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[Pam Madra]

thanks darling. I will ask my gyne to change to full tablet as well and see how I feel. Keep hanging in there Warwick and all of us can celebrate together. I hope. I will let you know about it.

[Pam Madra]

also everyone keep posting about your progress as it helps.

[warwick01]

Hi Pam - how are you today?

Day 6 and woke this morning with internal shakes, nausea and fuzzy head. For me it may be the reduction in oestrogel as I was using 3 pumps. Determined to give t a least a month.

Does anyone know how long side effects take to settle. Also how long for Tibolone to start working?

[Pam Madra]

stick in Warwick I have done 3 weeks and will see gynae next week and ask to increase the dose to full tablet and see what happens from there on. Next week is so important for me in terms of answers for my gall bladder removal for stones maybe causing nausea and seeing this specialist as well. Keeping my fingers crossed for all of this. I fully understand your nausea part and fuzzy head. Going through it right now while reading these posts as first thing in morning in Australia.

[warwick01]

Hi Pam,

Hope all goes well next week.

I do know from personal experience nausea is caused by hormones, just the same as morning sickness.

Please keep me updated on your Tibolone journey

Wxx

[Pam Madra]

Sorry girls but I am really struggling with my anxiety this week this would be 26 days since I took half tablet of tibolone. Thrush, chest pain jelly legs are physical pains along with anxiety making it so bad. I am anxious the whole day and night. At first I could sleep at night but past 2 or 3 days I cannot sleep as well. I had to take sleeping tablet to have about 4 hours sleep. I really struggling and hit rock bottom. I lost it front of my kids yesterday and cried and saying I cannot cope any more. I am not sure should I stop tibilone and get back to antidepressant. I hate this continues fear mind and me thinking that I have no hope now.
Sorry to write this all but had nothing else to share it. Please advice if there is any thing I can to do eliminate my issue.

[Kathleen]

Hello Pam Madra.

I'm sorry you are feeling so awful. I am sure one of the expert ladies will be along soon with some advice but I wanted to say I completely understand how you are feeling as I've been there myself many times. At Christmas I sobbed infront of my 27 year old daughter because I felt as you do now.. The power of our hormones is staggering. If I had a magic wand I'd be waving it over you in Australia right now!

Sending you hugs and best wishes. This too shall pass, believe me.

Take care.

K.

[Pam Madra]

thanks Kathleen. I will try to stay calm today and let it pass.

[Suzanne1967]

Hi

But posted for a few days

I'm week 10 of 2.5 tibilone and has all the symptoms you've mentioned on the past few posts ...however .....

I'm actually feeling much better 😊 Positives

Headaches gone
Anxiety much less
Sleep better not great but better
Hot flushes at night gone
Jelly legs gone
Overwhelming feeling of just can't cope no where near as much
Not tearful

Negatives

Never had spots in my life but getting quite a lot ??
Eating like a horse ?
Still have a memory of Dora the fish
Libido still looking for it


Found my mobile phone in the fridge the other evening 😳

Multitasking still compromised

But on the whole feel marginally better

Keep going in my case it' seems to be evening out

Have had to have a word with myself that I can  no longer take on the world though and I need to embrace the new changing me ( hard isn't it )

I've stopped the estroil PV as wasn't sure but am thinking about starting that 2-3 times a week ?

DG thanks for all your support xxx

[Jules53]

Hi Suzanne.🙋

So glad to hear you are doing well!☺ and that you are feeling a lot better. Hope you had a lovely Christmas.

I am on week 8 now and it is certainly working for my anxiety and I feel a lot calmer, which was my main reason for taking it!😁

However, every now and again I get pains in my legs and have had them today. They ache and there is almost like a burning ache in the bottom of my legs, mainly in the front. No swelling or redness, as I was worried about clots. Just a really strange sensation and jelly like feeling as you described. Did you get the pains in your legs and how long did it take to go? I'd be grateful for any feedback. Thanks very much.

Jules53 xx

[Suzanne1967]

Jules hi

Hope you to had a good Christmas x

I had bizzare pains in my legs too and these have only just subsided !

In respect of the pain where is it ? And how frequent ? Bilateral ? Cramp ?


Xxx

[Jules53]

Hi Suzanne.  Happy new year to you!🙌

Thanks for the reassurance about the pains in the legs. I have been waking up for the last few days with them. My calves and shins are really sore and when I press on the bones on the front they are sore to the touch and my legs feel stiff. It's in both legs but more in the left.

The pains are there in the morning and wear off but come and go during the day. Then when I'm sat down in the evening I can feel them then, almost  like restless legs!

My body feels quite achy on and off but I had that all through Peri. Sometimes I feel more like 73, not 53!😯 I'm starting to take magnesium again and will also take some fish oil to see if this helps.

Do these sound like the sort of pains you had in your legs?

My positives are

Hot flushes have gone!
Anxiety much better
Sleeping really well!
My skin is fine (no spots)
The condition of my hair is much better - not so dry!

Negatives -
Pains in legs
General aches and pains
My eyesight has deteriorated since May so I've had to get more new glasses!
Gained a couple of pounds but this is probably from over eating at Christmas! 😂

So far, the positives outweigh the negatives 😀

Look forward to hearing from you. Thanks  Xxx

[warwick01]

Hi

Good to here some positives re Tibolone

Week 2 for me, still feel a bit spacey, hip joints sore, nausea better swollen, bloated tum. Sometimes feel clammy and sweaty with jelly legs. This could be the withdraw of 3 pumps of Oestrogel and Tibolone not properly in my system. Anxiety sill an issue

Pam - I really think you should try one moth on a full tablet as in my opinion half is too low to have any benefit. Also with any new HRT it takes a good few weeks even months for our body to adjust.

I have told my family and friends to go easy with me for a couple of months (making no plans) until I settle on the Tibolone.

Please ladies keep posting Wxx

[Sooze]

I had some odd muscle 'pains' especially the first couple of months.  The closest I can equate them to is sort of like a 'stitch'.  For example I'd get one in my abdomen when sitting on the bed bending  to tie my shoelaces.  If I sat up and stretched it quickly went - in seconds.  I've also had it in my shoulder (left only for some reason), shins and hips.  I've possibly only had 1 episode this month, so for me it has settled down.

Pam-because you're still peri I would guess it would be difficult to ascertain whether some of your symptoms are due to that or not, and I guess that's why your Dr has started you on 1/2 a tablet.  I certainly wouldn't increase without your Drs go ahead.

And anyone getting headaches, mine seem to have completely gone, hang in there guys!

[Blakeygray]

Hi everyone I'm on day 56 of taking Tibolone and I've only one strip of 28 tablets left.

I haven't suffered any side effects but as mentioned in my other post, Tibolone has given me back my energy levels, (I power walk from the car to the office in the morning like nobody's business). My moods have done a complete 360 - so no more depression,  feeling low, lost and helpless.

Before Tibolone my joints used to ache constantly and I couldn't sleep or exercise; I do now. But the biggest change that has given me my quality of life back is no more hot flushes, sweats or chills.

I'm on 2.5mg a day and don't think I would have seen any of the benefits on half a tablet a day.

Hope this helps.