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Author Topic: Burning mouth and tongue  (Read 8325 times)

Jennie A Holden

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Burning mouth and tongue
« on: October 23, 2016, 02:44:50 PM »

For about 12 months my mouth and tongue have a constant burning sensation very uncomfortable I've tried loads of mouth washes but nothing helps the doctors don't know what it is and aren't very helpful. Could this be a menopause symptom change in hormones??
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Jennie A Holden

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Re: Burning mouth and tongue
« Reply #1 on: October 23, 2016, 02:49:23 PM »

Thanks x I've struggled so long doctors are no help whatsoever
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CLKD

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Re: Burning mouth and tongue
« Reply #2 on: October 23, 2016, 03:03:11 PM »

What's in your toothpaste?   I had problems when eating chocolate, bananas ……. but not every time.  It was when I used a certain product.
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Maryjane

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Re: Burning mouth and tongue
« Reply #3 on: October 23, 2016, 03:06:29 PM »

Yes it is a menopause thing ( I have had it four years ) HOWEVER do not be told it's just one of those things until your vitamin B12 / ferritin / thyroid / vitamin D have been checked as these can all also cause it.

I have just had all these tested and I am very low in them all.

HRT got rid of 50% of mine I am hoping the rest goes once the deficiencies are sorted out.

BTW make sure you get the actual readings from your GP and are not told all is fine " within range" as within range and optimal range are two vert different things.

I have been to a lecture at Loughborough university on B12 and Thyroid by a Professor / doctor / midwife on the subject. ( hubby was seriously ill , all down to B12 deficiency ).
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Jennie A Holden

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Re: Burning mouth and tongue
« Reply #4 on: October 23, 2016, 03:10:06 PM »

Thanks Maryjane x I've just changed my HRT so hopefully this will help but when I go for my 3 month check I will bring this up with them x it's so annoying and very painful
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Annie0710

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Re: Burning mouth and tongue
« Reply #5 on: October 23, 2016, 03:16:31 PM »

Mine was 197 and they told me it was acceptable!!

X
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Jenna

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Re: Burning mouth and tongue
« Reply #6 on: October 23, 2016, 04:45:09 PM »

Burning in the mouth can also be caused by SLS (sodium lauryl sulphate) in certain toothpastes. Sensodyne Daily Care Original is one that has no SLS in.
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CLKD

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Re: Burning mouth and tongue
« Reply #7 on: October 23, 2016, 04:48:01 PM »

That's it Jenna - (Penmarric?) - when I changed my paste the symptoms mostly went.
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Taz2

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Re: Burning mouth and tongue
« Reply #8 on: October 23, 2016, 04:58:05 PM »

Hi Jennie. John Radcliffe hospital has produced this info about Burning Mouth Syndrome http://www.ouh.nhs.uk/patient-guide/leaflets/files%5C110407burningmouth.pdf

Hope it gives you some idea as to what you can do alleviate the symptoms.

Taz x
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Maryjane

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Re: Burning mouth and tongue
« Reply #9 on: October 23, 2016, 04:59:08 PM »

Sparkle your B12 is far to low......anything below 550 is considered low and ideally should be at a 1,000 for proper neurological and a whole host of other symptoms .

A lot of dementia is actually B12 deficiency, as told by a NHS geriatric consultant who would never have believed this herself until she also found out she was B12 deficient, she now checks the bloods of all her dementia patients for B12 deficiency and lots are.

Apparently for some reason it has got " forgotten in med school " about the real importance of B12 as it has been known about for a very long time.

Within range can be between 200 and 900 HUGE difference so I would definitely be treating yours at that reading sparkle. However over the counter B12 is not enough daily allowance and optimal daily allowance again are to different things. My hubby is on a very high dose as told by the specialist.

Very often a low B12 also has low vitamin D / calcium / ferritin and thyroid issues. Again the NHS testing of thyroid is just not good enough. The lecture given by a top NHS thyroid professor said exactly this.

I now have a nutritionist and I am sorting all this out.

My hubby had what at first was told to be a stroke, on a stroke ward for 24 hours.....then they decided no. From there 3 years of getting iller and iller , immunology dept , dermatologist, 3 a&e admissions , was heading for a wheel chair as had NO energy for anything was looking at early retirement.

Now he saw THREE neurologists plus the other consultants cost the NHS goodness knows what.....we were left to get on with it. So I got onto Dr Google , paid for a host of blood tests that may show a reason for his symptoms " hey presto" B12 deficiency. Found Dr Chandry UK expert , six months on he is back at the gym after 3 years and can do a full days work without almost collapsing and falling asleep, he also follows the same nutritional path as I do.

There is an excellent book called could it be B12 written by Sally Patholock , she was diagnosed with MS if it wasn't for the " on the ball consultsant " she mentioned her symptoms to ( she is a nurse ) she would have gone down the MS route it was B12 all along , MS and B12 deficiency mimic each other very often.

If after a year hubby is still doing well , he will write to all the consultants as it really is very basic stuff and should be expected by a neurologist and immunologist from top hospitals, my hubby really could of ended up in a wheelchair because if you remain B12 deficient for a very long time it can have irreparable damage to the mylene sheath. This may make some realise why I always say get your results in front of you , and do your own research.

WE ARE OUR OWN HEALTH ADVOCATES.




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Sarai

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Re: Burning mouth and tongue
« Reply #10 on: October 23, 2016, 05:04:31 PM »

Maryjane you sound like somebody who is on the b12 Facebook group.
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Maryjane

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Re: Burning mouth and tongue
« Reply #11 on: October 23, 2016, 05:14:39 PM »

Sarai I was , hubby still is.

I went to the lecture at Loughborough UNI this year , did you ?

I can't tell you what a near miss it has been with hubby, Asian Drs are better at knowing about B12 deficiency as it is really quite common because of there diet, however hubby is not a vegi or vegan his will have been not being able to absorb it correctly.

Also ladies who don't no every time you have nitrose oxide for teeth / surgery it delpletes B12 , omeprazole deplete it as all these things upset the gut flora regards absorption of the B12.
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Maryjane

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Re: Burning mouth and tongue
« Reply #12 on: October 23, 2016, 05:20:04 PM »

Forgot to say amongst other things , hubby had burning mouth syndrome and a beefy tounge. Both gone.
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Jennie A Holden

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Re: Burning mouth and tongue
« Reply #13 on: October 23, 2016, 06:25:42 PM »

Wow thanks everyone I'm really glad I mentioned this x I'm off work this next week so I guess I will be doing lots of reading up x
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Annie0710

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Re: Burning mouth and tongue
« Reply #14 on: October 23, 2016, 07:13:23 PM »

Your dentist may be able to help.  I mentioned my burns and metallic taste and she immediately thought burning mouth syndrome, she referred me to a specialist but the phase had passed, he took photos etc and left the appt open in case it returns but touch wood it hasn't.  It really got me down not being able to eat or drink without pain, weirdly chocolate was soothing x
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