scans which is working well.

You are only 45 and if you are that intolerant to progesterone, you are not going to want to struggle on for years trying to make the best of a bad job so it sounds entirely sensible to opt for a hysterectomy.  That way, you can take oestrogen only risk free for the rest of your life without having to give it a second thought - what bliss!  I now deeply regret not having had a hysterectomy myself years ago - I am now 55.

I hope that helps.
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