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[Pam Madra]

thanks for your reply Otes 73.  I am also talking to a researcher to researcher here in Australia and she has explained about how in Australia is not yet prescribed by gp for perimenopause rather AD are given. I have been asked today by Menopause specialist dr.  to take half a tablet for 3 months. Along with I found these trials in Melbourne where they are trying to link the two. However thanks for sharing your information. It really helps.

[dazned]

I might be wrong but thought this was only used post meno   

[Otes73]

I only took 1/2 tablet anyway as didn't want to start on a high dose. I can see how it helps with depression as really did give me a sense of calm and I had no anxiety.

Hope it works for you.
X

[GypsyRoseLee]

Very interesting. Prof Studd is writing to my GP to recommend Zoladex in jections to totally kill my cycle + Livial as 'add back' HRT.

I have been better on 4 pumps + testim + 100mg Sertraline BUT every month my horrible anxiety/depression returns with a vengence, and I just feel dreadful. Panicky, hopeless, no point living etc. Then it suddenly lifts just as quickly as it descended.

From this I ascertain that 4 pumps isn't enough to suppress my cycle, and that sometimes it is too much and causes problems. And, the Sertraline can't stop the horrible hormonal dip (but feel a lot better the rest of the month, and sleep much better).

I KNOW my issues are caused by 'something' changing in my brain, because day 2 day my life really doesn't change. I enjoy my job. I am happily married. My DCs are really lovely and doing well at school. My life is GOOD. But suddenly 'something' shifts in my head, and my life seems bleak and frightening, and I feel panicky and hopeless inside.

[Pam Madra]

I have been in touch with a research team in Melbourne who are the moment conducting survey on using Tibilone in perimenopausal women. They have published few finding and are hopeful that it can help. Yes I have been asked to take a half tablet only which is 1.25mg so let see. Once I get some more information I will try it post it up.

[GypsyRoseLee]

Please keep us posted Pam Madra.

[Mojo]

Hi gyspy rose lee,

Liked your post as can relate to it for past nine years, I have been on cerelle mini pill to stop the protesterone rising half way through the month, and although this helped along with anti depression pills! It has got me stronger and finally on a good day went to specialist and found I had no testosterone so on gel twice a week and replace the mini pill with tibilone 2.5mg. This was three weeks ago but going well so far, so fingers crossed as cant stand the thought of the black cloud coming back 😀

[GypsyRoseLee]

Hi Mojo

I am still stunned that progesterone can effect me so horribly.

I am interested that your consultant has advised adding some oestrogel alongside Livial. How much gel do you use? I am a little concerned that Livial won't generate enough oestrogen for me, once my own ovaries have been shut down with Zoladex?

I definitely need my ovaries shutting down, as the fluctuations are just too extreme for the gel + testim + AD to fully control each month.

But I'm worried that once shut down, I won't get the mood swings but will be left feeling very flat because of potentially low oestrogen?

I was also interested to read about research being done which shows that hormonal fluctuations in some women can interfere with certain chemicals in the brain, causing random anxiety/depression. I am positive this is what is happening to me.

[Mojo]

Hi gypsy rose lee

I am using testogel not oestrogen, but I can never believe the person I become the second half of the month, it's like being another person and then suddenly you are back again,  its so frightening at times
And that doesn't include all the menopause systems that I have in addition as well now haha

[Pam Madra]

Hi Docdoc going from you post in May and taking tibilone now for 18 days now. I had my periods today not much bleeding yet though had usual cramps. However, I am not sure if it has helped me much yet as  I have a half tablet at night time. I still have issues with anxiety on certain days and worse during morning times. I will continue with it till my next appointment. Nausea also kicks in the same time and it spirals down for those particular day making me fearful, foggy mind.

[Menomale]

http://journals.sagepub.com/doi/pdf/10.1177/0004867416655877

[Tinkerbellj]

Hi gypsy. This is interesting ti me . My consultant is still going down the line of high doses of oestrogen to kill my cycle. She didn't suggest shutting down my ovaries.  She didnt suggest anything except basically suck it up.  Let me know how u get on.
This tibilone sounds good..... honestly dont recognise myself. Something has to work!!

[Annie0710]

http://journals.sagepub.com/doi/pdf/10.1177/0004867416655877

That's interesting Menomale.  I'm definitely no expert and that study seems to suggest it does help on peri

We had a member (Pam) who hadn't been on for a few weeks who was given 1/2 Tibolone each day and unfortunately she felt worse I think, certainly no better.  It could've been the fact she only took half or that she was peri OR that it just wasn't the right form of treatment for her

X

[warwick01]

Hi Annie,

Been wondering about Pam too. Hope she is ok she was a good support when I started this Tib journey.

Wx

[Annie0710]

I know bless her, she was struggling so bad, I hope it's good reasons that she hasn't been on but I do worry x