Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[CLKD]

A cousin had rheumatic fever 3 times: at age 9, 18 and again in her late 20s.  The first time she was so ill that she had to be treated at home, the GP thought that a journey to Hospital 88 miles away would kill her.  We all crept about for weeks.

Thanks Machair - how old were you when the virus struck?  Like many of these types of conditions, they can remain dormant.   Stress, tiredness, worry can bring them out.  The other one that springs to mind is herpes from Chickenpox = shingles which comes out when someone has an accident or shock.

[Hurdity]

Sorry to hear about the various conditions several of you have.

It's a pity that the old diagnosis of "Post-Viral Fatigue Syndrome" is no longer used and any such symptoms have been subsumed into a vague ME/CFS diagnosis - and especially as you say re glandular fever as this is a known consequence. It would be much better if the possible causes for them all were tested for and isolated rather than a medical "there-there" and put up with it!

I know this is one of my hobby horses but oestrogen deficiency, testosterone deficiency, thryoid hormones deficiency can all lead to fibromyalgia syndrome, CFS and ME ( so I understand).  Probably some vitamin deficiencies too? Some of these at least can be treated with appropriate hormones to alleviate the symptoms. Post-viral syndrome is more difficult so I gather -  because the actual physiological basis is not certain (correct me if I'm wrong) so difficult to treat ie the medical profession don't know how the virus causes these lingering symptoms. My son suffered for some time after glandular fever (which he got at university) but it wasn't recognised - although he had to drop out and then repeat a year because he fell behind due to the fatigue. he seems to be OK now though fortunately but how awful if it continues!

Hurdity x

[CLKD]

Chronic fatigue is awful.  There are no allowances in our busy World to accommodate it so people lose jobs, friends, partners …… time, energy, holidays, days out ……… managing conditions can in itself, be tiring 

[babyjane]

The WHO recognises ME/CFS as a genuine medical condition despite the medical profession not knowing how, what or why it happens.

Hormone turmoil does indeed cause a chronic fatigue but it is not CFS/ME. PVS is different matter in that it is finite. It is when it does not recover that it can become a CFS or ME to use the original term that is not used so often now.

And are the young people and men who suffer with it just hormone deficient?  I find the comment that it is all about hormones belittling to those who suffer with this illness and I know several patients with it, including a man, and a young woman who is housebound a lot of the time.