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Menopause Matters magazine ISSUE 81 out now. (Autumn issue, September 2025)

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Author Topic: newbie  (Read 9683 times)

cheezel

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newbie
« on: April 25, 2016, 10:52:04 AM »

Hi all,
Im a newbie and looking for some advice. Im early menopause and will be 42 nxt sat with 3 kiddies 2 to 7. Im having an absolutely horrific time and cant take much more. Im living in ireland so our choice in hrt is much more limited with no bioidentical progesterone available. So anyway my story is last yr when my baby was 10mths old i missed a period. That continued for 4mths and i dev prolapses so went to my gynae/obs. She said as i have autoimmune conditions and a crazy lifestyle (working 70 hrs plus gym at 5.30am) it was prob stress related and i needed to sort my life out. Anyway my fsh was  125 so blds all post menopause levels. Started me on Evorel Conti and was ok at start but then dev severe nausea n cramps on day of change. So she then put me on Prempak C which i had huge rxn to...hives all over my body. I have hypersensitive immune system and dev rxns...anyway i stopped taking them and felt better and by the time i saw my gynae my blds were normal again and i had regular periods until jan this yr. Im now back to Sq 1.....my gp great..started me on estradot 37.5....was ok for 2 days then dev severe nausea n diarrhoea...by wk 2 i could only really tolerate 6mcgs...then started provera 5mgs x 3 and felt ok ish for 2 wks...when i stopped had horrific cramps headaches etc and patch made it worse so tried to go without. Developed severe nausea and diarrhoea which i think was due to severe prog def symptoms....was so bad felt like i couldnt go on....saw new gynae n she said to stay on evorel conti for 12 wks whilst sending me to allergist endocrine etc for other issues. Sorry for long story but im 2 wks on evorel conti and getting worse...got increasingly better for the 2 wks but dev hives after changing patch and yest and today feel dreadful. In bed sonce 8pm last night. Have bad PMS symptoms...like womb cramps lower back pain but worst is this feeling i get in my head like pressure around my eyes and horrible dry mouth and pain in jaw n teeth like i was clamping them shut. Im wondering if dose just too high for me or progesterone not suiting me as i feel v v down. I cant tolerate anything including my kids and they need me. Just emailed gynae there but not sure what she can do. I feel like my life is over. Can hrt actually work and make life liveable??? Im meant to be back in work nxt wk....also at 41 ive no one to talk to about this as all enjoying life......tks girls...
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CLKD

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Re: newbie
« Reply #1 on: April 25, 2016, 11:28:03 AM »

 :welcomemm:  why is there less support over there  :-\ it's often bad enough on the mainland to get GPs to accept that ladies can begin menopause at any age  >:(.

Some don't react well to progesterone ……. if you 'search' you'll see how others are coping. 

You need a  :bighug:.  Listen to your body, if you need to rest then do so.  Make sure that you eat little and often and keep hydrated.  Exercise when possible, remember housework is exercise  ;)
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Dancinggirl

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Re: newbie
« Reply #2 on: April 25, 2016, 12:20:49 PM »

Hi and welcome to MM cheezel - I had a premature meno which started in my mid 30s.  Clearly you are having difficulties as your own hormones sent to be still kicking in at times that must also be having an effect.

I believe there are number things going on here. Yes, you are menopausal and at your age you do need HRT to protect your heart and bones for the long term. Finding the right HRT is the challenge. Early on in my meno journey I tried a variety of HRT types and strengths all of which gave me headaches and other side effects.  I was eventually put on just one ump of Oestrogel each day with 10 days of progesterone each month which then gave me a short withdrawal bleed (about 4-5 days). Provera is one of the better progesterones but you may find Utrogestan better but I'm afraid the PMT when you come off any progesterone is common with most women and may be something you simply have to cope with - I certainly get this - headache and nasty cramps for a few days each month.  It's all about balancing the positive with the negative and fro you I think a continuous HRt regime would not be an option due to your sensitivity to the progesterone.  If you expect to feel good every day then I personally don't think that is realistic. 
Unfortunately Evoral conti is probably not the right one for you as it is a medium dose (so possibly too high) and the progesterone is one of the more synthetic ones which is tougher to tolerate.
I personally like Oestrogel as, though it can be a bit of a nuisance applying it each day and allowing it to dry for 10 mins before dressing etc. - it seems to give me the more consistent dose and it allows adjustments, so you can simply increase the amount you use if need be.
If I were you I would definitely start fresh - so give yourself a 4 week break. Ask for Oestrogel and just use one pump per day - it may be best you use this either morning or evening on inner thighs (you will need to be careful not to allow you children physical contact with the area you have applied this to for a couple of hours) then either use Provera (just 10mg daily ) for 10-12 days each month after which you will get some PMT and a withdrawal bleed but on this low amount of oestrogen it shouldn't be so bad.  Ideally you should try Utrogestan (it's called micronised progesterone in the medicine book) - I am surprised you can't get this as it used for IVF which I'm sure is available in Ireland? It's worth pointing out that is it 'micronised progesterone' to see if you GP can find it - however, do bare in mind that Utrogestan gives side effects as well so doesn't suit everyone.  Negative reactions to oestrogen is very, very rare as most women feel really good on this, however I've always preferred the Oestrogel as I don't get a consistent dose with patches.

May I also comment that your lifestyle does sound absolutely bonkers.  To work 70 hours a week, go to the gym at 5.30 am and cope with 3 small children - Something, somewhere is going to give.  Where on earth is your relaxation time?????? Relaxation is just as important as exercise. Please, please be kind to yourself. I am 60 now and 25 years on I'm still using HRT - it is a compromise as I do get ups and downs (hate the tummy cramps) but I've tried life without HRT 3 times and that is really NOT GOOD. BTW I get horrible headaches around the eyes without any oestrogen or if I'm using too much - it's about finding the right amount, so just do one pump per day for 4 weeks before changing.
I'm sure others will be along with help but do try the sequential regime I have suggested.  Dg x

Dg x
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Halfpint

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Re: newbie
« Reply #3 on: April 25, 2016, 12:21:18 PM »

Hi Cheezel,
Welcome to the forum.
Out of interest, what autoimmune conditions do you have?
As for the pain you are experiencing around your eyes, jaw and teeth with the dry mouth..that can all be related to sinus issues? I suppose at times, we put every symptom down to peri but if you have autoimmune conditons, some of these may be causing a lot of your symptoms.
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Dancinggirl

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Re: newbie
« Reply #4 on: April 25, 2016, 03:57:11 PM »

Very good points Halfpint - many women blame HRT for symptoms they are getting when in fact it is often the lack of oestrogen that can trigger things like sinus problems etc. For me HRT definitely calms down many of my bodies sensitivity issues - eczema, dry nasal passages etc are all far worse when i'm not on HRT.  Dg x
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Mandz

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Re: newbie
« Reply #5 on: April 27, 2016, 08:25:32 PM »

Geeeeeeeezoooooo how the hell do u manage???????

3 kids and running a house is hard enough nevermind 70 hours a week doing a job n gym.......

You are probably running on empty..... We all need a "day off" .....I'm not criticising- I'm amazed and astounded!!! Don't take this the wrong way but remember we are not getting any younger and life's a race

Btw if you don't feel ready to be back to work ask your doc to extend your sick note xx

Be kind to yourself and sending big hugs

Love m xx
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vickypk

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Re: newbie
« Reply #6 on: April 27, 2016, 08:35:34 PM »

Hi Cheezel
I'm on Everol Conti and have been on that patch for about 8 months.  I had a lot of similar side effects you are experiencing at the start of using these patches.  I cut them down to a third and built up slowly and things settled.
Hope this helps and you feel better soon.

Vicky x
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Lizab

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Re: newbie
« Reply #7 on: May 06, 2016, 07:14:17 PM »

Hi cheezel, I'm only now seeing your post, but want to reach out. It is hard, isn't it? I'm 39 with two kids. I found that on the 37.5, I only felt a little better while on the progesterone too and still awful when on estrogen alone. After increasing the estrogen a little, it seems to be improving. Seems like it would be the opposite, but I'll take whatever works. I saw your reply on Mandz' post and can absolutely relate. Keep posting and let us know how it's going.
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cheezel

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Re: newbie
« Reply #8 on: May 09, 2016, 11:20:55 AM »

Hi LisaB,
Im currently lying in my bed sick as a dog. Not sure how much more i can take of this. Tried Lexapro last wk and went dolally. My prob is im v sensitive to all meds. Im still on the Evorel Conti as my gynae wants me to stay on it for 12 wks. I didnt sleep a wink last night as ive such strong uterine cramps and headaches. Cant eat. Cant do anything. Im so down about it all. Gynae doing me a script today for uterine cramps. Id love to maybe half the patch and see what effect that has but gynae doesnt want me too....defo think the progestogen not suiting me and way too strong. My mother is living with me as im incapable of doing anything. Will be going to no pay in work in 2 wks time as we only get 12 wks sick leave in 4yrs.  Had enough....LisaB its horrendous. I feel like im a ghost looking on from the sidelines
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vickypk

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Re: newbie
« Reply #9 on: May 09, 2016, 11:43:51 AM »

Hi. I had a lo of the bad side effects in the first month with Evorel conti. I I patches to to third to start with. Hope you are okay soon xx
 
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Hurdity

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Re: newbie
« Reply #10 on: May 09, 2016, 05:29:36 PM »

Hi cheezel - sorry to hear you are feeling rough. How long have you been taking the Evorel conti now?

Also how long were you without HRT at all and how many periods did you have during this time? If you are having (natural) periods then  Evorel conti is the wrong HRT for you anyway - the gynae should not have give it to you unless you were late peri perhaps. FSH levels are irrelevant in the sense that you cannot say you are post-menopause from the readings, just that you are peri-menopausal as they fluctuate a lot at this time.

At your young age anyway I would not want to be taking progesterone all the time and would be better to try to mimic your natural cycle even if it means having a withdrawal bleed.

Is your gynae referred from your GP at a menopause clinic? Can you ask your GP to change - you can't go on like this with such young children. Also if your cycle has restarted this may also contribute to how you're feeling.

As you are so young -  have you thought of the combined Pill eg Qlaira which has only 2 tablet free days, and the oestrogen is bio-identical. If you can tolerate the progestogen in this you may well feel heaps better.

Hurdity x

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Lizab

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Re: newbie
« Reply #11 on: May 10, 2016, 05:26:07 PM »

Ooo, Lexapro. I shivered reading that. I took one tablet years ago for a sinus infection misdiagnosed as anxiety. It was awful. Changed gp after that experience.

It is horrendous. I was practically bedridden from several weeks. I am building up to normal again. It's been a slow process. My doctor and all the ladies here told me that it could take weeks or months, and I didn't want to hear it. I had already been so low for too long. But it's true. You will feel better. I am not 100% yet but so much better than I was. I wonder if it hits harder and faster for those of us that are younger, and maybe more drawn out for older ladies?

You can take it though. I was sure I was dying, and if not, I was certainly losing my mind.  I wish I could offer some advice for how to get along until you get settled, but I'm not even sure how I did it. It was a lot of crying, a lot of boredom,  a lot of optimism, a lot of failed efforts, I think it's really just waiting. I tried meditations and yoga. The yoga is good especially if you aren't getting out and exercising. Some days I only got out of bed to do some stretching exercises and some yoga. Keep checking in and posting. It helped me to know that others are having the same. Let us know how you're doing.
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cheezel

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Re: newbie
« Reply #12 on: May 11, 2016, 07:44:55 AM »

Hi Hurdity and LisaB,
Hurdity i havent had a bleed in 4mths now. After 2 wks of provera i had a day of maybe spotting. Gynae only kept me on Evorel Conti as i had put myself on it as i still had it from prev yr. Because of my other issues ie hypersenstivity etc she wants me to get tests done before changing me but said she felt id do better on a tablet as so young or oestrogen and mirena. I asked my gp about Qlaira and she said that had v high doses of hormones and prob wouldnt suit me??? Anyway gynae gave me script for Ponstan for uterine cramps and headaches and has worked wonders. As i work through each symptom another seems to pop up...ive noticed all along i feel kinda jittery esp in my chest even at rest and last night couldnt sleep a wink...i honestly dont think its anxiety and ive never suffered anxiety before. I think the dosage might be too high EC 50mcgs and have emailed my gynae this am asking if maybe i could try cutting a 1/3 off to see if any difference as i need to sleep and dont want to take yet more meds. My thyroid is currently underactive so i know it isnt that so can only be the hrt. She must be sick of me at this stage as i email nearly every second day with queries but if i dont look out for myself who will? Ive my allergy testing nxt tues so id say based on that she will try sth else although we both expect it to come back neg and ive come to realise alot of my hypersensitivity reactions is srlf induced through fear and panic!! Sorry for the long post. Hurdity you are right in that im still peri menopause. Last yr i was 8mths no periods then they returned for 5mths now nearly 5 mths again with none. Im only on Evorel Conti consistently 4 wks now and was prob a good 12 to 14 wks with nothing really in my system. Tks for taking the time to read this. LisaB what hrt are you on and good to hear things improved
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Hurdity

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Re: newbie
« Reply #13 on: May 11, 2016, 09:44:46 AM »

If you have not been for 12 months without a natural period - ie when not on HRT, then you are not post-menopausal and should not be on Evorel conti.

If you are late peri-menopause, then it may well be OK - and some gynaes do prescribe it, but also if that was the case, 50 mcg is not too high a dose - it is more likely that the norethisterone taken continuously is causing these symptoms and it is ridiculous to have to take extra medication, to cure symptoms that maybe caused by the medication in the first place!

Please do ask for a different type of hRT - a cyclical one initially so that you have a withdrawal bleed and have  some time on oestrogen alone - ideally as Dancinggirl suggested in her main post below, or patches.

Hurdity x
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cheezel

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Re: newbie
« Reply #14 on: May 11, 2016, 11:48:14 AM »

I know Hurdity....i emailed her this am re feeling kinda jittery etc and should i maybe decrease the patch a bit...she said this not normal and she will talk to my gp about it. Freaked me out cos im afraid she wants me to go on psych meds and after going on Lexapro 2 wks ago and being horrific on it i dont want to go down that route again. My thyroid is still underactive so could possibly be that. Changed my patch today and even with the Ponstan i can feel the cramps..i deffo think its the northisterone but getting no feedback on this when i suggest it. I wish i hadnt emailed now and just put last night and today down to a bad day. Just getting fed up with it all ...i know its still early days as im only 4wks on hrt but im the type that questions things alot and i see no wrong in that. Also being v sick since Feb and stuck at home is starting to depress me. As you might know from my previous post i used to live a v manic life and i find doing nothing v hard. I know its a blip in the grand scheme of things but just finding it all v v hard.....took 1mg of valium to calm me as so stressed today. Hurdity its hard going...somedays i feel so down and cant see the point of continuing but keep telling myself....This too shall pass....nothing lasts forever!!
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