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Menopause Matters magazine ISSUE 63 out now. (Spring issue, March 2021)

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Author Topic: Trigeminal neuralgia  (Read 651 times)

shrosphirelass

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Re: Trigeminal neuralgia
« Reply #15 on: February 09, 2021, 05:27:06 PM »

Hi Shropshirelass, when I was diagnosed with TGN the dentist (an experienced one) had done all necessary treatment, X-rays etc that she possibly could then referred me to the GP who correctly diagnosed the TGN. (GP did say prescribing correct drug could be tricky and take an exact note of name+dosage of meds I tried. Luckily first drug was ok but it took a month to find the correct dosage. Twice while on holiday (yeas ago!) I hadn't packed enough so for last 4 days I rationed myself to 2 daily instead of 3 - by the time I got home my mouth was throbbing and I won't ever do that again!)
When I thought I had TGN on other side of my mouth, I phoned (new) GP (Lockdown rules by now hence phone call), told him and within 2 sentences he said to go to dentist as it sounds like a tooth decay problem. Dentist diagnosed infection on phone,2 lots of anti bs and no more pain (no further treatment required! Hurray!!)
          This will get sorted Shropshirelass, hope it's soon xx

« Last Edit: February 09, 2021, 05:29:29 PM by shrosphirelass »
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shrosphirelass

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Re: Trigeminal neuralgia
« Reply #16 on: February 09, 2021, 05:28:28 PM »

Have you looked at the UK support group for trigeminal neuralgia?  Do you have to travel far for the appt.?

The referral is for a specialist dentist not for TGN, ruling the tooth out first.
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shrosphirelass

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Re: Trigeminal neuralgia
« Reply #17 on: February 09, 2021, 05:30:13 PM »

Have you looked at the UK support group for trigeminal neuralgia?  Do you have to travel far for the appt.?

The referral is for a specialist dentist not for TGN, ruling the tooth out first.

Hi Shropshirelass, when I was diagnosed with TGN the dentist (an experienced one) had done all necessary treatment, X-rays etc that she possibly could then referred me to the GP who correctly diagnosed the TGN. (GP did say prescribing correct drug could be tricky and take an exact note of name+dosage of meds I tried. Luckily first drug was ok but it took a month to find the correct dosage. Twice while on holiday (yeas ago!) I hadn't packed enough so for last 4 days I rationed myself to 2 daily instead of 3 - by the time I got home my mouth was throbbing and I won't ever do that again!)
When I thought I had TGN on other side of my mouth, I phoned (new) GP (Lockdown rules by now hence phone call), told him and within 2 sentences he said to go to dentist as it sounds like a tooth decay problem. Dentist diagnosed infection on phone,2 lots of anti bs and no more pain (no further treatment required! Hurray!!)
          This will get sorted Shropshirelass, hope it's soon xx

Thanks Padine. Did your initial pain feel like toothache , ie constant in one area, specifc teeth. Ive heard really scary stories about the drugs for TGN so its really good to hear that they've helped you. Do you take them constantly or just when you have a flare up? Thanks for sharing.
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CLKD

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Re: Trigeminal neuralgia
« Reply #18 on: February 09, 2021, 05:30:31 PM »

Let us know how you get on.
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Changes can be scarey, even when we want them!

Padine

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Re: Trigeminal neuralgia
« Reply #19 on: February 10, 2021, 05:00:53 PM »

 Sorry for later reply.
 Initially yes, the pain was (like) raging, throbbing toothache. I have a bridge in the 3 teeth next to tooth where pain was (pain tooth 1, bridge teeth 2,3,4 ) and I was worried that the gum would swell so much that my bridge would break or pop out. Please don't listen to horror stories about meds for TGN. (It's not called the Suicide disease for nothing! And that was a neurosurgeon speaking from experiences with suffering patients) Any meds to get rid of the pain are welcome. If anything, my pain became during the 4 days before I got my wonder-medication!) I'm not entirely sure that TGN would come and go? 
  Take what you can for the pain.
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Some people feel the rain, others just get wet

CLKD

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Re: Trigeminal neuralgia
« Reply #20 on: February 11, 2021, 10:18:26 AM »

TGN is intermittent.  It can leave a bruising effect though which can radiate through various nerve endings.  That particular nerve runs under a large blood vessel which can become impacted onto the nerve.  I had Amyitriptalene which did nowt  :'(
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shrosphirelass

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Re: Trigeminal neuralgia
« Reply #21 on: February 11, 2021, 11:37:12 AM »

still waiting to hear if the specialist dentist will see me, feeling quite desperate

Maybe people experience TGN differently, sounds lile it from your CLKD and Padines experience
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CLKD

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Re: Trigeminal neuralgia
« Reply #22 on: February 11, 2021, 11:49:26 AM »

I would ring and push that you are in intense pain and with the weekend approaching ........... I feel for you I really do.  Nothing on the website states that TGN is intermittent.  I can still feel the area like a bruise, even after 25 years. 

Did U sleep?
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Changes can be scarey, even when we want them!

shrosphirelass

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Re: Trigeminal neuralgia
« Reply #23 on: February 12, 2021, 04:33:06 PM »

See update on root canal pain thread
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CLKD

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Re: Trigeminal neuralgia
« Reply #24 on: February 12, 2021, 04:34:00 PM »

I did  ;)
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Changes can be scarey, even when we want them!
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