Xylimelts arrived today bang on time, excellent service. Boots had never heard of them. However, I have had an incident with bread and butter this afternoon, it started stinging my mouth and throat after I had eaten it. Water stinging my mouth, gums and throat again, but badly (this had stopped), as is my salvia spray. Have you ever experienced water causing your mouth any discomfort? This is when I really become nervous, how can I not drink? Again, I am sorry to sound neurotic, I have tried not thinking it through, but trying to avoid it happening again and find solutions.
Dr has referred me to facial maxilla and said the appointment should come through quickly and quite locally. As the incident previous to the bread and butter was set off by something out of the dishwasher, she thinks this may be a problem as well, which I had picked up on, and stupidly, I used a knife direct out of the drawer for the bread and didn't rinse it off. I'd been avoiding bread up til now, I shall go back to that. I did try some chocolate today though, what a treat. I am buying some Ecover washing up liquid tomorrow!
Teresa, I am sure you will probably have been all this with your Dr and oncologist already, but please excuse me asking, are you on HRT, or able to take HRT? By day 3 or 4 of starting HRT, the first thing I noticed improving, which was not expected, were joints easing up and becoming less painful. It must be very hard to keep going some days, but it sounds as if you are doing really well and fighting back. x