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[Ayesha]

If everything comes back clear increase your dose of Vagifem and ask for Estriol cream to smear on the outside. Use treatment every day until you feel better then reduce the dose if you want to. Treatment takes a very long time to take effect but hope it goes well for you.

[Ajcxx]

They didn't try pessaries before your referral?

[Ajcxx]

Thankyou I only use twice a week atm no creams. I hope all comes back clear. My health anxiety is killing me at the moment. Put me off work 😪

[Jules]

They didn't try pessaries before your referral?

No. This was about 7 years ago. Unfortunately at that time I read the leaflet and the supposed risks and  didn't use them. I wish I had. I do now but started too late.

[Ayesha]

Thankyou I only use twice a week atm no creams. I hope all comes back clear. My health anxiety is killing me at the moment. Put me off work 😪

You're not using enough treatment, you really should at least try to increase the dose, its the only way to ease your anxiety about it all, when you start to feel better.

[Jules]

Ayesha is right. I started on twice a week with no cream. They didn't even tell me that you should apply estrogen externally back then. I thought it was all about the inside. By the time I realised it wasn't, I'd started with visible signs of vulval atrophy. It happened very quickly too. I requested some estriol cream after reading Ayesha's story. My GP at that time wasn't too keen on my using both but prescribed it and I use it twice a day now.

[Ajcxx]

My doctor told me 3 weeks everyday then twice a week. He never offered me any cream at all. Im sitting here crying atm because 1 im in discomfort down below and 2 it's getting me down bad. I was told they don't recommend using bith ? I don't know what to do. Maybe wait until I see urologist on 3rd December?

[Jules]

I've been using both for 2 years and at present I'm using extra estriol cream as I have some sensitivity. Did your doctor think you intended to use both internally?

[Ayesha]

I was told they don't recommend using bith ? I don't know what to do. Maybe wait until I see urologist on 3rd December?

They don't recommend it because they don't know, not enough research has been done with some GP's knowing very little about the condition, although I do think things are changing mainly due to nurse practitioners taking more of a role in HRT training.

When I changed surgeries my new GP questioned why I needed both Vagifem and Estriol cream every day, once I explained my history and the fact the cream lasted me three to four months he was happy to prescribe what I needed.

Try and be more proactive, difficult I know when feeling so down but being in great distress because of your symptoms it should give you the strength to start demanding more treatment for your condition, its what I did when Vagifem alone wasn't working.



 

[Jules]

I don't know how you manage to eek out a tube of cream for that long Ayesha. Mine lasts about a month. Maybe I'm using too much.

[Ajcxx]

Jules I was only given the pessary no cream was given.

Yes I know Ayesha... I eventually got up showered etc.  Can't let it beat me. Im hoping the urologist next week will help me alot, depending on results ! Ill definitely have peace of mind if nothing else.

[Jules]

Jules I was only given the pessary no cream was given.

Yes I know Ayesha... I eventually got up showered etc.  Can't let it beat me. Im hoping the urologist next week will help me alot, depending on results ! Ill definitely have peace of mind if nothing else.

Yes I know, you did say that. I just wondered why your doctor had mentioned not using them both And whether he was referring to use internally? I don't know. I've just dropped off a urine sample, my lovely GP is sending it to the lab because I've had that feeling down there. I think it could be my atrophy though. But he did say they get false positives and they also get false negatives and miss treating someone. So I suppose we have to know our own bodies too. As someone has said, ask for what you think you need to feel better. Don't be out of.

[Ajcxx]

This is true .... mine have been sent to lab 3 times all negative. They will not prescribe antibiotics if they show no signs of infection here in England anyway im not sure where you're from? ... Hence the urology referral. I will ask the urologist if I can be prescribed cream aswell at my appointment if it all points to atrophy

[Jules]

I'm in England. I hope you get a good outcome. It's horrible suffering these things. I envy my friends who don't suffer any atrophy and can forget about their private parts.

[Ajcxx]

Thankyou. It's absolutely awful. I've never suffered nothing like this. I've had UTIs in the past but have all cleared with antibiotics and this is like torture. You get the same symptoms but no relief. Well I haven't yet with 7 weeks of pessarys... Hopefully they will kick in anyway. 😊 thankyou.