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[CLKD]

Any updates Girls?

[Lyncola]

Thanks for asking CLKD,

After being moved up to 20mg off Amitriptyline and having 13- 25 facial pain and headaches per day. I had my ENT appointment and expected to be moved up on 30mg or something. Well my ENT specialist decided that it wasn’t working and took me off. I’m now taking Pregabalin (which is a nerve blocker) been on it for a week, and now getting 70- to over 100 facial pain and headaches 

Going by my doctor I have to allow 4-6 weeks for it to work. Then they will up the dose. If it doesn’t work I’m making appointment in August for a neurologist. Yesterday I got to talk to my doctor about what neurologist I want. I’ll pointed out how much worse I am without Amitriptyline. She agreed and said must of been doing more then we thought. I asked her if the new medication doesn’t work and the neurologist can’t help me, could I go back on Amitriptyline. She said yes that she would allow me to have it. I told her I didn’t understand why Dr Qu He didn’t up my dose of Amitriptyline. She told my she agreed with him about the level I was on. And that the benefits of Amitriptyline must outweigh the negatives.

Will keep you informed, hopefully Pregabalin will kick in, if not I’m happy to hear my doctor will let me go on Amitriptyline again.

Hope your feeling better shrosphirelass?

[shrosphirelass]

I'm so sorry to hear you are feeling so bad Lyncola. I do hope the meds kick in soon. I know my sister has been on 50mg of amitriplyline for years so I'm surprised they didn't try you on that.

I have been quite good. For the last couple of weeks my pain level has been at a discomfort level and truly wonderful. However, yesterday I got that naggging toothache feeling again. I'm hoping its neuralgia aggravated by hay fever.

Ive had one root canal completed (and waiting for a crown) and have the first second part of 2nd root canal; (which is a reroot treatment as the 1st dentist missed one of the roots) scheduled for early July. By the time all my dental treatment is finished its going to be September and hopefully I will be pain free.

I'm still taking 10mg amitriptyline but don't thing it makes any difference. For me I'm convinced its all dental realted and my next course of action is to have the tooth out if the pain continues.

Thanks CKLD for asking and let us know how you get on Lyncola. I really feel for you, pain is just dreadful.

[Lyncola]

Update

How are you going shrosphirelass?

My update is my wisdom teeth did after 8 weeks get better and stopped hurting me. My headaches and facial pains are still on going, I’ve hadn’t had a headache, facial pain free day since October 2020.
I’m now on 87.5mg off amitriptyline. On Christmas Eve I will be on 100mg, the highest I’m allowed to use. I thought it was improving slowly with an average of 10-15 per day. But the last four days has been backwards. This does happened to me, I get three days of what I call sinus pains, but my doctor and neurologist say it isn’t sinus. The pain runs down my cheek and puts a pain through the top of my front teeth. That started in August the pain in the mouth had my dentist look when I was complaining about my wisdom teeth and she said there’s nothing wrong there, could it be sinus?

Anyway I’m going back to see my neurologist in February ( was supposed to be about now, but couldn’t get an appointment until end of January, and then on Thursday they rang up and said he having the day off and moved me to 9th of February).

So I thought I would update everyone and see how you all are going?
Big hugs from Australia and Merry Christmas 
Lyncola

[CLKD]

Facial pain is awful  .  I had neuralgia for several months in the 1990s and Amitriptyline made no difference.  I can still feel the area where the stabbing pain ended up, it's like a bruise.

After all that while I would,  in the New Year, stop taking it. 

[Lyncola]

Pain feeling better today, I know what you all are saying about coming of amitriptyline. But before I went on it I was about 70-100 times a day at least. Now I’m about 8-14 on a good day, with a bad about 5 days a month, where the pain is constant or about 25 times a day. So I am better on amitriptyline then off.

He did put me on a different medication, it made no difference, thank god. I did research on the medication, you only supposed to take it for two weeks. And it’s supposed to help heal broken bones. Plus it affected my IBS big time. Why would he put me on medication that you are not supposed to take for a long time. The risk was heart attacks. Silly man.

[shrosphirelass]

Sorry things are not much improved Lyncola. Ive been good, my issues are teeth related mainly though I do think that stress causes a big part. I get twinges and they are often after episodes of stress and I think maybe I clamp down and this causes the pain. I also get dreadful stomach pains which are stress related.

I am having my crowns done in February and hoping that this doesn't unsettle things. The dentist suggested this was a possibility. Anyway, I hope you manage to have a restful Christmas and Seasons greetings to you all.

[Lyncola]

Glad to hear your doing better shrosphirelass. Merry Christmas to you and I hope all goes well with your crowns in February