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[matildamouse]

I loved Tibilone and only ceased it due to a significant  increase in (already existing)  facial hair. It literally stopped my flashes from 1-2 in an hour to nothing within 3 days. So easy, just one tablet at night and my life was back.

[Pam Madra]

thanks  matildamouse. did you have any issues with anxiety or low mood lack of zest for life. I also have nausea which does not help and very impressed how quickly it worked. i have had it for only 5 day and half a tablet only. please share

[warwick01]

Reading these posts.......sounds like the magic pill we are all looking for.

Off to GP to suggest another try. Was on it 25 days last year but stopped due to unbarable VA incontinence, cystitis. Told GP but she never suggested anything for the VA.

Thank goodness for you ladies

Wx

[Pam Madra]

I hope it works magic for you warwick. Do keep us posted how it progress. I am peri menopause and taking half a tablet only yet at night time so would be really interested how it goes with all of us who have similar issues but may be at different stages of life or path medically. thanks

[matildamouse]

thanks  matildamouse. did you have any issues with anxiety or low mood lack of zest for life. I also have nausea which does not help and very impressed how quickly it worked. i have had it for only 5 day and half a tablet only. please share

As I had no quality of life prior to the Tibolone (1-2 hours sleep per night constantly for 2 weeks while rolling around in sweat), to me it was such a relief to be able to SLEEP and not have the constant hot flushes day and night, so it improved my mood dramatically. BUt women do differ in their responses. I tend to believe that I might never be my old self since the menopause business started and as long as my most bothersome symptoms (to me the lack of sleep and flushes) were under control, I am happy. I can rather cope with a low mood than constant insomnia and hot flushes as I live in a hot part of Australia!

All the best, I really hope you find what works for you. IT is not an easy road...

[Pam Madra]

yes our Australia weather can be testing. Thanks for your kind words. It is early for me to say anything. will keep you posted

[Sooze]

Update - almost at the end of week 15 and had a review with my gynaecologist. 

She's very happy with the improvement in the VA, and a uterine scan shows no thickening.  No real answer for the headaches/sinus discomfort, but as it's a minor side effect I'm happy to live with it and there have been less the past 2 weeks.  As I've restarted the Vagifem it could be the extra Oestrogen keeping them in check.

Libido is still very good compared to pre Tibolone, but does have peaks on and off, and hasn't gone off the scale again as it did in the first month.  On refection it's probably safer if that doesn't happen again.

As I've had no increase in facial hair, and overall my reaction has been very good, she thinks it's a bad idea to add in Testosterone gel - in case it knock everything off balance, and putting my sensible head on I have to agree.

Energy levels still good, absolutely no hot flushes, joints are better but I have an odd day where they ache a bit, but not as bad as previously.

Mood very good and positive.

Weight - no increase, actually 4lbs down before Xmas - probably go back on though as full of a cold and not exercising ATM.

So, just going to continue under care of my GP, unless I have any issues.  I did ask her how long I could continue on this regime and basically it's up to me, as long as I keep healthy.  She actually has one lady in her 80's who refuses to stop HRT, and as there are no contraindications to her continuing she's not arguing with her!

I won't update further unless anything changes, as it's all pretty stable for me now.

Good luck to everyone else trying Tibolone.

[Annie0710]

Lovely update Sooze, thankyou

so glad you're still doing well x

[Kathleen]

Hello Sooze.


Thank you for the update. I would give my eye teeth for my mood to be good and to feel positive.

I am using a Conti patch and worry that the oestrogen isn't enough and the progesterone is ruining the effect anyway. I have a GPs appointment in January so I may ask to try Tibolone. Something's gotta give.

Best wishes all.

K.

[Pam Madra]

kathleen do update your situation with tibolone. Are you menopausal though I am peri and not really much yet for me as only 2 weeks half a tablet.

[Annie0710]

Pam have you been told why it's not normally given in peri ? I am wondering (can't remember if I've posted this before) whether it's purely down to the fact pregnancy is a possibility in peri and the conversion to testosterone would be a problem with the fetus or whether there is another reason ?

If it is what I'm thinking, and you ensure you're protected , couldn't you take the whole tablet ?

Just a thought x

[Pam Madra]

thanks Annie. I will be checking with another gynae specialist in Jan to check about tibilone in peri stage. Yes pregnancy is an issue but taking protection though my libido is rock bottom. I wanted to check if I can take whole tablet as well. I just find that anxiety, foggy mind and nausea are my main issues. hope to find some answers.

[Annie0710]

Half a tablet doesn't seem much when you consider there's a 5mg tablet available.  Have a google.  It's got to be your say as well as theirs surely when you're suffering xx

[Annie0710]

http://www.med.monash.edu.au/cecs/documents/20120209-maprc-tibolone-study.pdf

[Tempest]

Wow! Thanks for the update, Sooze! Sounds like you're doing great.