Hello all,
I found this place via Google and I'm really glad I did!
My name is Sassy, I'm 35. I had a total abdominal hysterectomy and my ovaries removed in March due to severe endometriosis. My gynae said it was the worst case of endo he's seen and it took 3 surgeons over 6 hours to do the op as all of my pelvic organs were fused together and I had 2 huge blood-filled cysts in my ovaries. One of them had wrapped around my bowel like a parcel. They had to completely disect all of my organs, my appendix was in such a bad state that came out along with my womb, cervix and ovaries!
To make things even more complicated I also have ME and because of this I got a DVT in 2010 as I'm on the severe ME scale and mobility is very poor. This has affected my HRT options considerably.
I was discharged from hosptial on the estrogen only Evorel 50. I'm not doing too well on them, I still have really bad hot flushes (15+ a day) which wake me up in the night and I have a pretty much permanent niggly headache and some patches just don't stick at all, I'm still trying various places, my bum being the current which is going better than thighs but still not great. Again due to my DVT history pill forms of HRT are not possible.
I spoke to my GP yesterday about it all but because of my previous DVT my choice was an increase to Evorel 75 and an even higher risk of a blood clot or to stick on the 50 and ride it out.
Because of my ME I'm already at an increased risk of another clot so the best option seemed to be to stick with the 50 and ride things out
All of this is really affecting my ME as my flushes are waking me up in the night and therefore affecting energy levels and right now I just feel rubbish. I've left the house 4 times since my March 12th op and each time it was for medical appointments because I simply don't feel well enough to do anything else!
I have my 3 month hysterectomy check-up at the hospital in a couple of weeks so I'm going to talk to my surgeon to see if he has anything to say about my HRT, I don't know if a different brand may help?
Phew, that turned out to be a bit of a long intro, if you're still reading this well done!
I'm looking forward to being in this community, it seems like a really great support network!
Sassy