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Author Topic: Interstitial Cystitis.  (Read 4389 times)

Ann

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Interstitial Cystitis.
« on: October 28, 2011, 10:59:53 AM »

Does anyone suffer with IC ?
I'm going to see a urologist soon,  I have all the symptoms and was wondering
what gives relief, if any, from the burning pain in the bladder.?

I found Vagifem seem to help but I can't keep on it due to side effects.
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gilaray

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Re: Interstitial Cystitis.
« Reply #1 on: October 31, 2011, 08:42:18 PM »

I havent had IC but did suffer horribly with UTI's that drove me mad. The doc gave me some strong pain killers that apparently target that area. Im sorry but I dont recall the name of them bu they did give me some relief
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Scampi

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Re: Interstitial Cystitis.
« Reply #2 on: November 01, 2011, 07:45:36 AM »

Google Waterfall D-mannose.  Wonderful stuff for acute UTIs, and I think it's supposed to work for IC too.  There's a helpline number and the people on the other end of the phone are really helpful and sympathetic - and not just out to sell you the stuff ... I rang them once when I had a very bad UTI with blood clots in the urine and back-pain and they told me to see my GP asap rather than try to sell me their product.
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Ann

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Re: Interstitial Cystitis.
« Reply #3 on: November 02, 2011, 12:23:17 PM »

With IC there is no infection, it's much worse than a UTI.
I have tried D-Mannose,  it makes me feel very sick and doesn't help at all.

I am in so much pain with it,  here's hoping the Gynae can help.
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Taz2

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Re: Interstitial Cystitis.
« Reply #4 on: November 02, 2011, 10:42:19 PM »

Have you had a look at this site http://www.cobfoundation.org/   I know that to get the full benefits of their experience you can join for a fee of £20 a year but there also seems to be a helpline which may be free.

Taz x
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Mags7

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Re: Interstitial Cystitis.
« Reply #5 on: November 03, 2011, 06:44:39 PM »

l too have IC.  Have had it for about eight years and unfortunately there doesn't seem to be a cure.

Have a look at the forum on the web Taz suggested. You'll get lots of advice from other sufferers and some tips on what to avoid.  Half a teaspoon of bicarb in a glass of water helps me when it flares up. Avoid cranberry juice like the plague and anything with acid in it. (Wine, tomatoes, citrus fruit )

Hope you feel better soon

Magsx
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Ann

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Re: Interstitial Cystitis.
« Reply #6 on: November 04, 2011, 08:42:38 AM »

Thanks for the replies.  I have been reading the forum pages
of The Cob website for a long time now,  I've been on a restricted diet for
a long time, things like tomatoes or anything acidic I haven't eaten for years
but still no better.

I always have pain every day, it's a nightmare to live with.
It even wakes me during the night, and after emptying my bladder I'm in agony.
Just hope I get a uro that know what he's talking about this time.

Mags, I'm sorry you suffer with it too, it's awful to suffer from. xx
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Trey

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Re: Interstitial Cystitis.
« Reply #7 on: November 09, 2011, 04:47:56 PM »

When I worked for urologists we used an instillation per catheter of DMSO and steroid.  This was the only FDA approved use of DMSO.  I checked with my old office and they no longer see IC patients.  I had it for a few months after over stretching my bladder on a very long car trip with no stops.  If I drank a tiny bit of wine I was on fire.  I eat tons of yogurt and don't know if that helps.  Mine just eventually went away.  Go easy on the bicarb if you have high blood pressure - it is sodium - salt.

Does Pyridium help - used for UTI pain, over the counter in US by AZO.
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youngsue60

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Re: Interstitial Cystitis.
« Reply #8 on: November 09, 2011, 05:01:12 PM »

Hi catlady do try the waterfall d  mannose,it really does help with cystitis. my problem is i have urethitis and its nt so easy to treat with the waterfall d mannose as the once you go to the loo the its passing the uretha to quick to dislodge any bacteria,where as when its in the bladder for an hr.or two it has time to work.just about to be prescribed the vagifem for general dryness in all areas but dont like the fact one of the side affects is •Genital candidiasis or vaginitis; as i suffer from that too.
who would be a woman ::)

Sue
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