Hi Hattie, sorry to hear you are still suffering. I am no better either I'm afraid but I think my problem is a mixture of a few things, a trapped or compressed pudendal nerve on the right side which makes it impossible for me to sit down normally, it causes intense pain and then causes my pelvic floor to go into a spasm which then leads to a burning pain in my vagina. Dr B also diagnosed a rectocele last year which causes a whole host of other issues. I was also diagnosed with interstitial cystitis last year which is miserable with intense burning and bladder pain. As you know, I really went through the mill last year trying to get myself better but now I am just taking amitriptyline and HRT and hoping my body will sort itself out. It is so awful living with chronic pain, especially in the vulva. I could live with chronic pain in my knee or shoulder but this really is the pits!
I know what you mean by distraction, I now stand on the train doing a Su Doku Puzzle to take my mind off the pain during the journey to and from work. I just try to make sure that I don't do anything to cause a flare-up but it means I am only living a half-life, existing rather than living! Work is a good distraction for me but I need to use a special cushion and, even then, sometimes the burning is so bad that I have to go to the loo and pour cold water over my vulva
.
I am seriously considering giving up work now to try and concentrate on getting better, I might look into Body Stress Release as I have read that it can be quite successful in treating vulval pain.
I know what you mean about not quite believing your body could treat you this way.
Take care
Judith x x