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Author Topic: Sudden HRT stop  (Read 894 times)

mairired

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Sudden HRT stop
« on: July 29, 2025, 07:49:11 PM »

Hi All, after about 6yrs using Everol patches and about 4 with Mirena coil, which iv had changed halfway because if constant if light bleeding, consultant just said its the effect of the coil making things 'more juicy' yeah it was a man. But he did a biopsy etc to check and all.ok..but recently got fed up and spoke to GP who said that's not OK to be bleeding daily..sent me to post meno bleeding clinic, doc did an internal scan and said there was something there (in letter to GP said probably polyp) also have 2 fibroid and a cyst..he's put me in for a day surgery to remove and test but didn't feel it was cancerous..but op could take up to 4 months despite being urgent..today I spoke to male GP who refused to give me any more everol.patches, despite the Consultant not telling him to stop it...im about to have an amazing holiday in 3 weeks and yesterday I used my last patch so going cold turkey, furious, panicking about how quickly I may go back to feeling hellish..HRT saved me...is there anything else anyone can suggest to take albeit over the counter now to try and support my body and brain...so mad, cold turkey !!!! Btw also a male GP.
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sheila99

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Re: Sudden HRT stop
« Reply #1 on: July 29, 2025, 08:26:42 PM »

Complain to the practice manager or see a different GP. Who does he think he is to overrule a consultant?? They've found a cause for your bleeding and it isn't cancer so there's no medical reason to stop your hrt. You might get it from an online pharmacy if you say it's for long term travel or some patches have come off and gp won't prescribe replacements. What country are you going to? It might be somewhere you can it from a pharmacy without a prescription.
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bombsh3ll

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Re: Sudden HRT stop
« Reply #2 on: July 30, 2025, 10:47:20 AM »

I agree, this is completely unacceptable.

Unfortunately you may have to self fund a supply short term to keep you well whilst you go above their head and get your NHS prescription reinstated.
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Emma

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Re: Sudden HRT stop
« Reply #3 on: July 30, 2025, 11:35:13 AM »

Ask the robot:
Your body has adjusted to external estrogen support, and cutting it off abruptly is not clinically advised, unless there is a clear, immediate medical reason (e.g., suspected estrogen-sensitive cancer - which your consultant did not suggest).
https://www.menopausematters.co.uk/stopping.php

Unless specifically advised by the specialist to stop HRT, your GP should not have unilaterally discontinued it - especially not with zero tapering plan.
Even in cases of polyps, fibroids, or ovarian cysts, estrogen isn’t automatically stopped unless there's a concern about malignancy (which doesn’t appear to be the case here).

Request a Temporary Prescription: A low-dose patch (e.g., Everol 25 or 50) may be acceptable while awaiting surgery, even if they want to be cautious.
Alternatively, ask for transdermal gel (like Oestrogel) if the GP is nervous about patches.

If they refuse, ask if they’ll put in writing the clinical reason for stopping the medication - this often gets them to rethink.

What to Say to the GP (or Practice Manager):
"I understand caution around ongoing bleeding, but the consultant has not told me to stop my HRT. I’m now left abruptly without estrogen support, which can be very destabilizing both physically and mentally. Please can I be prescribed a low-dose or interim option until surgery, or at least until I’ve had a clear update from my consultant?”

Thermonuclear option: Here’s a concise but firm email/letter you can send to your GP practice or practice manager.

Subject: Urgent: Request for Reinstatement or Review of HRT Prescription

Dear [Practice Manager / GP's Name],

I am writing regarding the abrupt discontinuation of my Everol HRT patches, which I have been using successfully for approximately six years alongside a Mirena coil. My last patch was used this week, and I have now effectively been forced to stop HRT cold turkey — without tapering and without any recommendation to do so from my consultant.

I was recently referred to the post-menopausal bleeding clinic due to light ongoing bleeding. An internal scan suggested a probable polyp, as well as fibroids and a cyst. I have been referred for day surgery, but **no indication of malignancy was raised** by the specialist. **Importantly, there was no instruction from the consultant to stop HRT.**

Despite this, a GP at the practice has now refused to renew my Everol patch prescription. I would like to understand the clinical reasoning behind this decision and request it be urgently reviewed. Stopping estrogen therapy abruptly — after six years — poses real and significant risks to my wellbeing, and I am already beginning to experience a return of symptoms that had previously been well managed.

I am due to travel in under three weeks for a long-awaited holiday, and I am deeply concerned about the impact of unmanaged menopause symptoms on my health and ability to function.

I would respectfully request one of the following as soon as possible:

* A short-term prescription of Everol (or alternative transdermal HRT) to carry me through to my surgery or specialist follow-up.
* A conversation between my GP and the specialist who assessed me to clarify whether HRT must be stopped at this point.
* An urgent appointment to reassess this decision.

If none of these are possible, I would be grateful for a written explanation of the decision to override specialist input and halt long-term medication with no tapering plan or alternative offered.

Thank you for your urgent attention to this matter. I hope we can resolve this swiftly and avoid further unnecessary distress.

Kind regards,
[Your Full Name]
[Your DOB or NHS number if appropriate]
[Your Contact Details]
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Kathleen

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Re: Sudden HRT stop
« Reply #4 on: July 30, 2025, 12:35:20 PM »

Hello ladies.

During my meno journey I have on two occasions been referred to an NHS Consultant only to have their recommendations ignored by my GP. 

If this happens again I will complain to the Practice Manager at my GPs surgery and also contact the Consultant to report that their expert opinion is being disregarded.

It is unacceptable to be referred to a specialist and the appropriate treatment identified only to have the relevant treatment  denied by the GP.

Take care ladies.

K.

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mairired

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Re: Sudden HRT stop
« Reply #5 on: August 03, 2025, 05:39:00 PM »

Hi everyone sorry my my delay in responding. Thank-you so much for this support and the info from Emma about how to communicate to the practice, I called the consultants office, left a message with his secretary but say heard nothing from him either, considered buying some online but would have to lie about the bleeding as its a question on the assessment, so I will contact the practice tommorow now I have a clear sense that im not being unreasonable, so far iv been OK but its only been about 5days so far without a patch and only 2 weeks till my holiday. Thanks so much again..will.update when I can.
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bombsh3ll

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Re: Sudden HRT stop
« Reply #6 on: August 03, 2025, 09:29:24 PM »

I don't think you would be lying about the bleeding because it is no longer unexplained, it has been investigated and a benign cause identified for which treatment has been arranged.

This doesn't constitute unexplained or uninvestigated bleeding that the online pharmacy quite understandably need to exclude.
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