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[PompeyLou]

I am in urgent need of some advice... I was diagnosed with PMDD 2 years ago after nearly succeeding In taking my own life after years of hell... I quickly worked out that I couldn't cope with progesterone so I went to see a gynecologist. After having a scan they thought I had a very large fast growing polyp so called myself and my husband in to take a biopsy of it, they did this in front of my husband and we were told that they think they had removed most of the polyp... 3 days later I had a phone call to urgently go back in as they had found something... my husband was away so went alone only to be told that what they had removed wasn't a polyp but a baby!!
I was told that it was probably already dead and if not because of my age (44) it also probably  wouldn't have survived... I had an operation In the May to remove any dead baby tissue... in the July I went In to have my overies removed as this would help with my moods if I wasnt ovulating and wasn't producing progesterone. My husband wasn't happy with this but knew it was my decision. I was obviously thrown straight Into menopause but was given Livial.
I felt absolutely brilliant on this and thought what I had been through was now worth while as I hadn't felt this good in a long time... but!!! my gynecologist went on maternity leave in the October which is fine but I was told I had to stop taking livial by her stand in because I still have my womb! I was put on something different which contained progesteron and I was like a raging bull as my husband put it! .. I came off it in January and haven't been on anything since and feel totally drained and like shit! I'm 45 and my 2nd marriage of just over 2 years is in pieces.. I keep emailing my original gynie but she won't reply.. I have been left to rot and nobody will help or listen to me! I am thinking of buying livial on line because I am now really desperate. .. has anyone else ever done this??

[Claireylou]

Hi there, I'm sorry but I have no knowledge of HRT, I just didn't want to read and run.

I read your post and my heart goes out to you. What an awful time you're going through.

Someone with knowledge will be along soon I'm sure. Sending you best wishes and love. You'll find comfort and support here I'm sure.

Take care xxx

[PompeyLou]

Thank you so much.. and I hope I do soon because I'm certainly not getting any support or help from anywhere else xx

[PompeyLou]

Thank you xx

[Mary G]

Pompeylou, I am so sorry to hear about the terrible time you been having.

So just to clarify, you have had both ovaries removed, still have a womb and got on extremely well with Livial. 

There is no reason why you should not have carried on taking Livial because it is a continuous combined regime specifically for women who have a womb.  My doctor offered Livial to me and I have a womb and ovaries.  This doesn't make any sense at all and I am at a loss to know what this gynaecologist is talking about.

Therefore, I would say yes, buy it online and get your life back, you have nothing to lose.  Alternatively, you could try getting it from your GP but if you are desperate and don't want to wait for an appointment before starting it then at least get the first lot online (it is usually next day delivery) and then see your doctor about getting it on prescription thereafter.

I think you have been treated very badly indeed and I am appalled. 

[CLKD]

After all that Dr Kath did in the 1980s to determine post natal depression etc. and the link between hormone upheaval, rages, murderous intent …… and ladies are still not listened to nor given a proper diagnosis 

I too am appalled that your Gynea didn't make it clear enough in your notes covered by a letter to your family doctor that you can continue with Livial.  It is unlikely that you will receive a reply as the e-mail is probably only accessible via her Hospital. (in the U.K.?)  I am appalled that the Locum isn't clued up enough to keep you on the Livial until she/he has made enquiries.  The Hospital Pharamcy would have been the place to start 

Welcome.  Browse round. Make Notes!  Vent.  I would be sending a letter to the Locum explaining exactly what has happened in recent months!  When did you last see your GP?  That is the place to begin, or as Mary G suggests, buy on-line.

How sad that the scan wasn't clear enough to determine a foetus  .  A shock for all concerned?

 

[PompeyLou]

Hi Mary.. yes I had both overies removed and went head first into menopause... my doctors won't let me have it either..apparently if Im on Livial and I still have a womb I will get a build up as I won't be shedding any of the womb wall lining and I could get cancer of the womb? But I'm obviously not doing that now either as I'm not having a period! My first gynecologist gave it to me for a reason and thought it was right so I can't understand why nobody else will listen to me... but thank you so much for taking the time to reply xx

[CLKD]

R U in the UK?  I can't understand whether your GP is involved at all?

Maybe go visit a Pharmacist this week as most here have private rooms now.  Make a list of what you need to know.  GPs have been sent new Guidelines regarding HRT as Research is now thought to be outdated 

[PompeyLou]

Hi yes I'm In the UK...I've been to my GP many times and they all say the same... when I was on it it was a struggle every month when I went to get my prescription
.. I've had my whole life completely turned upside down and left to rot by the people I thought were there to help me xx

[CLKD]

Didn't your GPs give advice if they weren't happy with the suggestion from the Gynae.?  You're not alone now >wave< …..

You could start another thread if you feel necessary about the baby that was taken away, there is a private area on the forum.  You could also see if the facility to send Dr Currie a private e-mail for advice, the fee will be there too: at the top of the page I think.

Keep posting!

[PompeyLou]

I just want to feel normal and like a woman again ... Im only 45 and my marriage is bein held together by a thread as my husband doesn't understand at all
  xx

[CLKD]

Tell him to get a grip?  There is a page for 'husbands' here somewhere, of course, meno-brain here can't remember where.  Ladies have found it useful to print it off and hand over for their men to read ;-).

They really don't get it.  The woman they thought they knew suddenly changes, of course we do, it's hormonal  .  People when scared get angry or close off so keeping communication open is important. 

[CLKD]

"Advice for Husbands" in the 'All Things Menopause' room  - I've bumped it.

[Halfpint]

Sorry to hear what has happened to you but I wonder if your Gynae is not replying as they have now realised they made a mistake in prescribing it for you if it can possibly lead to cancer? Dr's do make mistakes.

[Mary G]

PompeyLou, I have just checked again and Livial (Tibolone) is a bleed free continuous combined HRT regime that contains a type of progesterone so you will not get lining build up.  It specifically says that A SEPARATE PROGESTERONE SHOULD NOT BE ADDED TO LIVIAL.  Surely your GP(s) should know that and I really don't know what they are talking about.  You can check it out on here and you will see it is at the bottom of the continuous combined HRT list and does not need any extra progesterone.

I really do despair and my advice is to just go ahead and buy it online.  Your GP obviously knows nothing about HRT so they can't give you any advice anyway.