Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Sooze]

Another update, almost 12 weeks since starting and I'm a little disappointed. 
So lets start with the good...........Mood good, mentally feel quite well balanced.
No increase in 'hair in unwanted places'.
Personal moisture levels, excellent.
Hot flushes - very almost zero.
Energy levels good and sleeping well.

I guess I feel 'normal' - or my 'normal'.

Disappointment..............I don't think the aching joints were down to the exercise, they have persisted.  mainly hips, lower back and knees.

Libido has dropped off somewhat, and would say a bit below what my pre meno level was.  Now don't get me wrong, this is still better than what it was, but having had experience of being a 'randy old sod' I'd quite like some more of that 

So the question is how does my body know what proportions to convert the Tibolone to?
Could it be that it started with a bit too much Testosterone & now the Oestrogen & Progesterone have kicked in it's dulling the Testosterone effect?

I'm seeing my gynaecologist at the end of Dec, and wondering if I could have Testosterone gel - just to top things up a bit?  Is anyone taking Tibolone & using Testosterone gel?

[Blakeygray]

Good question Sooze and one I'm interested to know the answer to as well.

Is anyone taking T and Tibolone? 

[Mojo]

Hi sooze

I am doing the reverse, my specialist prescribed Teso gel using pea size blob twice a week, after no weeks there was no change so have increased to four times a week and wow liabdo has finally come back after years it seems but no other changes, I am due to see my gp on the 11 to discuss adding tribone and then I Amy back to specialist in January after the doc re does my testrostone levels. It started at 0.1, so will be interesting to see what it goes up to after two months.

[Blakeygray]

Thanks mojo, please keep us updated 

[Annie0710]

Have a look at this, it seems there's a 5mg dose available if your dose isn't working as well

http://patient.info/forums/discuss/tibolone-extra-dose-548649

X

[Blakeygray]

This is so helpful Annie,  thank you 

[Annie0710]

Women are splitting doses and tablets too, gives more control than we thought x

[Kathleen]

Hello Ladies.

I've just posted on another thread that I am interested in Tibolone so these comments are very helpful. I am post menopause so I would be a candidate and may mention it to my GP when I see him in the New Year.

Many thanks to all the ladies who so helpfully share their knowledge and experience.

Take care all.

K.

[Mojo]

Hello ladies,

Just quick update, the specialist wrote to my doctor to suggest along with my testosterone gel, I can now include 2.5 tibilone so started last Saturday, this has replaced the cerelle mini pill I was taking to stop the ovulation point half way through the month when my body went into overdrive with the progesterone.

[Sooze]

Well here's another update almost 13 weeks since I started.

So the aching joints have subsided again and the libido increased  .

The headache/sinus ache has come back though.  Not enough to need painkillers, more of an annoyance, slight tension headache, very intermittent.

Yesterday it was nagging on and off through the day, but I did have a stressful day at work.  Then  I had a flash of inspiration last night and although not needing a Vagifem, I wondered if it would help/effect the headache.  Well, it may be a coincidence but I defiantly feel better today - maybe I need a bit of extra Oestrogen?

Now working part time & increasing the exercise so hoping to shift a couple of pounds.  Energy levels still very good, and mentally very balanced.

Skin all OK and no excessive hair in unwanted places.  Scalp hair growing a bit faster, but no thicker  Well, you can't have everything sometimes!

[Pam Madra]

good to hear that tibolone is working for you with 13 weeks of taking it.  Did it help wiht emotional being in terms of low mood and anxiety itself.

[Sooze]

Pam Madra,
For me absolutely. When I was peri, about 5 or so years ago I had the full blown panic attacks, and with hindsight I was probably a good candidate fo AD's but my GP put me on Femoson.  This got me over the main crisis but 18m later and I was getting similar undesirable side effects to when I was on the combined pill -emotionally flat and zero libido.  I did a gradual stopping over 2months and never got another period. 

I did get bad VA after that so my GP gave me Vagifem which I plodded on for around 2yrs, my 'feeling like me' returned but not libido and VA not treated by Vagifem alone hence eventual referral to gynaecologist last August.  This was all prompted by me reading an article in the Times about testosterone - I identified with so much in the article it was shocking.

For me Tibilone has reawakened my 'inner happiness' made me more motivated, more energy - that saying nothing in the change to my sex life 

I'm sure it doesn't suit everyone but I'd say it's worth a try, as long as there's no contraindications to doing so.
HTH

[Pam Madra]

HI Sooze
Thanks for sharing all this information. I am just concerned that everyone says that tibilone is used for post not peri menopausal women.  so I guess you used Femoston first then and then vagifam. Did these help in any form? I currently experience no inner happiness and completely flat emotionally. Did you have normal menopause and how long did peri last with you? Sorry for asking so many questions. thanks

[Sooze]

Pam Madra,
I think 'I started getting symptoms end of 2007, but my periods were never irregular or heavy- just had occasional hot flushes. 

Femoston sorted the flushes, sleeplessness and panic attacks but not the aches and pains or low libido that has come on over the pervious year, but I can't say I felt happy/emotionally upbeat, and libido was pants so March 2012 I weaned myself off.   I was also concerned that I was starting to feel depressed, in the same way as I did on the combined pill - I only managed to take that for 2-3yrs in my twenties before I started to get suicidal tendencies.

I never had any bleeding after I stopped Femoston.  The GP prescribed Vagifem in July 2012 and I'd been 'managing' with just that up to September this year, which I now realise was stupid, I really should have gone for help sooner..

So to answer your questions my peri probably started late 2007 and officiall ended March 2012, as I had no bleeding after stopping Femoston, so post would have been March 2013.

HTH

[Pam Madra]

thanks Snooze for the information. I think some of us are new to tibilone in this forum and really interested in knowing if it gives some hope to all of us. I think by following each other we can share few things and find some answers and accept few things.