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Menopause Matters magazine ISSUE 78 out now. (Winter issue, September 2024)

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Author Topic: Chronic fatigue/fibromyalgia book?  (Read 4666 times)

Jules

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Re: Chronic fatigue/fibromyalgia book?
« Reply #15 on: January 22, 2024, 10:34:41 AM »

Ok.  I was diagnosed in 2002. I don't get it as severe as you described anymore. I rarely get the hideous leg pain I had for years but I always have a level of fatigue, usually i can function, i live alone so i have to, but sometimes I get a worse spell when I worry I'm going back to the dark days. Now that I don't work, it's made it easier to manage, I can reduce my activity and keep my head above water till it passes. It was very hard when I had to work.  During the lockdowns I was walking 3 miles a day and 5-8 miles once a week. I'm barely doing anything now, partly due to the weather but I need to get active again. Stress has the biggest effect on symptoms and takes longer to recover from.
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SarahT

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Re: Chronic fatigue/fibromyalgia book?
« Reply #16 on: January 22, 2024, 07:33:43 PM »

Hello Jules

I think I must be in the early stage,  so maybe that's why it seems more severe at the moment, mix it in with the fibromyalgia symptoms and it's a bit of a disaster. I don't go out to work as such, so like you, it's easier to be a bit active, then rest etc, or take those odd days where it's more rest than anything.
So far, it just hasn't got to a more manageable stage yet for months, the fatigue,pain and stiffness stays at a bad to worse level. But I'm hanging on in tnere!

Hoping to get some real advice soon from the chronic pain clinic as to managing the symptoms.

Like you stress has played a bit factor. As well as a bad time with peri, my mum died, and I dealt with all the legal stuff, my husband got skin cancer and the cfs\fibro symptoms had a field day. I think my head is pretty much coping now after some counselling so need the physical side supported now.

Still, taking each day as best I can. I hope you manage a slow gentle approach to fitness soon. Like me, the 5 mile hikes may be out,but we can do gentle walks on the good days, and benefit from being outdoors. Also a little light exercise indoors too. It makes me feel better and too to stretch those aching limbs.
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Jules

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Re: Chronic fatigue/fibromyalgia book?
« Reply #17 on: January 22, 2024, 08:03:49 PM »

I had a good walk today. Probably pay for it tomorrow. I was referred to a ME clinic but id had it 10 years by then and back at work soldiering on. I'd waited 3 years for an appointment.  It was utterly pointless. 
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Summerwyc

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  • Posts: 8
Re: Chronic fatigue/fibromyalgia book?
« Reply #18 on: October 07, 2024, 02:46:07 PM »

I understand Jules.

A.gp I spoke to speaks of boom and bust - such as seen by your experience in following advice to exercise far more than your own bodies capabilities, then the body crashes further.

I do wonder if I was misdiagnosed with ME 30 years ago and it may have been fibromyalgia all along? But many conditions have overlapping symptoms so at the end of the day it does for me become doing the best for each symptom whilst keeping a balance for the entire body. Given that upsetting one thing has a trigger to something else. I just need to learn and go carefully and slowly.

I have total acceptance of this. It's happening so I find the best way to deal with it.  For me, I find websites help to gain information but I just dip in. I never immerse myself in them as it would clearly mess with my head and emotions. So I take what info I need from webs and only look at applying any tips to myself if I feel.it is suitable. It's another huge change in my life and I am adapting to it.

Jules, I do say to my husband much the same thing. I have X amount of energy when I wake up. Once that's used, that's it,  no more in the tank.

Are you able to rest outside of work? Viral infections are hard for anyone to get over, but with chronic fatigue it's 100 times worse. Do take care.
And thanks
I agree, pacing yourself and managing energy is really important!
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Cookie25

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  • Posts: 252
Re: Chronic fatigue/fibromyalgia book?
« Reply #19 on: October 24, 2024, 10:41:34 PM »

Hello Ladies

I too am a sufferer of chronic fatigue or me but have never had a diagnosis. My GP does not know of anyone to refer me to and neither do my local private hospital.

Can you tell me how you got a diagnosis and got help please.

Many thanks
Cookie x
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