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[tabbycat3838]

Thankyou winterrose i will definitley try that.. Like ckld said tho, would a doctor believe me? 😒

Hi ckld haha surely if i phoned a gay help line thwy would assume i needed advice about being gay?
Luckily my sons support worker finally showed up today and has taken him out and had a chat with him.
Has come back a bit happier.x

[CLKD]

Why would they be judgemental?  However ……… I hope that the Support Worker was apologetic after all, that's what he's being paid to be 

[tabbycat3838]

This is very true. They shouldnt be..and yes totally agree, thwt is what the are paid for. But you have to fight for everything these days.. And if you dont shout loud enough.. Well then you just fall through the net.its all very stressful :-/ x

[CLKD]

It's the same for most situations, my friend had similar problems in the 1970s to get support for her autistic child, the Statement gave suggestions but the LA wouldn't take them on board 

 

[tabbycat3838]

Trying to get  a child statemented is a nightmare, and even then you still have to fight constantly to get them the help they need and deserve.
The system is completely topsy turvey these kids, the ones who dont get the help they need often end up iff the rails, with drug problems and or in prisons and dc,s. This costs the state god knows how many millions or billions in the long term.all things that could be prevented with the right guidance.
Parents are exhausted by the pressures of life, and many dont know how to fight so the kid just falls through the net as i said.its disgusting.
I believe that my son may well be dyslexic but unless i pay for a test myself which costs hundreds, we probably wont find out.x

[CLKD]

Why do you have to pay?  Surely there is a 'society' for Dylexic diagnosis?

[Suzi Q]

Hey suzi :-) thank you for replying.. :-) The palps were horrendous, ive always had them and they never bothered me at all untill then, i felt like i had elephants running around in my chest lall day every day.. Very disconcerting.were /are yours like that too?if so i feel for you!
Whats btests suzi?is that b12? I think mine are ok now but used to be very low.
Thankyou re my son, I just see him slipping, no, hurtling down that slippery slope and it makes me angry that tjhere seems to be nothing i can do.i am not the right person to help him anymore as he hates my guts and just doesnt want to listen to me at all :-( any suggestiions i make are just discarded and i am all the *****  under the sun at the moment.
Oh and re the palps i took the patch off about three weeks ago and they have been on the decline since then, everything feels virtualy back to normal now bar the occasional gentle flutter.x

They put me on Inderal 40mg I took one and the skippies went but I felt dreadful
So I cut it in half and stopped but still felt hmmm took 1/4 and although it took longer to ease I felt better
If its bad I do take a small half for a day or so then cut back to 1/4 till it goes mine are like attacks
I dont use Betas maybe more than 6 weeks in a year and not all at once I took a 1/4 the other day skippies went
Havent taken another? Though today my pal was off weird argumentative picky and with in hours I knew
Id be bad tomorrow but I will wait see how I am. Its all stress Bobbles is stressed at work hes also doing engineering now as well as International sales and marketing they are pissed hes taking a month off from  a week on GTuesday but for the last 9mnths theyve been paying all managment 4 days pay or 5 days work they
Bloody owe us imagine how many people would take a 20% drop in wages yet still do the same job
Now the Firms enginneres retirred did they give Bobbles back his wage using the retired guys wage they dont have to pay NOPE and not only that BUT theyve put him in charge of th Factory too now and engineering
All for 4 days pay which affects the companies super contribution wages and holiday pay  IMO they are taking the
PREVERBIAL XXXXXXXXXXXxxxxx

[tabbycat3838]

Hey suzy,  yeah that sounds like a nightmare, i wonder what the system is like over there'do you have nhs type thing  or is it like the states?
Is bobbles your hubby?lol i agree that stress has a MAJOR part to play in things and is quite incredable the effect it has directly on our bodies, especialy financial stress for some reason.
 Mainly all of the stress ive been dealing with the the last couple of years has been severe financial pressure and ive never been so sick because of it.i truly believe that prolonged relentless stress depletes the body not only of vital nutrients but hormones too.i believe strongly that i had been beggining to burn out for some time before i was diagnosed peri and that this is what triggered it.theres absaloutely no doubt in my mind about that.
Things are extremely difficult with austerity for most working people.people are actually bloody killing themselves here, its horrendous.
Do you think things will get better for you? I hope so x
The doctor tried to get me to take a beta blocker, but i refused saying i wont take anything untill i kniw whats wrong with my heart OR whats underlying .i had had several episodes of tachy a cpuple of years ago bought on by swimming, and then had two ecgs show a very minor prolonged qt which i was told not to worry about and to just get on with stuff (easy for them to say) no explaination, juat go away.then the relentless ectopics  began.a few weeks ago. They were so powerful and relentless my chest felt sore! Anyway, i treated myself, took the hrt off(which by the way leaches minerals from the body) and upped my pottassium and calcium and magnesium amongst other things and within a week.. They were,starting to calm down.this,was,about 3 weeks ago and they are all but gone, just occasional and very very mild.
We have to be our own doctors suzi 😔 we really have to be our own doctors.xxx

[tabbycat3838]

Ckld, i dont know,why you have to pay for a test, its just the way it is. It costs hundreds apparantly.my son shows classic signs, at 14 when i took him out of school he couldnt tell me the months of the year in order OR his alphabet!!he has also always struggled to read an analougue clock face.
All this the school never noticed??crazy....x

[Suzi Q]

Hey suzy,  yeah that sounds like a nightmare, i wonder what the system is like over there'do you have nhs type thing  or is it like the states?
Is bobbles your hubby?lol i agree that stress has a MAJOR part to play in things and is quite incredable the effect it has directly on our bodies, especialy financial stress for some reason.
 Mainly all of the stress ive been dealing with the the last couple of years has been severe financial pressure and ive never been so sick because of it.i truly believe that prolonged relentless stress depletes the body not only of vital nutrients but hormones too.i believe strongly that i had been beggining to burn out for some time before i was diagnosed peri and that this is what triggered it.theres absaloutely no doubt in my mind about that.
Things are extremely difficult with austerity for most working people.people are actually bloody killing themselves here, its horrendous.
Do you think things will get better for you? I hope so x
The doctor tried to get me to take a beta blocker, but i refused saying i wont take anything untill i kniw whats wrong with my heart OR whats underlying .i had had several episodes of tachy a cpuple of years ago bought on by swimming, and then had two ecgs show a very minor prolonged qt which i was told not to worry about and to just get on with stuff (easy for them to say) no explaination, juat go away.then the relentless ectopics  began.a few weeks ago. They were so powerful and relentless my chest felt sore! Anyway, i treated myself, took the hrt off(which by the way leaches minerals from the body) and upped my pottassium and calcium and magnesium amongst other things and within a week.. They were,starting to calm down.this,was,about 3 weeks ago and they are all but gone, just occasional and very very mild.
We have to be our own doctors suzi 😔 we really have to be our own doctors.xxx

Hi Tabby the ozz system is very different for one thing no such thing as testementing Parents with kids with disabilities of that kind are B....d unless they have Private medicine. It can cost 34.00 pounds just to see a GP
Theyve only JUST introduced disability pensions @they are tested by Gov Doctors Not by ur own.@means test 
Its very low as is carer allowance. No special hospitals like Stoke Mandivile they dont exist. Things u dont even give one moments thought too dont exist here like Free scripts over 60 or poor people no free travel passes(Bus)
If u go to hospital its free just like home BUT we dont have walk in centres so its Casuality@no limmit on wait
Ozz is facing a huge problem the BABY BOOMERS or GREY ARMY they never thought to provide for them
Ozz govs of all kids live in the moment they very rarley plan for the future times 3 yrs in Gov not 5
So they are always in election mode and so never look to the future they dont want to upset anyone
Ozz is very much in some ways like USA the Health system is a bastadised form of UKs national health
You pay a % of your pay towards Medicare which is National health BUT if u need a Btest u have to pay $100ish
U will fill a form and get maybe $60 back but you have to pay upfront so we dont go to GPs anything like UK.
I know this by lots of people on here and my own family Im lucky if I go to see a GP more than twice a year
aS FOR YOUR heart stuff u are right if uve defo had heart probs to see someone BUT they probably would give you Betas to syncrinise the beats. I was terrified I woke up one morning and felt it and Bobbles (Geoffrey) listened and went asap rang GP up he put me on Betas that day before tests and with in 3 days they were gone
I was amazed so much so that GP said no tests we know whats causing it later on I had ECG and GP not mine said OH uve had a heart attack I rushed to hospital private and they did tests on the spot and said BOSH your hearts fine. Why cos in Ozz like anywhere u get dishonest poeple this GP charged the National health over $500 to do my test in his surgery. BUT u can imagine the fear I felt especially as my MUM had recently then died
Of a Stroke and heart attack IMO we do know our own bodies OK not better than GPS etc but we know when a thing doesnt feel right xxx

[tabbycat3838]

Suzi that all sounds pretty terrible to be honest and how freeky for you about being told you had had a heart attack!i take it you hadnt actually had one'thats exactly what scares,me about doctors. They get things wrong...alot... They have with me several times over the years.i have very little fsith left sadly x

[honeybun]

My son is dyslexic, diagnosed at 8years old.

The school did all the testing that was necessary. When he got to secondary school he was reassessed by Learning Support and measures put in place to help. As I said before he eventually went to university so they can be helped. It's so unfortunate that this was not spotted in your son years before. He will be angry and frustrated at school. It's not too late if you get school on board now. My son even got extra help at uni....a special grant to buy equipment, extra time for exams, a scribe if he needed one. Colleges I would imagine do something very similar in the way of help. Can you call your sons school and ask if they will do the basic tests.
We did consider getting the private tests done but we're advised against it by school. They said it would give them little more information than they already had.

Your poor boy, it's amazing how many kids slip through unoticed, and they get very good at hiding the fact they are struggling academically by behaving badly and skipping school.

I really hope you can get something sorted for him before it's too late and he leaves school.

I had to fight long and hard for some of the help my son eventually got. If your prepared to do that then things hopefully will get easier for you both.

Let us know.


Honeybun
X

[tabbycat3838]

Thankyou honeybun
What kinds of signs did your boy have? My son has no problem with reading at all. But his writing, grammer is juat really really bad. Also like i said, he has problems with the alphabet and months of the year even now at 15!I he gets them all muddled up. He can however go on the computer and mix music.. Really good music, which involves quite complex sequences and stuff.
He is not in school.. Unfortunately i took him out because of his truanting and me being repeatedly fined and bailliffs banging on my door, dispite my many meetings with the school.it was around the same time as i was beggining to burn out.and of course he was refusing to goi was trying to keep an extremely stressful job togeather also so i juat felt like i had no option.
He is however going back to school now so he will be able to access college and hopefully other support.as a home educated child he is intitled to absaloutely nothing. Hours on the phome to various authorities have proved that.
I completely agree with you about the frustration and lack of confidence and acting out and things.
Its encouraging that your son seems to be doing well now tho, but like you say.. You have to fight!
X

[honeybun]

My son is both word and number dyslexic. He could not learn times tables, he could not copy things down from a blackboard. He cannot to this day tell the time except on a digital clock. He can't read a timetable for a bus or train without a great deal of effort.

They teach them how. There are all sorts of techniques. Highlighting things, larger gaps between sentences. He always used a calculator in school as otherwise he could not count at all.

This was all a long time ago. My son is nearly 26 now so things will have moved on.

All I can say is that with the correct help he went to uni and got an honours degree in Computing Science.
He says his brain works differently from other people's, not less well just different.

Most dyslexics are really very clever at something. With your son it sounds like his music. With mine it was computing and physics . The real secret is to find the one or two things they are good at and encourage them towards that. The confidence in themselves then starts to grow.

I hope you can get some help for him.


Honeybun
X

[tabbycat3838]

There definitley seems to be some similarities there doesnt there honeybun?my son is the same, can read a digital clock but not a clock face.i dont know about your boy, but mine has also always seemed slightly uncoordinated too and he really really struggles,with small fiddly tasks.he is quite shaky and seems a little disorientated in time,and space if that makes sense'dyspraxia?although he was very young to walk and ride,a bike no problem at all.i know that alot of dyslexics are highly intelligent, my dad is severely dyslexic but is a very skilled joiner who can create beautiful furniture and doesnt struggle with measurements and stuff yet cant spell my name.
I will be incredably pissed off it it turns out my boy has this issue as weve been through so much crap with the system, courts etc.believe me i will create merry hell!!
I agree with you completely about encouragement, and ive always encouraged him with his music.we sometimes mix stuff togeather as in i give him ideas, he creates it.. Lol that stuff looks like a foriegn language to me!
Thankyou so much for your feedback honeybun and i bet your well proud of your son.. You should be,i have friends who have been through it all with their kids and they are doing amazingly. i know what a struggle it is to get them the help they need  x