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[honeybun]

Hi grumpy.

All your news seems to be so positive which is wonderful. It's great you are healing well this time and as always an inspiration to us all.

Keep posting as like CLKD I was thinking of you the other day and wondering how you were.

Your posts will be such a help to others so if you can, keep us up to date with how you are doing.

Sending you best wishes.

Honeyb
X

[CLKD]

Tamoxifen is different to 'general' HRT .......... make that list 

[grumpy2008]

Sorry CLKD, when I mentioned 'hormone therapy' I meant it in relation to cancer... it would probably be tamoxifen for me (pre-meno), although I met a woman at the clinic who was taking an alternative and she was pre-menopausal too. I've always been warned off HRT/oral contraceptives and so on.

Shortly after my previous post, my period started... a week late... which might explain some of the anxiety I was feeling 

I've been looking for information about mucinous tumours. There doesn't seem to be as much information out there as there is for the more usual types of breast cancer. I have a LOT of questions for the oncologist!!!

[CLKD]

   ......... My Consultant asked me to have a list ready for his visit every morning - but he explained things so clearly that I didn't need one!

[Taz2]

Have you read the information on the Breast Cancer Care site Grumpy - there is a section on mucinous breast cancer http://www.breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/primary-breast-cancer/types-primary-breast-cancer/mucinous-breast-cancer

Taz x 

[lily]

Good to hear about your progress grumpy, you're doing really well. 

[grumpy2008]

Thanks everyone! Taz, that's a useful link, thank you... I also like the breastcancer.org website, which has some information too, plus a forum thread about mucinous breast cancer (it's long and takes a bit of reading!).

I received a copy of my surgeon's letter to the oncologist today. There seems to be a mix of tumour types... that's why I have questions for the oncologist. It makes a difference in terms of treatment  . Less common tumours (eg mucinous) are not so easily identified, so I want to be doubly sure they know what they're dealing with!
 
But I don't want them to think I'm an awkward patient in any way! It's important to have confidence in the diagnosis, isn't it?

I'm a bit frustrated today because my arm mobility is still slow progress... I pushed the exercises yesterday and paid the price, with increased pain and tightness! I'll keep taking the pain pills lol  .

[CLKD]

If you don't ask you don't get!  "Can you explain fully what we are dealing with?" might be a way to begin and will you have someone with you to take notes?

[grumpy2008]

That's a good way of asking the question CLKD...

As usual, my husband will come with me. I'm borderline for chemo, apparently, so that will probably be the main focus for discussion.

[CLKD]

Sometimes I need to go back to my GP if I think he's avoiding the subject or if it appears that he is having a bad day.  I go in and like a dumb blonde  start off by saying "I was probably alseep last time when you were explaining, either that or what you told me when straight through!".  That way he doesn't feel I'm getting at him and I can show him the list that I need sorting through.   

Feet up this evening?  Nowt on TV  ....... 

[grumpy2008]

Hi, just thought I'd pop in with an update... 8 weeks since my last operation and I'm getting back to 'normal' (whatever that is!). I'm not doing chemo. I had some further tests done (oncotype dx) that show I wouldn't get much benefit from it and I'm at low risk for recurrence of the cancer. I am facing radiotherapy though, and will be discussing that with my oncologist this week.

My doc was keen to get me started on tamoxifen (menopause, here I come) but I wanted to wait till I knew if I was doing the chemotherapy (there's some interaction, I believe). Anyway, my usual pre-meno symptoms have come back now that I'm off painkillers etc... hip/back aches, indigestion (I gave up with the probiotics while going through treatment and the chest twinges/reflux are there again) and rampant anxiety...

So I'm guessing once I start the tamoxifen it'll either get better, which happens for some women, or much, much worse :-/. You might be seeing more of me in other parts of the forum!

I hope everyone is doing ok and just wanted to let you know that I'm fine and coming to terms with what's happened .

[CLKD]

 

I had radiation treatment - every week day for 4 weeks - well 4 and 1 day 'cos mid-treatment the machine broke down 
I met some lovely people in the waiting room.  We were told to wear a hat and NOT to sit in the sunshine at all.  Not to lift anything heavy.  I have 3 tatooes    where the radiation beam was aimed at each session: I was given the option of those or a blue pen - which meant I would have been unable to wash for 4 weeks .......... 

Apart from mild 'sunburn' where the beam was working it's magic I felt OK.  It was a very hot summer so any tiredness I put down to the weather.  My treatment was at noon I would be home by 1.30 and pussies, dog and I would head for bed for the afternoon - if I were late going up, the Siam would stand half-way up the stairs and meow  .........

I was also advised not to be with old people or very young babies for at least 4 weeks after treatment stopped. 

[grumpy2008]

Thanks CLKD, it's good to hear about your experience, which sounds largely positive? I have some concerns but will quiz the oncologist when I see her. I didn't know that bit about avoiding old people/babies for a while afterwards... it's a shame because I've hardly seen my 85-year old dad since all this started, and I don't want him to think it's personal!

I think it's going to be a 3-week regimen. Will be glad when it's over!

 

[Elena]

Hi Grumpy

thanks for the update, it sounds as if you're doing really well

[Dyan]

Hi Grumpy2008

Glad to hear you're doing well.
Thanks for letting us know.
  Dyan X