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[Tulip256]

I have had a Mirena for 9 weeks.  I was ok for first 7 weeks until the bleeding stopped.  I then started to wake at 3am with a really high heart rate, get random heart rate spikes during the day and racing heart.  My RHR went up from 55 to 65 and HRV dropped.

I was wondering if anyone else has had this. Chat GPT seems to think that when bleeding stops the progesterone from Mirena has peaked and your natural oestrogen dips for a few weeks until your body recalibrates. It seems to think that things will naturally improve over the next 4 or so weeks.  I cannot find any evidence of this elsewhere online though and wondered if anyone else has experienced this?

I was wondering if increasing my oestrogen patch would help? I have been stable on 50mg for years but thinking of trying 75mg. Any ideas?

[GS]

Hi Tulip,

I’m afraid I don’t have any advice, but am looking for some too. I’m almost in the same boat as you. I had the mirena fitted in June (after over a month of crazy heavy continuous bleeding) and I am also on 50mg Evorel patch.

The heavy bleed was hugely reduced, but I’ve bled pretty much consistently since having the mirena. I’m due a hysteroscopy soon to find out what’s going on.

I too am wondering whether to up my 50mg patch to 75g, as many symptoms have returned. Dizziness, hair loss, crazy fatigue, achy body etc.

I don’t want to hijack your post, just want to read the same advice from others and offer you support from a fellow sufferer!

Take care,
GS

[sheila99]

GS probably oestrogen deficiency but many are also low iron symptoms. Might be worth asking for a blood test to rule it out as you've been bleeding a lot. Tulip, it might be worth trialling an increase. I have a mirena but didn't have the chatgpt experience. Not sure I believe the theory either. Perhaps see what others think but if it was me I'd see my gp to rule out heart related problems.

[Tulip256]

Sorry to hear you are suffering too GS, it really is horrible. I upped my patch yesterday and do feel a little better today, not sure if just a coincidence though.

Interesting you mention iron Shelia, I had my iron tested and although my ferritin was OK my TSAT was low. I think TSAT represents the iron transport and its availability.

Chatgpt suggests that lower oestrogen increases hepacidin which is what the body produces to suppress the absorption of iron. The short term local inflamation caused as the mirena settles is also meant to increase hepacidin.  When pushed though it could not reference any scientific  papers on this only some indirect evidence that explains some of the mechanisms behind it.

[GS]

Thanks both, I’ll ask for a blood test to check iron and may increase my patch for a bit to see if it makes a difference.

I hope you find something that helps Tulip 🤞 x