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[Pam Madra]

thanks Annie. I have been in touch with these researchers from Monash and asked them about it as well. They said to me I can be part of the trial but needed to get some tests done and so forth. So I decided to go ahead but stay in touch with them. I agree with you that half a tablet of 2.5 mg is just too little for much effect. I will be getting touch with another gynae in Jan to review my whole situation. I am really impressed with Sooze progress. Also can you help me out with gall bladder stones issues as my ultrasound has revealed that I have lot of stones in gall bladder including big size one. I don't know if this contributes to nausea and anxiety as I really do not have much pain at all. I have lost appetite and there are days when I cannot eat much and lost weight also. So trying to figure out what is wrong. I think I want to up my dose and see but maybe just wait for opinion. But suffering is really bad with low mood, anxiety, nausea, sometimes wanting to vomit and periods a bit irregular. Thanks for this great forum and especially some of you who have always responded when ever in Australia I have asked for help. I am blessed to have all in my lives at this stage of my life.

[Pam Madra]

HI Sooze could you please update maybe once a month to share how you have been as I have been following you regularly since I started the journey of tibolone in perimenopause . thanks

[Kathleen]

Hello again ladies.

I have yet to get my mits on Tibolone but I will be asking to try it in January and I will certainly update the forum.

Pam  Madra - I am post meno so I'm in the right category for the drug but I hope it helps you too. The fact that women from all parts of the world can help and support each other via this forum is fantastic. Where would we be without each other?

Wishing you well ladies.

K.

[Annie0710]

The more I think about Tibolone and peri I am sure it's to do with a potential pregnancy

Because if you shut down your own cycle with drugs Tibolone is prescribed.  Are you sterilised Pam ?

Also Pam I have no experience of gall bladder issues, I would imagine nausea is a symptom but nausea and anxiety are classic meno symptoms x

[Pam Madra]

Hi Annie no I am irregular as far as my periods go so I assume I am perimenopause. I am not sterllised. Dr Baber gynae specialist in Sydney has recommended this but I am also visiting prof. John Eden in Jan to have another opinion about hrt. I have only taken two types of antidepressants and both were of no help to me. Tibolone is first form of hrt i have taken. I was on yasmin for long period of time and my gp was not keen on pills as yasmin did not help with hormone situation this year. Another gp had prescribed zoely but I did not take it. In meantime I have also approached Monash Uni who have trialled tibolone with peri situation. But I also think half a tablet is less dose to have any results quick enough. I am really trialling out tibilone and will have to get my gall bladder removed as well according to my doc. I will be visiting a specialist for it as well. Thanks once again for everything and thanks for advice

[Annie0710]

Aw bless you Pam, hope you get sorted xxx

[Sooze]

Week 17+
Since my last update I've had a fair bit or sinus pain & headaches thanks to an absolutely stinking cold. However in an attempt to up my fruit intake I've made a conscious effort to have more bananas - smoothies, or in my favourite toasted sandwich with a small amount of peanut butter, and the last 4 days no headaches.

Now it could be a coincidence, or just the reduction in the amount of snot my nose has been producing (sorry gross I know),  or something else but I thought I'd share just in case.

For those of you starting on Tibolone, be patient. The first month was very odd for me and I did have episodes of nausea (mixed with off the scale libido).  The time of day I took it made a difference - before bed was the worst, morning OK but a bit variable time wise if I got up late, so now I take it around mid day and this suits me the best, so do play around with the time you take it.

HTH

[Pam Madra]

HI Sooze thanks for your kind words. It has been odd one this month with nausea always been a problem for me and really feel like it just there. Also anxiety not settling in much with half a tablet in 23 days thinking of increasing dose but worried about nausea. Also take it at night time maybe will discuss with doctor regarding taking time as well.
thanks once again

[warwick01]

Hi Snooze,

Hope your feeling better soon.

Thank you for the reassuring comments

Day 8 11.00am not as shaky and nauseas as yesterday, still spacey head

Please keel posting with updates as it helps us TT newbies

Wx

[Pam Madra]

just checking warwick are you taking in morning the full tablet?

[warwick01]

Hi Pam,

Yes took tablet at 10.00am today. Touch wood I feel better than yesterday, still fuzzy head, a little snappy, less nauseas

Wxx

[Annie0710]

Pam are you on anything to shut down your own hormones ? I was VERY nauseous during peri, if I had a womb I'd have sworn I was pregnant for 3 years

I still get nausea but very rarely x

[Pam Madra]

Hi. I have taken a full tablet yesterday last night. Following on I did not feel much for first two week on half a tablet but  since my periods started very nausea ( though I have been having bad nausea already, gastro problems, leg cramps and still spotting. Chest tightness as well. I will try to change the time as I can sleep no more that 5 hours at night. I am not taking anything to shut down my own hormones. So I think I will take tibilone in morning/afternoon times and I think I will give it go till my visit next week to discuss with the gynaecologist. I am bit concerned that tibilone is giving side effects and I will have to give it. If anxiety does not get better then no use of taking it for me.

[Blakeygray]

I took mine in the morning and it took a few days for the sweats to stop and a couple of weeks for my mood to lift.

[Sooze]

Another quick update for you all - week 19+

Cold all gone and the headaches have not come back (yippee), which I think is also down to me doing a temporary increase in Vagifem (x3 per week for 2 weeks) and still doing the Ovestin externally nightly.  I think I might be a bit over optimal though as my skin has gone a bit sensitive - dry eyelids and lower neck, which I last had when on Femoston, so I'm going to ease up a bit.

Libido good, not off the scale.

Aches minimal.

Sleeping well.

No adverse excess hair or hair loss.

Feeling quite normal, I would say - oh and no problems with Prosecco or......champagne any more!  Would say my tolerance is back to normal and a couple of glasses doesn't make me feel awful.

I think for me there is a critical combination, and not sure if things would have settled on Tibolone alone, so I'll continue trying to 'fine tune' for the best balance for me.

I've been catching up with everyone else's experiences and impressed by all the support here - as they say, Rome wasn't built in a day and much as we all want results ASAP it pays to be patient sometimes.

Continued good luck everyone.