I was intubated as a small baby. Mum thinks it stems from that time ......... I also apparently ate soap when about 11 months old and vomited bubbles
....... she looked in through the window where my cot was and thought I was fitting
I thought about this a lot yesterday. Sometimes the fear was so bad I didn't want to go so School - but was told by Mum that "You can't go out tonight if you are off school in the day" .......... never "Have this morning off and see how you feel. You might feel well enough to go out tonight". Also: "If you are ill you will spoil the outing for everyone" ......... no empathy there then
(thanks JuJu! ) and the Consultant told her that I would 'grow out' of the inability to eat but no one asked me why I didn't eat nor did any adult help me 'grow out' of the fear. It was assumed by those around me that growing up would be enough to make me 'grow out' I suppose
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Before events or afterwards I would have deep panic attacks. 'In case' situations happened. I still want to get through an event fast so that I know if I have enjoyed myself or if panic will drive me away - then I would at least know whether to attend: or not
I have usually been able to eat chocolate and at times this has helped keep me alive. Melt in the mouth syndrome I suppose. Other foods are out of bounds but I have in the last 5 years expanded those 'safe' foods, but only if my gut is quiet. I will go into places to eat, if my gut is quiet but am always looking for a way out and if someone coughs in the place
.......... I also eat very fast so t hat I get as much inside me in case my stomach shuts off ......... then DH can't say 'you must eat'
I still never tell anyone in our social circle/s. I don't want people watching my reactions if we *are* out and about i.e. walking/pubbing/antique events ..... and over the years with the Betablockas - which stop that awful lurch in my guts - I have been able to go to inside closed spaces, even the NEC
which I never thought during the 1990s that I would ever be able to do. I still don't do music festivals, i.e. Cropredy Reunion, because all those people: up to 20,000+ : in that field means I can't get away anywhere ........ and the loos would have queues when I perhaps needed to hide away
My GP has been WONDERFUL! I did have intermittent 'therapies' for several years but because the phobia is deeply engrained ...... I never babysit for neighbours. Pet sit yes, but not children
.......... I can't go to the theatre due to the panic starting, so dont' even look to see what is on: would LOVE to see Vincent and Flavia when they go to Oxford
....... the last concert I enjoyed as Michael Ball, but that was £25.00 per seat
.......... and my wish is to see
Les Misearables in London but the phaff of needing to book forwards as well as the journey, we haven't been to London for over 25 years and when I did go to the Chelsea Flower Show, I had a plastic bag within a bag .....
I have met people who are fearful of dogs/cats/buttons/insects/bats/moths/butterflies; I expect somewhere in the World someone is afraid of anything that is 'out there'
and being in
Gut Reaction helped so much. I had 2 letters from other sufferers that I could have written myself, almost word-for-word about how they suffered: exactly the same as I had done ............