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Author Topic: My warranty has run out  (Read 15535 times)

Rowan

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Re: My warranty has run out
« Reply #15 on: August 23, 2014, 02:20:07 PM »

Must admit I have not heard of Menopace (estrace) only a supplement (which contains Isoflavones and Flaxseed Lignans) called that.

I think estrace is generic and a vaginal cream and available as a tablet also.

Hormonin available in the UK and contains Estrodiol, Estriol and Estrace. I was prescribed these after my Hysterectomy and use to take a quarter of a tablet.

Menostar is estrodiol and is a patch.

There are  many types of breast cancer not all fuelled by hormones, many women who get breast cancer have not taken HRT and you must remember that breast cancer starts at least 10 years before it can be picked up diagnostically. .

« Last Edit: August 23, 2014, 05:05:39 PM by silverlady »
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Dancinggirl

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Re: My warranty has run out
« Reply #16 on: August 23, 2014, 03:42:14 PM »

I meant to write Menstar - which is what I googled but estrace came up instead so maybe I'm getting the wrong end of the stick - sorry. I think Menstar must be under a different name here in the UK??!!  x
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CLKD

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Re: My warranty has run out
« Reply #17 on: August 23, 2014, 03:47:25 PM »

I danced from 8-18.  No aches or pains.  Never en pointe, teacher would not allow it unless the pupil was destined for the Royal Ballet School.  I saw Ballet Rambert in the 1960s ……. Copellia ……… a school project, vaguely remembered, was about ballet, I found it last year  ::) ……….
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Taz2

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Re: My warranty has run out
« Reply #18 on: August 23, 2014, 03:53:14 PM »

We talked about Menostar before http://www.menopausematters.co.uk/forum/index.php/topic,14117.msg243823.html#msg243823  It's a shame that it still doesn't seem to have been brought over to the UK. Well, I can't find anything about it anyway.

Taz x
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Rowan

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Re: My warranty has run out
« Reply #19 on: August 23, 2014, 04:16:46 PM »

I did read ages ago that it might be available but like Taz I have not seen it anywhere, I did once ask my GP about it and she looked in her "Book" but could not find it.
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Hurdity

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Re: My warranty has run out
« Reply #20 on: August 23, 2014, 04:46:55 PM »

As I reported back then (from the link of Taz's below) looking at the Menostar information, it is recommended to take a progestogen with Menostar.

Here is the information:

Generally, when estrogen is prescribed for a postmenopausal woman with a uterus, a progestin should also be considered to reduce the risk of endometrial cancer.
It is recommended that women who have a uterus and are treated with Menostar receive a progestin for 14 days every 6 to 12 months and undergo an endometrial biopsy at yearly intervals or as clinically indicated in order to detect any endometrial stimulation which might require further clinical action


http://labeling.bayerhealthcare.com/html/products/pi/Menostar_PI.pdf

Clearly, as the dose is very low, then any endometrial build-up will be less and therefore it is possible to take less progestogen - but interestingly even with this a biopsy is recommended - so please girls don't start cutting 25 mcg patches and applying them long-term without progestogen - unless you have access to private docs who can scan and test you regularly for hyperplasia.

I imagine it's not available here because of our different health-care system - I doubt NICE would approve a product which involved having an annual biopsy as part of the treatment due to cost. In US I presume this can all be arranged through the various private health insurance schemes at minimal cost to the women?  It would be good if something similar could be developed with progestogen as part of the prescription eg every 3 months or something - as a compromise, which then would lessen the need for biopsy.

In your case Dancinggirl - you may be able to persuade the docs to prescribe something like this (ie half a patch) if you really want it - and perhaps ask your GP to refer you to a meno specialist? Also I presume there is an equivalent in gel of this very low dose eg 1 pump or half a pump? I understand your feelings re HRT - and I completely agree - it is always a case of weighing up what makes you feel best overall, whether it's the type of HRT, or whether to take HRT at all. In some cases - eg with early menopause other factors come into play and even if the HRT or the progestogen causes side effects, then it's a case of what is best for your health overall ( but I understand well-being comes into it too - so if you feel rubbish then that affects your health!).

I do find long cycle HRT works for me - Ju ju I'll be interested to hear how you get on. I would love to go to a 3 month cycle but perhaps too nervous about the bleeds and the build up at this point so 6-8 weeks seems to work OK for me.

Hurdity x
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Ju Ju

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Re: My warranty has run out
« Reply #21 on: August 23, 2014, 05:25:57 PM »

At least I can schedule the bleeds. With kliovance, I was having all these break through bleeds. I get all the HRT free now I'm 60, but I make sure I see the doctor who recommended the gynaecologist I saw. I have to pay for testosterone. Of course, I pay for consultations with the gynaecologist, now I'm not working is not easy, but worth it. I'll see how this works for me. My sister died of breast cancer and never had HRT ( original cancer at age 45).However, she did have fertility treatment and was on the pill for many years.  Who knows why? No other family history.
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Dancinggirl

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Re: My warranty has run out
« Reply #22 on: August 23, 2014, 05:27:31 PM »

This Menostar sounds a possible alternative route - such a shame that it's not on offer in the UK. I suspect it's the same old story - there is no money to be made from this type of treatment so drug companies and researchers are simply not interested.
In a way there needs to be a lobby on the medical profession to give women more help with their hormones - probably too difficult to muster enough women prepared to fight for this . There are now so many different contraceptive pill options because women vary so much in what suits them - surely the same should apply for us at menopause.  I know we've covered this before somewhere and the general consensus was that there is quite a variety of HRT types on offer, so why offer more choices?! I still think there is a need for tailoring. 
Sadly GPs have so little knowledge of the different types of HRT so just glance at their little drug book and pick at random - we so often read how many women are simply given the cheapest option or given completely the wrong HRT altogether - sorry a bit of a rant.  :cuss:
I would love to go to my GP and ask for the regimes that one can get privately but they are restricted by the 'guidelines' or scared to prescribe because they don't know about it - you really shouldn't have to pay to get the quality of life you need.
Hurdity and JuJu are on regimes that are probably not approved on the NHS and would certainly not be routinely offered by a GP.
In my late thirties, when I was fed up with my lovely GP simply picking different HRT types out of her book and saying "let's try this one" I eventually went to a private menopause clinic in London. We certainly couldn't afford it but I felt I had no option. I had 2 young children, a very busy life and my son had been diagnosed with a primary language disorder and I needed to be 'on my game'. What a different story. I was properly assessed and given Oestrogel to use daily with progesterone pills(I forget which one) for 10 days per month - BTW this was 19 years ago.  They started me on just one quirt of gel per day and then tested me a month later.  This showed that my oestrogen level, at that stage in my peri meno, was just right on this dose. After about 3-4 years it then increased to 2 pumps per day - by then I had obviously gone post meno. I got some nasty period pains each month but because my oestrogen levels were right I generally felt great. To this day Oestrogel is not the first choice to be prescribed even though it is transdermal which is a better way to administer oestrogen and gives this perfect ability to adjust dosage - it tends to be the preferred choice given by private doctors!!!! It can't just be about cost surely because you can get Oestrogel on the NHS if you ask(or pressure them)!  Sorry, I'm getting really heated now - it makes me so angry that it's about privilege. You see - the NHS is supposed to promote preventative health measures and I believe a more positive approach to managing hormones and the meno -  using HRT in a tailored more holistic way, could possibly prevent a great many ailments and save the NHS a lot of money. I'll get off my soap box now  - I feel sooo much better.
If I do decide I want to go back on HRT and possibly extend my warranty I will raid the piggy bank and see a gynae privately to get what I want.
DG xxxxxxx
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Ju Ju

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Re: My warranty has run out
« Reply #23 on: August 23, 2014, 05:51:49 PM »

It is sad when going privately is the only option. I wonder whether some gynaecologists go into private practice because of the restrictions within the NHS. I have reason to be very grateful for medical treatment I have received through the NHS, but sometimes..... :bang:
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CLKD

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Re: My warranty has run out
« Reply #24 on: August 23, 2014, 06:07:23 PM »

I think that a Consultant can only 'go' private if they work part-time for the NHS.  Therefore if they weren't consulting on their days off they would be farming/golfing/walking/surfing  ;)

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Rowan

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Re: My warranty has run out
« Reply #25 on: August 23, 2014, 06:10:00 PM »

Another thing to think about is that women using vagifem or estriol only, daily, are already using unopposed estrogen, dosage 10-25mcg. Some can and do have some systemic effects of bloating tummy, tender breasts and sometimes headaches.

There is is no talk of opposing this therapy with progestin or progesterone even yearly.

Menostar is only 0.14mcgs a week! I think that must be less.,

DG Menostar is a patented hormone therapy made by the drug companies its just not on the list in the UK or sanctioned by the NHS.

Some more info  http://www.webmd.com/menopause/news/20040610/low-dose-estrogen-patch-gets-fda-nod

« Last Edit: August 23, 2014, 06:15:41 PM by silverlady »
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Lynjane

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Re: My warranty has run out
« Reply #26 on: August 25, 2014, 12:04:52 PM »

I think the analogy of 'guarantee is up' is perfect! One of the things I never expected to be an age related problem was, eye health! I'm short sighted so have never experienced the 'long arms' syndrome of not being able to read small print, but last year I woke up with an unusually large/dark/permanent eye floater! My optician told me that I had a torn retina and I had to have it repaired by laser immediately or my sight could be compromised..scary!!!😧 He advised that the jelly substance at the back of the eye gets more liquified as you age and little bits come away, usually harmlessly, and create the floaters! But sometimes they tear the retina as they break away causing serious problems, apparently you're more prone to this if you're short sighted, but ageing is the biggest cause, along with stress! So ladies, as we're ageing and stressed by the menopause, just another thing to loo forward to!!! >:(
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Rowan

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Re: My warranty has run out
« Reply #27 on: August 25, 2014, 01:30:33 PM »

Men have to put up with this too, floaters just come with the aging eye, mostly harmless and eye gets use to them so you don't see them.

A torn retina is something else and is an emergency, it can happen at any age.
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Taz2

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Re: My warranty has run out
« Reply #28 on: August 25, 2014, 01:31:53 PM »

Yes floaters affect both sexes as does age  ;D

My mum used to say "Old age is a pain but the alternative is worse" which is very true!

Taz x
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Ju Ju

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Re: My warranty has run out
« Reply #29 on: August 25, 2014, 03:28:37 PM »

A few years ago, my daughter had a lot of floaters developing over night, so we went to A&E. Because of her age she wasn't taken seriously, until she produced a picture she had drawn, of what she had seen the night before and what she was seeing now in the morning. She was then taken very seriously. We had to wait several hours before a consultant could see her, as they were in surgery. As it was, it proved not to be serious, just jelly becoming detached, but her retina was fine. Scary though.
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