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[Hattie]

Oh 

I will send you a personal message in a minute with my email - it should show at the top of this sceen that you have a message.

Glad that the timodine is helping and i would be interested to know what your physio thinks.

Hattie X

[Judith57]

Please post back after your physio on Monday Midnight Shadow, I am very interested to hear what she thinks. My partner lives very close to Grantham so I would certainly be willing to make the trip up North, still searching for that miracle cure.......

[Midnight Shadow]

Sorry I have been a long time replying, it has been a very busy week at work. Went to physios last Monday. Not Pudendal Neuralgia, which I was very pleased about. Would apparently have pain extending all over feminine area and into my bottom end which it is not. She was very understanding but agrees with my Doctor that it is all Menopausal and VA. Physio agreed sitting certainly aggravates it, so will try standing when ever possible. Not so easy when you are hearing children read nearly all day.  Continued using my Timodine cream for a week which helped and am trying Vagifem twice a week as advised. Had two and a half really good days at work  Wednesday, Thursday and Friday. Not so good today, so used cream again. Suppose like other people suffering it is something I will have to live with.  Now trying Epsom salt baths, nice and relaxing and very soothing on the skin. Will keep you posted if I find a miracle cure.

[Dancinggirl]

My burning has been a bit better for the last couple of days. I'm using the Estring which has been quite good at keeping the burning away.  I found that the burning returned about 2-3 weeks towards the end of the last Estring's life. I've had the new Estring in for about 3 weeks now and I'm assuming the last one ran out of oestrogen and it's taken 2-3 weeks into the new one for things to get better again.  Not sure what I should do about this apart from ask for a new one earlier or maybe try using some Vagifem(I still have some left) when I think the ring is running out of oestrogen!!!
I am considering going back of full HRT -  perhaps a very low dose -  to see whether together with the local oestrogen this will keep me comfortable.
DG x

[Midnight Shadow]

Just ordered some vitamin e suppositories from amazon as they have very good reviews for VA. Will try them alongside my vagifem on the days I don't use vagifem. Remember my doctor recommending vitamin e. Will let you know how I get on with them. Fingers crossed?

[Dancinggirl]

I tried using Vitamin E capsules vaginally before going to bed.  Not sure it helped particularly but it certainly didn't do any harm - was very lubricating and soothing. 
Keep us posted.  DG x

[ancient runner]

Can I join you all in misery? Just been through a two week period with soreness and now continuing soreness, despite Estring (suspect like Dancinggirl I should have changed it earlier - am three weeks into new one). Like most of you sitting makes it worse, but last night I got quite bad pain which started in the middle of the night in bed. Doesn't help that I seem to get prickly and sweaty round that general area in bed at the moment which keeps me awake for hours. Can't seem to find any way of switching that off - even tried a cold wet flannel last night. Sigh.
Sore now. Working. Double sigh.

[Dancinggirl]

Hi ancient runner
I have heard from someone that the Estring sometimes needs to be changed earlier.
Are you using any HRT yet? It sounds as though you may be needing it now if you are getting that prickly creeping sensation at night and struggling to sleep - that's exactly what I get.  I'm seriously considering going back on HRT to see if the combination of a very low dose of HRT with the Estring keeps things more stable. My GP muttered that I could only use the Estring for 2 years - I assume because they still worry about the womb lining building up, so maybe I would need to have the occasional course of progesterone to make sure the lining is thin???!!
3 weeks into my new Estring I'm feeling much more comfortable but I got really hot gardening yesterday and then had a drive in the car and was burning a bit afterwards.
I just don't think any local oestrogen is enough on it's own for women like me.   At 58 and having had a premature meno, my bladder and atrophy issues are too far gone.   DG x

[Wanderer]

Good evening Ladies. Hi to all those from the pelvic pain thread! Midnight Shadow, just read your thread, and although I have Vulvadynia, it is not a burning sensation, as much as an irritation going right up inside to the cervix, and if you have read my very long winded posts about pelvic pain, spasms and IBS, you will know that, along with a number of other members, we are seeking the Holy Grail of Pelvic Floor Relief! I am now beginning to think I have a form of Pudendal Neuropathy, as I am now having weakness in the left arm and shoulder, and twitching muscles. My Gynae consultant thinks I should now see a Neurosurgeon, but I note that you say you saw a physio who helped you, where was that help? I have a Chiropractor who is understanding the link with all my pain, but I think is unsure how to treat it!

It is not always just pain, but a range of "weirdness" - weakness in odd areas, digestive disruption, weird head, and fatigue. I have had bloods done, and all is fine, so I was interested in your physio!

Many thanks.

WANDERER XXX

[ancient runner]

Hello Dancing girl
I fear you might be right - or it might just be that my Estring ran out of steam before I replaced it and thanks to a two week period then it's just taking a bit of time to get everything back to normal. Hoping so anyway. Sigh. Be interested to see what you do next. xxx

[TracyMac]

I was given Epaderm OINTMENT (not cream) by my GP which I use for soreness and also mix with water to use as a shower gel. It doesn't irritate me at all unlike other products. I also find an gel cool or ice pack wrapped in a flannel is a great relief when things get sore.