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[CLKD]

I would count the area being less painful as a success!

[CJ-sleepless]

I hope so CLKD - I wouldn't worry if I had to do it all again, but would rather not all the same.  Another 2 weeks before it reaches its full effect so hoping it will improve further.  Been walking a lot to increase blood flow to the area - and feel much better for it too 

[CLKD]

That is such good news!

Little steps 

[CLKD]

Sorry that your procedure hasn't given you the relief you hoped for.  Maybe because the coccyx is a moveable area it doesn't get the change to rest.  Back to the cushion for you then? 

Sometimes mine nips following trauma when I was 11-ish.  Fortunately though those nips don't last!!!

Let us know how you get on after the 8th!  Hopefully you will be given some anaesthetic before the injection is inserted.  Will someone drive you there and back? Perhaps buy a 'ring' to sit on, similar to what kids swim in???

[CJ-sleepless]

Thanks CLKD - I've got so many cushions, rings etc, I could set up a shop!  I'll be having steroid injections again - similar to before with local & sedation - but this time they are going to inject directly into the nerve root.  I've been given exercises to correct my sitting posture also, as its apparently not quite right after sitting awkward for so long - hardly surprising.  Its got to the stage where I find it hard to be comfortable even lying down now - I'm heartily sick of it!  Seems I cannot take any painkillers containing codeine or similar now either, since having my gallbladder out - something called sphincter of oddi dysfunction - gives me the same pain I had when I had stones - couldn't make it up!  Not yet found a painkiller that works for this - so really hoping this next round of injections works!

[Maryjane]

I have been reading your thread.....I also have a condition that makes sitting challenging it's called pudendal nurelga.....anyway the reason I am replying is I have been offered nerve blocks and after much research turned them down.....nerve blocks for joint arthritic pain is understandable......but directly aiming for the nerve root is not a good idea, this can irritate and permanently damage the nerve.....which nerve are they aiming for?

[CLKD]

Is this so different from the producedur e that a dentist will do in order to kill a nerve to a tooth  maybe ask your Dentist if there is a difference ?

[CJ-sleepless]

Thanks for posting Maryjane - I've contacted my surgeon this morning after reading your post as I was alarmed!  He has reassured me he's not "blocking" any nerves - it is routinely referred to as a nerve block, but in fact its steroids they are injecting as the area is very inflamed.  My coccyx itself is much better, my problem now is a little higher up where just above where the coccyx joins the sacrum and this is the area they are concentrating on this time.  I am reassured, and he's top of his field I am sure he knows what he's doing.  If it was manageable pain I would refuse also, but I can't live like this.

[CLKD]

Hopefully the steroid will ease symptoms. It's a good drug when used in the 'right ' places.  Eases inflammation! Are you able to lay face down in the sunshine today? warmth can help symptoms too.

[CJ-sleepless]

Had my lower spine "seen to" last week.  It's been very sore, but I'm hoping this is a good sign, and the right area has been treated this time.  I'm signed off work, I think I went back too soon last time, didn't give myself enough time to heal.  Everything crossed.

[CLKD]

Are you string on a 'ring'?

One of the Pro cyclists dislocated his coccyx on Sat. 

[CLKD]

Any improvement?

[CJ-sleepless]

Hi everyone.  I'm sorry I've not posted an update -in fact not been on the site much at all lately - I hit a pit of depression I couldn't shake because the last lot of treatment for coccyx didn't work - again - and I just lost the will....I know you ladies know where I'm coming from - the despair...

Anyway, today there is some light in the darkness.  I've been having physio, but my usual lady has been off (ironically having back surgery).  Today I saw her again finally, and she read my mri report.  My coccyx is mobile and off to one side, inserting into the tissues and causing swelling and therefore the pain.  Immediately she said we should look at your pelvic floor.  Turns out the I have significant scar tissue inside from previous surgeries and the muscles on one side are extremely tight, which she was able to release - sat down afterwards - no pain!  After all this time it seems it might be gynae related after all!  She also noted how dry I am, and recommended I get vagifem which would likely also improve things.  Its all starting to make sense - all this started with the menopause... its like a million light bulbs going off in my head!  My pelvic floor technique is good apparently, and strong - but because of scar tissues I'm all lopsided!

Anyway ladies, sorry for the ramble, I just wanted to shout it out!  Months of pain have left me in total misery, and fingers crossed this might be the answer.  Is vagifem prescription only?  I'm assuming so.  I wonder if I'm taking enough oestrogen - how on earth do you know?  I assumed I was on the right dose once the sweats stopped, but is there any other way of knowing?

[CLKD]

I read an article in Saga last night and thought of you: it was suggested that the coccyx be removed surgically but that doesn't always improve pain, well your discovery may well be the reason!  Well done on your Physio having a light bulb moment!

Sorry that you have been in the pits, pain is so debilitating. 

There are several local HRT for vaginal atrophy, Vagifem can be useful so have a chat with a Pharmacist or your Practice Nurse - it is on prescription.  Glad to hear from you 

[CJ-sleepless]

Sorry, but I need to vent  I've reached despair with this damn coccyx pain.  Saw the surgeon yet again - basically nothing more he can do.  Wants to refer me to pain management - which far as I can tell involves "its all in your head get over it" techniques, more injections into areas I don't want to think about... I've just had enough.  Still pursuing the pelvic floor theory with my physio - but having had a session yesterday, I'm in terrible pain again today.  I've tried every painkiller the GP can offer and nothing works.  Currently on pregabalin but thats not working either.  Occupational Health at work now involved since I keep crying at work with the pain - there's talk of a sit stand desk - which would help but they can't fit it into the office where I currently work... not sure where that leaves me.

Clearly I'm depressed as well, but can't find an AD that doesn't make me feel worse than the pain.  I know there's nothing anyone can say that will help, or that hasn't been said before, but I just needed to let it out.    Prevents another bout of crying in the loo.  Thanks for listening, I'll go back to my cushion now...