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[donnacrichton]

I've had zoladex for 12 months then buserelin can have great spells then for no reason cycle seems to break through don't understand it. On same dose of estrogen??

[sweettooth]

Coldethyl just wanted to say I am thinking of you....onwards and upwards, better times will lay ahead and please don't worry about that 'brick' wall - I would say you have already hit it and bounced back😎 St x

[Mandyw]

Try again Donna.
I was on the injections to shut my system down for six months. Horrendous hot flushes with them. When I stopped them they hoped a break in the cycle would work and my periods would be normal....What the heck was it all about. Came back just as bad. That's when I had the hysterectomy.
Can't remember what they were called??

[coldethyl]

Coldethyl just wanted to say I am thinking of you....onwards and upwards, better times will lay ahead and please don't worry about that 'brick' wall - I would say you have already hit it and bounced back😎 St x

Thank you for your thoughts x

[charliegirl]

Reading some of the posts I think I know what the problem is. I have been thru a very stressful period recently with terrible anxiety and my adrenaline glands are exhausted and not producing any hormones lesding to return of crsmps and night sweats. Have been reading about adrenaline fatigue and its a very real condition. Anyone else heard of this?xx

[TallSarah]

Hello all, what a relief to find this message board!  I'm 37 and had hysterectomy, BSO and extensive excision of endometriosis at then end of Oct.  I've been taking tibolone since the beginning of December. I've found it very difficult mood-wise.  Feeling very anxious and panicky for days at a time.  And I've developed acne too.  Anyway plucked up the courage to ask my gp to change my hrt.  I've found posts on here very useful.  I've decided to suggest estradot and utrogestan. I was told by the Hosp to have combined hrt for the first yr after op although not sure why.  Anyway I thought that if it's the progesterone making me feel this way it would easier to stop.

Any comments or advice welcome!  And is it easy to swap between different hrt?

[coldethyl]

I think the reasoning behind combined Hrt for you is that unopposed oestrogen has been shown to reactivate endometriosis - no surgeon can remove it all so even without ovaries it can be fed by hrt or indeed produce its own oestrogen supply x

[Hurdity]

Hello all, what a relief to find this message board!  I'm 37 and had hysterectomy, BSO and extensive excision of endometriosis at then end of Oct.  I've been taking tibolone since the beginning of December. I've found it very difficult mood-wise.  Feeling very anxious and panicky for days at a time.  And I've developed acne too.  Anyway plucked up the courage to ask my gp to change my hrt.  I've found posts on here very useful.  I've decided to suggest estradot and utrogestan. I was told by the Hosp to have combined hrt for the first yr after op although not sure why.  Anyway I thought that if it's the progesterone making me feel this way it would easier to stop.

Any comments or advice welcome!  And is it easy to swap between different hrt?

Hi TallSarah

 

Sorry to hear you are feeling rough following your TAH/BSO and Tibolone is not doing the job for you!

I use Estradot and utrogestan - although I still have a uterus!

What dose of Estradot will you be taking and I presume you will be taking the utrogestan orally? You may also want to consider testosterone at some point in addition - although this is only available to women off licence, usually only from specialists but sometimes from GPs.

Your body has been through an enormous change and it will take some time for it to settle - this is the right thread for women in your position to share experiences although the complications of having to have progesterone make you a bit special!

Yes it is very easy to swap between HRT types and especially with continuous combined - you just changeover whenever you like!

Let us know who you get on with this combo and do hope it works for you

Hurdity x

[Mandyw]

hi tallsarah,
i also had hysterectomy same as you due to adenomyosis.  i was on estradot for 4 years and was great on it, only problems with it as many have said is supply issues, i gave up in the end trying and am now on elesse solo which is very similar.

mandy

[TallSarah]

Thank you Coldethyl, Hurdity and Mandyw for your replies.

I've seen my GP.  Neither her or her more experienced colleague know what to do with apparently. They have said come off tibolone and they will refer me to a local gynae team so they can suggest what hrt to have.  In the meantime I will be prescribed low dose SSRI to help with hot flushes etc.

Pleased that they will refer me but worried about coming off tibolone for a few weeks and then the possibility of horrid side effect when I try something new. First 3 weeks of tibolone were terrible.

[Yorkshire Girl]

Did either of you ladies try getting your ovaries shut down before removal?  They have tried that for me but not great results not convinced they areally fully shut down. I feel like removal is the right option x

Hi Donna  I had Zoladex injections which really did work, suffered with hot flushes but weren't as bad as they are after surgery, also had a few night sweats.  Depending on how old you are I personally would have ovaries removed x

[donnacrichton]

My time on zoladex was very mixed.  I would have a few weeks and be great then estrogen would pop in although I had changed nothing. We tried a few hrt during this time thinking it was the hrt not settling.  Consultant thought my body wasn't absorbing it very well. Switched to buserelin nasal spray and it seemed to work OK.  Managed to stay on estradot for 7 months at the same dose ( this is a miracle for me lol). This spray is definitely not being absorbed correctly I can feel symptoms after taking the spray then it tails off.  If it runs back my throat or out my nose I get symptoms of estrogen rising within hours. I haven't found many people who have used this so don't know if it is a problem for absorbing that cause the fluctuations or if I'm a lost cause!

[LJB12]

Hello, I'm a surgical meno case. BSO in Dec 2014 to cure PMDD, which it did and I think I managed meno symptoms quite well during 2016 using Elleste Solo 2mg plus mirena.

I was then prescribed testim (and vagifem) which has helped with libido etc but with my meno consultant we have been messing with my estrogen dosage and now I feel helpless, lost and pretty upset. Went on a 100mcg patch which made me anxious, total loss of confidence etc. Last week started taking the 2mg tablets again and now feel low and depressed.

It is impacting me at work and I feel rubbish because this is really my dream job and I feel like I'm messing it up, just like I did when I had PMDD 

This too shall pass, right?

[Yorkshire Girl]

Hello LJB can't help with your hrt question, but I would like to say welcome & sorry to read what you're going through. I had a TAH BSO Dec 2016 also for severe PMS (PMDD) it has helped, I have been put on estraderm patches 25mg. I really do hope you find the right doses of hrt for you xx

[Tired@]

Hi Ladies

I HAD TAH/BSO 8 weeks ago due to complex hyperplasia. I am 52 but suffered no menopause symptoms just incredibly heavy and painful periods every month and became anaemic and starting losing my hair. My issue seems so minor compared to some other ladies on this thread and your stories make me sad and angry that these things have happened to you.

I recovered really well but at 8 weeks had a meltdown due to lack of sleep, hot flushes, mood swings, slight depression. I have tried to self medicate with exercise, diet, natural remedies, you name it I'm using it but nothing has worked although it could have been worse if I had not taken anything.

I rang my GP in desperation and begged for some estrogen and she gave me estradiol 1mg tablets 3 days ago. I'm still taking my natural things as I'm terrified everything will get worse but I do feel slightly better, sleep is a little bit improved which mean I can function better.

Is there anyone else taking this medication? And how long does it take to kick in? I was a happy woman with a great sex life and young at heart, this operation has made me feel old and tired in a way I never thought possible. I just want to feel good again. I long for my old self.

Anyone any positive stories to tell. I will report back on progress in case there is anyone in the same position xxx