I think if anything its more likely to be PSC, more readily linked to IBD.
As you know my enzymes were sky high and climbing at each test, but still I am at the monitering 3 monthy stage ,with likelihood of a transplant still a few years away.
One thing might just help, when I was very anxious about health, particulary this issue,my husband asked me what it would take for me to believe anything consultants etc were saying... I said basically it would take them to say I wasnt going to die any time soon, or suffer..
So he did no more than wrote to both my GP and consultant explaining my fears...although I had been saying this to my GP.
My consultant wrote me a letter, took a while, but it helped enormously. My GP called me in for a chat.
Result was that I finally accepted it, the problem is still there, but not the fear.