Please login or register.

Login with username, password and session length
Advanced search  

News:

Menopause Matters magazine ISSUE 75 out now. (Spring issue, March 2024)

media

Pages: 1 [2]

Author Topic: Lichen Sclerosis??  (Read 7222 times)

jessieblue

  • Guest
Re: Lichen Sclerosis??
« Reply #15 on: April 05, 2019, 03:55:13 PM »

Thank you for replying.  It was diagnosed as thrush a few times before when I had similar symptoms.  Once just by the appearance and I was treated and it cleared up.  Then I was treated and it didn't clear up and a swab was taken and came back negative.  Then I saw the private gp as was worried about LS seeing as I kept getting inflammation and it not responding to canesten.  In previous years whenever an itch appeared some canesten cream woud sort it out but not any more.  Canesten pessary burned me badly, like a chemical burn and I had bleeding too.  Sometimes now if I use canesten 2% cream it can burn and make me worse.  The private GP said I definitely didn't have LS but I did have thrush, but the tablet didn't clear it up.  Eventually just sitz baths with bicarb and coconut oil soothed it.  The GP also said I didn't really look atrophic....yet I have had genitourinary symptoms for 10 years!  So I have no clue what I have but I definitely have something.  I have tried all three oestrogen products with the same effect, estriol cream ovestin and now vagifem.  I even got thrush when I used Oestrogel on my arm!  So Im assuming my body doesn't appreciate the oestrogen, even though I felt better in myself taking the vagifem, less anxiety and stomach problems.

The Sexual health clinic has a central booking number, the lady that emailed me said they know about the fault and are trying to correct it.  I spoke to the receptionist at the health clinic where the GUM is held but they cannot take bookings for it themselves, she said she had not been able to get throught o them herself some time ago and couldn't believe it still wasn't working.  She said to leave a phone message which I did and I emailed too.  It has taken 3 days to hear back and now I wont hear from them until Monday.  Good job I wasn't after the morning after pill eh?
Logged

CLKD

  • Member
  • *
  • Posts: 74344
  • changes can be scary, even when we want them
Re: Lichen Sclerosis??
« Reply #16 on: April 05, 2019, 04:08:43 PM »

Why keep using a product that makes the area burn  :-\ ........... get some LIVE yoghurt down there, it's cooling.

Logged

jessieblue

  • Guest
Re: Lichen Sclerosis??
« Reply #17 on: April 05, 2019, 04:15:22 PM »

I don't use the canesten any more, this time I treated with fluconazole tablet and that's what I have done the last few times.  It can seem like it gets worse even after this or at least doesn't get better.  I don't really know what else to use.  I use multigym YESVM and olive and bee daily to keep things moist and in balance.  I have tried yoghurt but that stung too.  I drink Kefir daily so Im getting the probiotics that way rather than regular yoghurt.  Seems to agree with me better.I am using the coconut oil and bicarb baths at the moment but not improving.  I have no idea whats wrong but really hoped to see the GUM clinic while I was having the flare up so they could see what im dealing with.  My doctors are useless hence my trips to the private gp, but tbh I didn't get a whole lot more joy there either.  This has been going on for a couple of years now.  Im miserable and scared to death of everything that goes near me down there.  I either get thrush or UTI at the slightest change. Doctors seem to think its all quite normal.
Logged

CLKD

  • Member
  • *
  • Posts: 74344
  • changes can be scary, even when we want them
Re: Lichen Sclerosis??
« Reply #18 on: April 05, 2019, 04:18:31 PM »

It might be normal but that doesn't help if you don't get something to ease symptoms  >:(

Yoghurt shouldn't sting, there's nothing in it .......... I use Greek goat LIVE inside and out. Regular yoghurt rarely has live cultures. Do you think that U are using too many products: maybe stop everything for 24 hours and then cut out the olive and bee ? 
« Last Edit: April 05, 2019, 04:22:04 PM by CLKD »
Logged

Joaniepat

  • Member
  • *
  • Posts: 1758
Re: Lichen Sclerosis??
« Reply #19 on: April 05, 2019, 05:37:15 PM »

How about just using the Olive & Bee? It has the least ingredients, just olive oil and beeswax, so completely harmless. I would definitely stop the Multigyn (too stingy in your situation) and the Yes VM. I agree with CLKD about too many products. It's so tempting to slap things on when you are in trouble with that region, hoping something will help, but perhaps for the moment "less is more". I feel so sorry for you, it sounds awful.

JP x
Logged

CLKD

  • Member
  • *
  • Posts: 74344
  • changes can be scary, even when we want them
Re: Lichen Sclerosis??
« Reply #20 on: April 05, 2019, 06:43:52 PM »

Honey is healing, used often for ulcers that fail to heal - but oh so sticky down there  :-\.  Maybe a cooling bath with salt water followed by patting dry and laying au natural on the bed? 
Logged

jessieblue

  • Guest
Re: Lichen Sclerosis??
« Reply #21 on: April 06, 2019, 08:15:23 AM »

Thanks everyone.  I will try stopping the products for a day or two.  Maybe using O & B if the itching gets too much.  It feels worse when its dry. I am daily sitz bathing with baking soda and coconut oil.  Maybe I will just use salt instead.  I appreciate everyones help.  I am really struggling and my stomach has kicked off really bad.  No sleep at all last night.  Im so morbidly tired. xx
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #22 on: April 07, 2019, 06:05:47 PM »

Can anyone tell me what is involved in a biopsy for LS please?  I am petrified of medical tests and I keep getting inflammation and irritation down there that I think is thrush but it doesn't respond to thrush treatment.  I have this at the moment since using vaifem for 2 weeks so I have stopped as I clearly cannot tolerate oestrogen.  I am trying desperately to make an appt at a GUM clinic.  Its been 3 days and I am awaiting a call back as their phone lines don't work!!  I was on hold for 40 mins then got cut off!  I have emailed them 3 times and just got an email back today asking for my telephone number.  I guess I wait another 3 days for a call to book an appointment...….its so frustrating as I am in a full blown flare up of something and don't know what to do.  I have a feeling maybe I have LS.. I did ask my private GP last year and she said definitely no but I understand it needs a biopsy to be sure.  I currently have a red angry rash.  Does LS present like this?

Just to let you know I had a biopsy on Mon to see if I have lichen scherosis and it was no way bad as I anticipated. I went to a specialist vuvla clinic at my local hospital and they were brilliant. I wasn't expecting the biopsy there and then and I suffer from aniexty due to menopause so had bit of wobble when they said. Then I though sod it get over and done with and the nurse and Dr was brilliant. They said the worst bit would be the needle for local but I didn't feel anything so impressed. Just a bit sore and woozy rest of the day and told to rest. If I can do it anyone can as I hate hospitals. Good luck if you have to it's the only way for a diagnosis just got to wait 2/3 weeks for results
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #23 on: April 07, 2019, 06:16:12 PM »

Well done and good luck Donna-Paul x

Thank you 😁
Logged

Tc

  • Member
  • *
  • Posts: 2270
Re: Lichen Sclerosis??
« Reply #24 on: April 07, 2019, 10:45:08 PM »

Good luck Donna. I didnt know there was a specialist vulva clinic. I dont think theres one where I live.
So glad you persevierd through your anxiety and are now on the way to diagnosis and treatment.
Xx   
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #25 on: April 08, 2019, 07:17:20 AM »

Good luck Donna. I didnt know there was a specialist vulva clinic. I dont think theres one where I live.
So glad you persevierd through your anxiety and are now on the way to diagnosis and treatment.
Xx   
Thank you apparently you can see a dermatologist or as in my hospital a special vulva cliinic ran by a lady Gynecologist. I must say the new ointment she gave me has helped and so far I haven't used the steroid cream🤞It's called hydromol and you get it in cream, ointment and apparently a wash. My dr has given the first 2 on prescription as I have yearly one.  The Dr did say boots sell it!
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #26 on: May 01, 2019, 05:17:55 PM »

Well I thought I give you update just been to drs and got my results from my biopsy a month ago. Apparently they think I have chronic dermatitis with possibility of allergy contact dermatitis. Now waiting for referral to dermatology clinic for patch testing. Been given a different steroid cream I have to use for everyday a month then every other day for a month and then twice weekly for third month😳 has anyone else had this diagnosis at least I'm nearer to knowing what causing it!
Logged

CLKD

  • Member
  • *
  • Posts: 74344
  • changes can be scary, even when we want them
Re: Lichen Sclerosis??
« Reply #27 on: May 01, 2019, 05:24:48 PM »

 :thankyou:
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #28 on: May 01, 2019, 06:14:39 PM »

How is it? Are you seeing improvement?

Let's just say it's not great🙁 the hydromol ointment has helped and now got to use steroid cream again so 🤞 it be better.
Logged

Donna-paul

  • Member
  • *
  • Posts: 177
Re: Lichen Sclerosis??
« Reply #29 on: May 01, 2019, 07:15:56 PM »

Oh how miserable. But definitely not LS? Any idea what is causing it?
Well Gp didn't say to much apart from I've now got to see dermatologist I said at least it's not LS she said what I've got is the same treatment. I'm still bit confused by it all🤔
Logged
Pages: 1 [2]