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[Sparkler]

Hi Dandelion

Sounds like you are really going through it, with the bleeding and with the worry about the bleeding.

Just to share, I feel like utrogestan makes me spot. I take it 12 days a month and usually start various types of spotting on day 8. All colours just like you say and often dark brown in small amounts. I have a proper bleed randomly but currently no full bleed since May.

I had a scan and hysteroscopy biopsy A while ago and the specialist said all was well and I only needed to go back if things changed. I described the 4 or 5 scenarios that my random body sometimes does and she said that my uterus was all fine and not to worry, just keep a diary and go back if it felt different.

It does nag at me that I am not in a proper pattern, but now I have been on hrt for 18 months it really does feel like the Utro brings on the spotting, and theN occasionally I have a proper period.

I hope you get some answers soon and I wonder if you could ask to be referred to a specialist rather than the GP? GPs are just doing their job but do Seem to worry about anything that’s not ‘textbook’.

I hope you get some answers soon and try not to worry too much.

Sparkler
X

[Dandelion]

Hi Dandelion

Sounds like you are really going through it, with the bleeding and with the worry about the bleeding.

Just to share, I feel like utrogestan makes me spot. I take it 12 days a month and usually start various types of spotting on day 8. All colours just like you say and often dark brown in small amounts. I have a proper bleed randomly but currently no full bleed since May.

I had a scan and hysteroscopy biopsy A while ago and the specialist said all was well and I only needed to go back if things changed. I described the 4 or 5 scenarios that my random body sometimes does and she said that my uterus was all fine and not to worry, just keep a diary and go back if it felt different.

It does nag at me that I am not in a proper pattern, but now I have been on hrt for 18 months it really does feel like the Utro brings on the spotting, and theN occasionally I have a proper period.

I hope you get some answers soon and I wonder if you could ask to be referred to a specialist rather than the GP? GPs are just doing their job but do Seem to worry about anything that’s not ‘textbook’.

I hope you get some answers soon and try not to worry too much.

Sparkler
X

Hi Sparkler

It sounds like you are on sequi HRT I am on conti, I have to take utro daily as its cross tolerant to the valium I am addicted to. All was fine with my hrt until I started taking it daily.

It's good you had a scan and a hysteroscopy, so did I in Jan 2019, all was well until June 2019 when GP reduced my oestrogen patch from 100mcg to75mcg and bleeding went, bit more sweating but bearable.
Then the bleeding came back.

I emailed Dr Currie who advised me to see GP as I had large clots, pelvic pain, feeling like a teenager again, red bleeds at random times.
They went for a few months, but they keep coming back.
Today has been small black bits on tissue, watery red brown and watery red.
The gynaecologist said in 2019 if bleeding doesn't stop I might end up going back and forth to the gynaecologist.
I can't change progesterone due to the cross tolerance
I even went on gel and reduced to 50mcg but the bleeding wont let up.
The short time we are allowed at the GP's put me off plus you never see the same one twice.

[Baby]

Hi Dandelion could you explain what you mean by cross tolerance with your valium?x

[Dandelion]

Hi Dandelion could you explain what you mean by cross tolerance with your valium?x

The metabolite of progesterone allopregnanolone acts on the same GABAA receptors as valium, so messing about with that would be like a big alteration to my valium dose.
I am currently reducing the valium slowly as the withdrawals are horrible, messing with the prog will mess that up.

[Dandelion]

Gynae said I had stenosed cervix, in 2019
He couldn't even get a straw thin implement into it when I saw him.
He said my cervix had closed shut, stenosed.
I am wondering if the closed cervix has prevented the red blood coming out hence it coming out congealed.
A few weeks ago the pelvic pain was really sore in the left part of my pelvis
I wonder if the lining has started migrating from my womb and into the pelvic canal.
The rush at the doctors and the inability to change prog regime has put me off going
The discharge is dark brown and black and red today
I read about stenosed cervixes and endometriosis

[Sage 🍃]

Hi Dandelion, you need to get an appointment to be properly diagnosed. If GP or Gynaecologist think you need to change progesterone you can ask to be referred to a mental health specialist who is knowledgeable about cross tolerance.

[Dandelion]

Hi Dandelion, you need to get an appointment to be properly diagnosed. If GP or Gynaecologist think you need to change progesterone you can ask to be referred to a mental health specialist who is knowledgeable about cross tolerance.

Hi Sage
I have a mental health nurse and psychiatrist and they do not know about cross tolerance between valium and progesterone.
The problem with a GP appointment is that the issue is so complex there is not enough time and we don't get the choice of what GP we see in our surgery.
I wonder if reducing my oestrogen will work.
It's odd because I still get soaked on a night sometimes, so the sweats suggest that I am not on too much oestrogen.
This problem only started when I started taking prog daily but I can't have a break as I could seizure.

[Sage 🍃]

I see. Well, they can always be encouraged to read about cross tolerance! Have you tried to explain it so they can seek more information?

If you reduce oestrogen you might end up not controlling menopause symptoms. Have you tried increasing Utrogestan dose? Maybe you need more steady progesterone levels.

[Dandelion]

I see. Well, they can always be encouraged to read about cross tolerance! Have you tried to explain it so they can seek more information?

If you reduce oestrogen you might end up not controlling menopause symptoms. Have you tried increasing Utrogestan dose? Maybe you need more steady progesterone levels.

Yeah, I have but they don't have time.
As for the oestrogen, my GP reduced it last year as it opposes the progesterone, which makes sense, as the oestrogen is what causes womb lining thickening.
Confusingly though, even though I reduced it again, I am getting sweating and bleeding, that should not be happening, one or the other, but not both.

[Sage 🍃]

Do you need a document explaining cross tolerance between GABAergic agents, with links to references, to take it with you on your next appointment? I'd be glad to help you.

[Dandelion]

Do you need a document explaining cross tolerance between GABAergic agents, with links to references, to take it with you on your next appointment? I'd be glad to help you.

Thanks, I don't have a printer, also the doctors don't have time to read documents. You can show me it.
When I go, I put my points on paper in Bullet point form but this time what I have to say will be too long I don't know if they will have time to read it.

[Sage 🍃]

You can save it on a USB pen drive... or maybe change GP, Gynae, Psychiatrist? What you can't do is postponing an appointment to address this bleeding issue. It can be just hormonal imbalance, but you'll never know if it's not investigated and your anxiety is going to get worse. I will write a short evidence based doc and I'll PM it to you, so you can do whatever you like. Stay safe.

[Dandelion]

You can save it on a USB pen drive... or maybe change GP, Gynae, Psychiatrist? What you can't do is postponing an appointment to address this bleeding issue. It can be just hormonal imbalance, but you'll never know if it's not investigated and your anxiety is going to get worse. I will write a short evidence based doc and I'll PM it to you, so you can do whatever you like. Stay safe.

Hi Sage
I am housebound, I get taxis to doctors.
You could send me the link.
I have postponed it since June 2019 - the doctor said trans vaginal ultrasounds are now classed as unreliable at that time, as I requested another scan. That is when she reduced my oestrogen, which you would think would work.
My hysteroscopy in January 2019 did not show polyps, or any cancer.
I just dunno why this bleeding won't let up, especially since I reduced the oestrogen myself again.
I also have a lot of other anxieties, non medical, this is just piling on top.

[Sage 🍃]

I've sent you a PM with the links and brief descriptions.

What does your doctor mean by 'unreliable' regarding transvaginal ultrasounds? Your hysteroscopy results are great, but it's been a while, so you can't rely on that.  Maybe you have absorption issues and you're not getting a stable dose of the hormones, hence the bleeding. It has to be investigated so you can tick that off your anxiety list.

[Dandelion]

I've sent you a PM with the links and brief descriptions.

What does your doctor mean by 'unreliable' regarding transvaginal ultrasounds? Your hysteroscopy results are great, but it's been a while, so you can't rely on that.  Maybe you have absorption issues and you're not getting a stable dose of the hormones, hence the bleeding. It has to be investigated so you can tick that off your anxiety list.

The GP told me that transvaginal ultrasounds are no longer reliable in determining womb lining thickness.
I replied to your first message, thanks for the links.
You got my message regarding tolerance to allopreganolone, but I sent you another message regarding PTSD, my screen went funny and I forgot to put a copy in my outbox, and I don't know if you got it, please could you let me know if you did, and if so, could you send me a reply so I have a copy of it, thanks, sorry to be a pain, I feel despondent as I think I have PTSD and my message was about stress hormones in PTSD cancelling out allopregnanolone.