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[Rhiner]

Hi Tired,

I had BSO last March and was happily going through menopause before this. 2 weeks post op I completely crashed, insomnia, foggy head, anxiety - weak and faint. Didn't know what was wrong initially then it dawned on me that it is lack of oestrogen. Blood test confirm no oestrogen. I went on Femoston 1mg, (I needed prog as still had uterus), after persuading the surgeon that this was indeed the issue. It took several weeks to get my pre op levels back (although don't know what they were as never tested!!!)and hence get back to normality.

After 8 weeks headaches started, but this was due to synthetic prog in femoston I think - which you do not need fortunately. Eventually settled on Oestrodot 75ug patch which gives a nice constant dose.

Hope this helps, I also went to see a meno specialist as my surgeon did not want to know when I started complaining of headaches, who has sorted me out.It has been been one of the worst things that I have experienced and I am a pretty tough person.

Rhiner

[doolou]

Hi girls.  Hope you're all ok today.  I thought I'd post a further update on my saga! So......I began using estrogel 2 weeks ago. On day 3 I began to get a very sore chuff (as I call it). Felt a bit thrushy?  Bought a tablet to take to try and help.  Got to day 7 and couldn't stand it, so arrived back at the meno clinic as they said to call in. Saw a wonderful consultant,  who was amazing, lovely and understanding and said it is probably a dermatological reaction to the gel, to stop using it, have a week off and prescribed evorel 50 patch which I've started using today.  Keeping everything crossed,  as this time last week I couldn't stop crying,  thought what's the point etc.  Obviously hormone crash,  but it's been a long tough journey, I've now got my date for my repair operation for 6th April (scared is an understatement) but I can't carry on like this.  The good news is I took your advice,  and bought an e - cig. Have reduced my smoking massively,  and my BP is within the limits constantly now.  I also managed to get off Lansoprosole, thank goodness.  Thanks to you all for your ongoing support and information. Hugs xx

[charliegirl]

Right thats it now! Feel sooo ill and its never ending. Going to gp next week and ask for some HRT, am not having a life here just sitting about ! . So fed up with it. Sorry to rant but nobody understands what I am feeling like! Hope somebody on here does. Love Charliegirl.xx

[LJB12]

Yes charliegirl, we do.

Love n hugs xxx

[doolou]

I second that......yes Charliegirl, we certainly do! It's a roller coaster of trial and error!  Hugs xx

[walking the dog]

Had my hysterectomy last week , everything removed. I'm not allowed estrogen until four weeks post op but so far I'm ok (ish) I know its early days , I'm dreading the hormone crash

[Yorkshire Girl]

Hi Walking the dog, I read about the hormone crash on here, but I never had one! Whether that was because I was on Zoladex before my TAH BSO back in Dec last year, or not I don't know. Generally you can't start hrt until around 6 weeks due to increased chance of blood clots. The only menopausal symptoms I had were very intense hot flushes & for the first 3 weeks night sweats but they were random coming in waves! Hope your recovery is going well x

[coldethyl]

I'm now 5 1/2 months post everything that moved out and I'm doing ok still. Hot flushes come and go during day and I've noticed I'm waking up with one in morning but so far they are doable. Just as well as cancer ruled out HRT. I am noticing bladder issues in that some days I feel like I'm trying to pass a glass rod!!! No infection just discomfort and having just been on chemo don't know if that's op related or chemo related as apoarentiy it can affect bladder ( or anything with fast grwoing cells tbh!) x

[walking the dog]

Thanks for your replies Yorkshire girl and coldethyl
I'm now ten days post operative and still doing ok , no flushes , moods ok (for me) as I have had terrible anxiety peri menopause.
I too read about the hormones crashing on here and have been waiting for it to happen I hope it doesn't. I had such a,terrible peri menopause  seven years of depression and anxiety plus flushes etc , I really need a break ( dont we all )
I was on estrogen 50 patch right up to the point I was wheeled into operation theatre where they removed it , so dont know if that makes a,difference to symptoms after ovary removal ?
Any advice gratefully accepted
Xx

[Annie0710]

I don't really belong here as although I had my uterus taken yonks ago I kept my ovaries but they've seemingly gone too now and I was declared post meno at 48, could've been bit earlier but never mind.   Around that time or maybe towards end of peri (I've had horrible symptoms, but haven't we all) I went on an 11 night holiday to Spain and forgot my hrt ! I didn't feel one little bit different that whole holiday despite my panic at forgetting the hrt, I should've really used that to see if I could do without but the minute I got home I ran for my oestrogen pills so I'll never know.  I think it can take a few weeks hrt-less before you notice but on the other hand you may feel fine never using it again x

[Stick_insect]

I'm almost a year post op everything removed. For me there was no hormone crash. Flushes appeared gradually over 6 weeks or so. They are abating now some days are worse than others. I have recently been prescribed ovestin for VA - after a weeks use I can't believe the difference. I'm actually much more stable mood wise and have no depression/anxiety off hormones. I was really bad when perimenopausal. Headaches have also all but disappeared and they had been limiting my day to day life prior to my op. I read soon after my tah and bso a story by another who had gone through the op and had never taken HRT and she said if you didn't go looking for problems it was amazing how many didn't manifest themselves. I have good and bad days but I feel so much better post op - I wish I hadn't ignored my symptoms for years and had my op 3 or 4 years earlier.
I hope you are recovering well ell. It does take a long time for internal healing to take place a lot of muscles and supporting structures have been damaged/repaired during surgery.

[walking the dog]

Ladies you have no idea how good your positive stories make me feel.
Fingers crossed I continue as I am and that you all remain positive xx

[Mandyw]

hi,
i started estradot patches 10 days after hysterectomy, no hormone crash just very dizzy and hot.

mandy

[Tempest]

Hi, ladies!

I haven't abandoned you all - promise! I'm 32 days off all HRT now and doing ok! Still a few 'warm ones' after main meal of the day and a bit of warmth at night but THAT'S  IT! Saw my gynaecologist who originally did my surgery 2 days ago and he thinks I should be ok!

The anxiety I had on HRT has gone, by the way!

I'm off to see my surgeon's endocrinology colleague shortly to check adrenal function and thyroid are all ok - as I've been through the 'wringer' on and off HRT and never getting stable, my surgeon thought it was a good idea. I'm so grateful for his care. I will keep my appointment at Professor Lumsden's clinic in May if only to tell her nothing worked (my surgeon thinks this is a good idea)!

I also spoke with a lovely lady I know who is 62 now yesterday and did 6 years on HRT following her TAH/BSO at the age of 42, and then came off due to worsening migraines. I can report that she hasn't fallen apart, still works full time in a demanding job with swing shifts and is looking forward to her daughter's wedding shortly. I like to bring you happy stories if I can.

Much love to all my sisters here - and well done on the e cig Doolou - I knew it would work! Coldethyl - I am SO glad that you're continuing to do ok. You really have been a huge help and inspiration to me in taking the plunge and coming off HRT. Hugs!! xxx

[Elizabethrose]

Really lovely to hear from you Tempest and wonderful to hear you're doing so well. Always good to hear happy stories!!

Sending you all good wishes xx