Hi folks and hello mmanarin
I had a review a couple of months ago and my GP was clear that she did not want to to let me continue on Tibolone. She said I had been on it longer than she had intended and wanted me to stop. I must admit, I wondered if she'd let me go on it without fully realizing that it was only for post-meno? The request to go on it came from me. I was pretty distressed about coming off it, as although it was no longer working as well as the first 18 months it was still a lot better than where I had been before. She said she was going to consult someone and get back to me, and agreed to let me have 3 more months.
I got a letter a month later requesting I come see her.
So, the letter from the consultant said I should come off it and she cited risk of endometrial cancer. I said that I really wanted to take it for the next 2 weeks as I was going on holiday and just wanted some stability. She reluctantly agreed, very reluctantly, with me saying if there was a disclaimer I'd sign it!
We discussed what next and I want to try oestrogen gel. I really don't want to take oral oestrogen or progesterone after trying dozens of COCP over the years and having bad side effects, so the only option to oppose the oestrogen seems to be the Mirena Coil. The consultant had also suggested that I could have some testosterone. I agreed with GP that we would see how I got on with the coil and the gel first and then add the Test in later if needed. Saying that, in the limited appointment time, i didn't actually ask if she was able to prescribe the Testosterone? The consultant may have suggested it, but I get the impression from things I read a while back that not every NHS Trust will prescribe it.
Anyway, getting ahead of myself.
I also joked that at least once Id got thru the meno, I now knew that I could return to Tibolone and that it suits me. She actually said that maybe not, as this consultant's letter was indicating that even for post meno, Tibolone should only be used for a short period of time and still had the endometrial cancer risk. I'm not sure what I think of this, and I'd hazard a guess that the view changes depending on who you speak to. But again, we agreed to cross that one when I get there. Things change and new info comes to light.....although very slowly it seems in the world of HRT.
I am VERY apprehensive about having a Mirena put it. Anecdotally, some women love it, and others hate it.
My GP is also away for most of June, so I wont be able to get this done until July. She is the only one who fits them in our practice. I guess that gives me a month to see how the land lies with no HRT at all.......but I'm ......apprehensive about that too.
And now I will finish with a row of sad faces
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Topic: My Experience with Tibolone in Perimenopause (Read 17136 times)