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Author Topic: I got Referred - I could Cry!  (Read 3690 times)

CLKD

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Re: I got Referred - I could Cry!
« Reply #15 on: September 14, 2019, 07:39:24 PM »

You have to tell people if you are recording interviews ;-)
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onion relish

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Re: I got Referred - I could Cry!
« Reply #16 on: September 15, 2019, 05:16:15 PM »

You have to tell people if you are recording interviews ;-)

Really? If I'm only using recording to remind me what was said? I can never remember everything said at a consult - except the really bizarre stuff like, "Woman only want HRT to look more attractive to younger men".  :steamed:
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CLKD

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Re: I got Referred - I could Cry!
« Reply #17 on: September 15, 2019, 05:43:15 PM »

Yep.  Have a chat with your local Police Station to find out what a person is/not allowed to do with recording.
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pants46

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Re: I got Referred - I could Cry!
« Reply #18 on: September 16, 2019, 12:14:47 AM »

Onion Relish ... there are a lot of laws regarding recording of private conversations. Not only do you need to inform the other person that you intend to record the conversation, but now you have to get their consent.
I'm not sure the Police can give you good advice, it's not their area of expertise.
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Hurdity

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Re: I got Referred - I could Cry!
« Reply #19 on: September 16, 2019, 07:13:14 AM »

I think you'll find that you can record GP consultations - just had a quick look, and it seems you don't need permission although it would be common courtesy to do so:

http://www.pulsetoday.co.uk/can-i-stop-a-patient-recording-our-consultation/20030215.article
https://www.bmj.com/content/364/bmj.l1101

Re data protection - the information given in the consultation is the properrty of the patient and therefore apparently data protection laws do not apply.

Hurdity x
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CLKD

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Re: I got Referred - I could Cry!
« Reply #20 on: September 16, 2019, 08:22:13 AM »

Data Protection is a stealth tax.  It covers areas that one would never believe and misses others  ::).  My copy ran to 72 pages and was 8" tall  ;D but referred to absolutely nothing that I was involved with.  I had to have Cover because I kept medical records on computer.

When people quote "we can't do X, Y, Z due to the Data Protection Act" I ask them to read the appropriate pages that relate to that particular conversation.  Not many have actually handled the DPA or read any of it  ::).

As for recording, yes the Police should be aware in order to give advice.  As will a Solicitor.  If one has a chaperone at the GP appt. they can also back up any queries. 
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heavenlyblue

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Re: I got Referred - I could Cry!
« Reply #21 on: September 16, 2019, 10:29:28 AM »

Hi Med Sec - it was the same in 'my day' a patient went where they were referred. 

What does your gut tell you?  Make that list ;-)

My gut told me to grab that 22 Oct appointment at the private clinic only 10 miles away!    She has sent me a very detailed medical questionnaire to fill in.

Here is a link to her, Liz McCulloch,  she also works at a Hormone Clinic in Harley Street.  I have just watched the 2 You Tube interviews with her on this link, glad I could get a bit of background on her before seeing her, I like her manner :-) Fingers crossed!

https://hormonehealth.co.uk/team/dr-liz-mcculloch/
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CLKD

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Re: I got Referred - I could Cry!
« Reply #22 on: September 16, 2019, 10:30:38 AM »

Let us know how you get on!  Sometimes we need to pay for appropriate advice - after all we don't think twice about paying for a holiday  ::)
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Hurdity

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Re: I got Referred - I could Cry!
« Reply #23 on: September 16, 2019, 01:30:20 PM »


As for recording, yes the Police should be aware in order to give advice.  As will a Solicitor.  If one has a chaperone at the GP appt. they can also back up any queries.
CLKD did you read the links I gave - looks like neither the police nor a solicitor need to be consulted nor advise?


My gut told me to grab that 22 Oct appointment at the private clinic only 10 miles away!    She has sent me a very detailed medical questionnaire to fill in.

Here is a link to her, Liz McCulloch,  she also works at a Hormone Clinic in Harley Street.  I have just watched the 2 You Tube interviews with her on this link, glad I could get a bit of background on her before seeing her, I like her manner :-) Fingers crossed!

https://hormonehealth.co.uk/team/dr-liz-mcculloch/

Good luck at your appt - this is Nick Panay's team - you are in the best hands there. However I would still go to your NHS gynae appointment.....if it occurs earlier (or anyway) and see what transpires?

Hurdity x
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heavenlyblue

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Re: I got Referred - I could Cry!
« Reply #24 on: October 21, 2019, 02:22:51 PM »

Appointment is tomorrow.  Filled out the questionnaire.  Am looking forward to finally getting to see her - migraines have been awful, almost threw up on myself driving to work last week, and my whole weekend was ruined.  I don't know whether changing my HRT from Evoril Contil to body identical will improve things but I need to try something.    I would also like a hormone test, to see what is going on, and she offers three different kinds.  Have not been offered one in 3 years of seeing NHS GPs.    Also, be interested to see if she thinks I need Testosterone.  Libido and energy levels have been non existent for a long time. 

I have not heard from the NHS yet about my referral.


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KiltedCupid

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Re: I got Referred - I could Cry!
« Reply #25 on: October 21, 2019, 04:02:00 PM »

heavenlyblue - good luck at your appointment, I'd say you made the best choice. I was referred to a gynae department and my balloon was well and truly burst when they told me they didn't deal with hrt and I'd need to be re-referred. Complete waste of time. Sounds like you've waited long enough for some sort of hrt plan and, whilst the NHS is wonderful and god forbid we lose it in this Brexit catastrophe, it sounds like they're being pushed to the limits with Menopause related issues with resultant waiting times becoming tortuous.

I'm sure your lady will have some good suggestions.
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Hurdity

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Re: I got Referred - I could Cry!
« Reply #26 on: October 21, 2019, 05:11:14 PM »

Appointment is tomorrow.  Filled out the questionnaire.  Am looking forward to finally getting to see her - migraines have been awful, almost threw up on myself driving to work last week, and my whole weekend was ruined.  I don't know whether changing my HRT from Evoril Contil to body identical will improve things but I need to try something.    I would also like a hormone test, to see what is going on, and she offers three different kinds.  Have not been offered one in 3 years of seeing NHS GPs.    Also, be interested to see if she thinks I need Testosterone.  Libido and energy levels have been non existent for a long time. 

I have not heard from the NHS yet about my referral.

Sorry to hear about your migraines. Did you have these before starting Evorel conti and if so did they occur cyclically ie could you work out which phase of the cycle was worse? I got migraines on the conti part of this HRT patch during the first 3 months when starting HRT more than 12 years ago, and went on to bio-identcial products ( ie estradiol and progesterone) - through NHS (I am very lucky that my gynae specialist GP is very knowledgeable - not my regualr GP though!) and have been on these ever since. I do still get migraines sometimes but not that often.

I presume sumatriptan does not work for you? I find them magic but almost need to anticipate that the feeling I'm getting is going to turn into a migraine because if I leave it, the triptans don't work, but haven't wanted to take them unnecessarily every time I wake with that typical twinge starting!

All the best with your appt and do report back!

Hurdity x
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heavenlyblue

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Re: I got Referred - I could Cry!
« Reply #27 on: October 22, 2019, 03:15:15 PM »

Appointment is tomorrow.  Filled out the questionnaire.  Am looking forward to finally getting to see her - migraines have been awful, almost threw up on myself driving to work last week, and my whole weekend was ruined.  I don't know whether changing my HRT from Evoril Contil to body identical will improve things but I need to try something.    I would also like a hormone test, to see what is going on, and she offers three different kinds.  Have not been offered one in 3 years of seeing NHS GPs.    Also, be interested to see if she thinks I need Testosterone.  Libido and energy levels have been non existent for a long time. 

I have not heard from the NHS yet about my referral.


Sorry to hear about your migraines. Did you have these before starting Evorel conti and if so did they occur cyclically ie could you work out which phase of the cycle was worse? I got migraines on the conti part of this HRT patch during the first 3 months when starting HRT more than 12 years ago, and went on to bio-identcial products ( ie estradiol and progesterone) - through NHS (I am very lucky that my gynae specialist GP is very knowledgeable - not my regualr GP though!) and have been on these ever since. I do still get migraines sometimes but not that often.

I presume sumatriptan does not work for you? I find them magic but almost need to anticipate that the feeling I'm getting is going to turn into a migraine because if I leave it, the triptans don't work, but haven't wanted to take them unnecessarily every time I wake with that typical twinge starting!

All the best with your appt and do report back!

Hurdity x

Thank you for your post.  I have suffered with them for around 20 years but they weren't that often and after a decent sleep, were gone.   I am afraid I never kept a diary so have no idea if they were cyclical or not.    But they ramped up just another level the same week my hot flushes started 3 years ago. They last 48 hours and are just awful.     I last tried Triptans about 3 years ago, they didn't work because you couldn't take them too often and I was getting them for days at a time.    They've given me Amitriptyline, Gabapentin, Topimirate...they seem convinced its nothing do with the menopause but surely they know migraines are linked to a drop in oestrogen? 

Appointment went well today.    She was very nice.  She thinks my oestrogen levels are too low which could be causing the migraines  (I'm on 50mcg Evoril Conti), she wants to up it but my blood pressure was too high for her to give it to me there and then.  (I'm hoping because I couldn't find a parking spot and was panicking I'd miss the appt!   She wants me to do a 24 hour blood pressure thingy and email her the results.  So at the moment, she has prescribed me with 50mcg Evoril and 100mg Utrogestan capsules (1 a night).   Also did a blood test to see what my hormone levels are, especially testosterone, as I told her my libido had been non existent for about 4 years, she will email me the results.

So great to just have someone really listening and telling me that one size does not fit all, migraines are complex, we may have to tweak a few things....etc etc......She definitely thinks body identical Gel is the way to go for me with the Oestrogen so I can control it.    Not had one GP in 3 years do a hormone test or give me any other options apart from Evoril Conti and pain relief for migraines.      Follow up appt in 3 months but will be in touch before that when I know my testosterone levels and when my blood pressure is back down so she can up the Oestrogen.  At least I feel I am getting somewhere.  Even if it is to eliminate things.   

Not sure what I will do when I get the NHS referral through though.  Not sure it will go down well if I go to the appointment and tell them I have already seen a private GP and she has prescribed me something.     May get a bit confusing if they decide on a different course of action.   
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heavenlyblue

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Re: I got Referred - I could Cry!
« Reply #28 on: October 22, 2019, 03:16:32 PM »

heavenlyblue - good luck at your appointment, I'd say you made the best choice. I was referred to a gynae department and my balloon was well and truly burst when they told me they didn't deal with hrt and I'd need to be re-referred. Complete waste of time. Sounds like you've waited long enough for some sort of hrt plan and, whilst the NHS is wonderful and god forbid we lose it in this Brexit catastrophe, it sounds like they're being pushed to the limits with Menopause related issues with resultant waiting times becoming tortuous.

I'm sure your lady will have some good suggestions.

That is exactly why I grabbed the private appt, have waited so long to get some help, just felt if I waited for the NHS referral, I might be back at square one, if they couldn't help my situation.
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KiltedCupid

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Re: I got Referred - I could Cry!
« Reply #29 on: October 22, 2019, 04:49:16 PM »

heavenlyblue - good luck at your appointment, I'd say you made the best choice. I was referred to a gynae department and my balloon was well and truly burst when they told me they didn't deal with hrt and I'd need to be re-referred. Complete waste of time. Sounds like you've waited long enough for some sort of hrt plan and, whilst the NHS is wonderful and god forbid we lose it in this Brexit catastrophe, it sounds like they're being pushed to the limits with Menopause related issues with resultant waiting times becoming tortuous.

I'm sure your lady will have some good suggestions.

That is exactly why I grabbed the private appt, have waited so long to get some help, just felt if I waited for the NHS referral, I might be back at square one, if they couldn't help my situation.

heavenlyblue - glad it all went well for you. It's always a relief to feel you're being listened to, taken seriously and given appropriate treatment options. I hope your new regime works well.
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