Dede - I know this thread is a bit old from your point of view - but I also had the horrendous loss of hearing, but not quite to your extent.... It took me quite a long time to understand that it was related to my allergies. Sprays didn't work but nose drops did.... eventually..... God knows why it took my GP and ENT specialist (In local surgery though) so long to find out what was causing it..... And it was seriously bad by then. (We're talking about 2 years here
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Prior to the nose drops I tried a device called OTOVENT - It's a balloon type device which you blow up with your nose and is great for "glue" ear etc. I think I paid about £7 for this device from the Internet - if you google it, you'll find it...... When I mentioned it to my GP he actually took some notes on it because he'd not heard of it.
My hearing was really bad - I couldn't hear much at all but at other times it was so overpowering - particularly when I was exposed to loud noises. Not a good thing to put up with when working in a school
I'm not 100% and that's a pain - I'm suffering at the moment because I've got a cold which immediately affects my hearing - but OMG - so much better than I have been in the past
Valxx